“You are in control of what happens to your body” is a phrase I have often said to my patients. In the nine years I’ve worked as a registered nurse, I frequently encountered patients and families who felt defeated, unheard, and powerless in making decisions about their own health. Many of them shared that they’re […]
A Nurse’s Guide to Self-Advocacy in Healthcare Read More
What Are School Accommodations? School accommodations are designed to help students with different learning needs succeed in the classroom. It is important that both parents and teachers do their best to help support and advocate for students with Turner syndrome. This can look like making sure all proper paperwork is in place, going to all
Five School Accommodations to Support Students with Turner Syndrome Read More
Star Sisters is a private online community hosted by the Turner Syndrome Foundation for adult women with Turner syndrome (TS) and caregivers of a child with TS. What’s Included in Star Sisters? Star Sisters maintains a private Facebook group for members to share their stories, share updates about their journey, ask for advice, and receive
Star Sisters: A Hub for the Turner Syndrome Community Read More
The TSF Legislative Advocacy Committee is a volunteer group that works together to advocate for Turner syndrome on a local, state, and national level in the U.S. Anyone can get involved in this effort! Keep reading to learn what legislative advocacy is, why it’s important, what the Committee’s projects entail, how to get involved with
YOU Can Be a Voice for Turner Syndrome: Join Our Advocacy Committee Read More
Education plays a critical role in the lives of individuals with Turner syndrome (TS), but too often, families and educators are left navigating challenges without the right tools, awareness, or support. Why the Education Working Group? For many individuals with Turner syndrome, medical care is only one part of the story. Academic and social experiences
Shaping Better School Experiences for Students with Turner Syndrome Read More
February is a special time for the Turner syndrome community. Each year during Turner Syndrome Awareness Month (TSAM), families, advocates, and supporters come together to share stories, educate others, and raise awareness about Turner syndrome. This year, the response from our community was truly inspiring. From classrooms and coffee shops to social media and fundraising
Turner Syndrome Awareness Month 2026: A Community United for Awareness Read More
Every year, the LSU Lady Tigers women’s basketball team uses their platform for something bigger than basketball. On February 1st, 2026, they once again dedicated the day to raising awareness and support for Turner syndrome. This cause is deeply personal to Head Coach Kim Mulkey and her family. An Experience That Changed Everything We’re grateful
Thank You, LSU Women’s Basketball & Coach Kim Mulkey Read More
Mark your calendars and get ready to bid with purpose! The Turner Syndrome Awareness Card Auction is back, and it’s a great way you can support TSF’s mission while celebrating creativity. Bidding opens on February 28th at 9:00 AM and ends on March 15th at 11:59 PM EST. Each card that will be available to
Turner Syndrome Card Auction 2026 Read More
Every February, we come together to recognize Turner Syndrome Awareness Month (TSAM). This is a time to uplift Turner syndrome voices and educate the world about Turner syndrome. The conversations we start, the stories we share, and the actions we take during Awareness Month create ripple effects that last all year long by reaching communities
Small Actions, Big Impact: Turner Syndrome Awareness Month 2026 Read More
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