Turner Syndrome FoundationArchives
Preparing to Move it for Millie
written by Heather Benoit- Millie’s Mom & Move it for Millie Event Director Watch a video about Heather’s experience organizing this annual event. Overall, the impact of our event has been humbling and sincere. We have raised awareness throughout the…
Read MoreCamp Carefree 2020
Camp Carefree is a wonderful camp in North Carolina that is offering a week of camp for girls who have Turner Syndrome this summer! Each week in the summer, they host children that have various health challenges. They offer an…
Read MoreTurner Syndrome Health Presentations at UTHealth
The University of Texas, Houston, recently hosted their annual “Turner Syndrome Community Day.” This is an event for patients and families to learn about a variety of health topics in a series of presentations. From clinical care guidelines, to dental…
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A Virtual Chat for Turner Syndrome Awareness
This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….
Read MoreWebinar: Advocating for TS Legislation
Turner syndrome affects women and girls across the nation. From health care, challenges in school and work, and financial burden, TS has a complex impact on each person. One of the most effective ways to bring about solutions that will benefit…
Read MoreAwareness Month Involvement Packet
February Awareness Month is almost here, and we have prepared so many ways for you to join us in making change. Raising awareness happens all year, but February is a special time for us to focus our efforts and work…
Read More“Taking Action this Awareness Month” Webinar
We have a very special free webinar planned for Thursday, January 9th at 8 pm EST! This will be a webinar to discuss all the things we have prepared for you in Awareness Month this February. Additionally, you will hear…
Read MoreSubscribe to our Newsletter!
If you have not already, now is the time to subscribe to our newsletter! You won’t miss a thing when you receive this monthly update on what we’ve been up to. It will keep you up-to-date on events, research initiatives,…
Read MoreAttend the Patient Workshop in California!
Join the Department of Pediatrics at the Cedars-Sinai Medical Center in Los Angeles, California for a Turner Syndrome workshop! This workshop will take place on January 9, 2020 from 12:30 to 2. It features lectures by Dr. Michelle Schwieger and…
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