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Sign the Awareness Petition

Advocacy is the path to obtaining the support and services you need. As an advocacy organization, we understand that gaps exist in certain areas of Turner Syndrome care, legislation, and more. However, with your help, we can raise awareness to…

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My Story: “It’s Rewarding to Help Others”

turner syndrome advocate

A Turner Syndrome Advocacy Volunteer Shares Her Story My name is Kym and I was diagnosed with Turner Syndrome at 16 years old. I was born the youngest of six with my twin brother in 1971. Growing up I showed…

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Meet Doreen: Mother & Advocate

My husband Gary and I were married for 4 years, the proud parents of Paul, almost 2 years old, and pregnant with Olivia, when we received a call from our OBGYN with our amniocentesis test results. When I replied, “What…

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Rally for Medical Research

Advocating for Turner Syndrome is very easy: Put on a good pair of shoes, meet up with the group and tell your story! Join us at Capitol Hill on September 12-13th and meet legislators to raise awareness and advocate for…

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Keep February Awareness Going!

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Since February has been deemed Awareness Month for Turner Syndrome, it is the time of year we always look forward to. February is an opportunity to take extra strides in passing along information about Turner Syndrome to our connected community…

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Meet our Advocacy Coordinator, Liz Carmines

Turner Syndrome has the potential to affect anyone in some way, so raising support for the disorder is everyone’s responsibility.

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Rally for Medical Research

  2017 Rally for Medical Research Turner Syndrome Foundation representatives attended the 2017 Rally for Medical Research this September in Washington, DC. The meetings and reception were held in the Grand Hyatt Hotel and on Capitol Hill. Aligning with advocacy…

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