Advocacy Archives | Turner Syndrome Foundation

Archives


Events for Awareness

2020 spaghetti dinner venue

Planning an event is a great way to raise awareness! There are so many different activities that could be used as an opportunity to raise awareness. Think- a fun run, karaoke night, wine and cheese tasting, yoga session, scavenger hunt,…

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Self-Advocacy for Better Health

Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome. This month I would like to shed some light on the open-heart surgery that…

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Turner Syndrome affects 1 in 2,000 females

She is a daughter, a sister, a friend. Women and precious babies diagnosed with Turner Syndrome require a lifetime of specialized care.

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Webinar: Advocating for TS Legislation

Webinar

Turner syndrome affects women and girls across the nation. From health care, challenges in school and work, and financial burden, TS has a complex impact on each person. One of the most effective ways to bring about solutions that will benefit…

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Subscribe to our Newsletter!

Newsletter header

If you have not already, now is the time to subscribe to our newsletter! You won’t miss a thing when you receive this monthly update on what we’ve been up to. It will keep you up-to-date on events, research initiatives,…

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Welcome Back Advocacy Coordinator, Liz Carmines!

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“When Was Your Last Period?”: A Few Things to Consider When Seeking Adult Care for Turner Syndrome

coming out turner syndrome diagnosis

by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF Living with Turner Syndrome I live with Turner syndrome. I was diagnosed at the age of 15. I am now almost 48. I saw the same Ob-Gyn, who guided…

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Tools for Going Back to School

Back to School

The start of Fall is about more then heading back to school. It means getting back to our usual routines. For girls and women with Turner Syndrome, it can be especially important to establish routines, and doing so can help…

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My Story: “It’s Rewarding to Help Others”

turner syndrome advocate

A Turner Syndrome Advocacy Volunteer Shares Her Story My name is Kym and I was diagnosed with Turner Syndrome at 16 years old. I was born the youngest of six with my twin brother in 1971. Growing up I showed…

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Meet Doreen: Mother & Advocate

My husband Gary and I were married for 4 years, the proud parents of Paul, almost 2 years old, and pregnant with Olivia, when we received a call from our OBGYN with our amniocentesis test results. When I replied, “What…

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