Advocacy

Articles related to efforts to advocate for TS or self-advocacy.

#Women’sHealthResearch Matters

     As an individual or a group, there are lots of opportunities to be an advocate for healthcare equity and to make a true difference for women with TS. Advocacy takes many different forms, and your experience as an advocate can be tailored to your unique interests and skill sets. Legislative action is a […]

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Rally for Medical Research

Powerfully Impacting the TS Community: Legislative Advocacy

   There are many ways to get involved in awareness and work within the Turner syndrome (TS) community. Legislative advocacy is a very important part of that work, as it allows us to communicate directly with our federal, state, and local representatives who have the ability to officially proclaim awareness for TS. National awareness for

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Equity in Healthcare: How It Impacts Women with TS

Note: This post contains sensitive information about reproductive health that may not be appropriate for younger audiences. Everyone’s journey with TS is different. Please consult with your health care provider(s) for guidance regarding your unique health issues and appropriate treatments. TSF does not take a stance on medical treatments or provide medical advice. When seeking

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how to call government officials

How To Call Government Officials Like A Pro

Subscribe to our blog Calling your local government officials is a great way to spread awareness of your cause and fight for actionable change, but many people may not know how to do it, or why. This article will tell you everything you need to know about advocating via phone calls, how to do it,

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How to Find a Turner Syndrome Specialist

Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with your specific health needs, called specialists, and how to refer others to specialists that have

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How To Advocate for Your Child in School: Navigating 504 Plans and IEPs

Subscribe to our blog Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP) and what to do if the plan’s results are not satisfactory.

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A Turner Syndrome Advocacy Success Story

Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki shares how her group successfully advocated in the state of Nebraska. Renee’s Turner Syndrome Advocacy

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