Turner Syndrome FoundationArchives
How to Help Your Child Overcome Their Reading Challenges
Is your child having lower test scores than the average student on topics such as reading and writing? Are they getting frustrated with or losing interest in reading with you or in class? They may have reading challenges, such as…
Read MoreHow To Advocate for Your Child in School: Navigating 504 Plans and IEPs
Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP)…
Read MorePerspectives on Self-advocacy
Do you want to advocate for yourself but do not know what self-advocacy actually means? Struggling to find examples of being a self-advocate? This article can help you! We recently talked with members from the Turner Syndrome (TS) community to…
Read MoreA Turner Syndrome Advocacy Success Story
Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki…
Read MoreSelf-Advocacy Tips for Healthcare, School, and Work
This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re…
Read MorePeer Chat: Self-Advocacy and Turner Syndrome
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog writer. Self-advocacy is important for any patient who has Turner Syndrome (TS) and their caregivers. The ability to speak up for your needs is crucial to ensure access…
Read MoreGrassroots Activism for Turner Syndrome: YOU Can Make a Difference!
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog post writer. Struggling with finding ways to make a positive impact in your community? Through grassroots activism and legislative advocacy for Turner Syndrome, we can all make a difference!…
Read MoreEvents for Awareness
Planning an event is a great way to raise awareness! There are so many different activities that could be used as an opportunity to raise awareness. Think- a fun run, karaoke night, wine and cheese tasting, yoga session, scavenger hunt,…
Read MoreSelf-Advocacy for Better Health
Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome. This month I would like to shed some light on the open-heart surgery that…
Read MoreTurner Syndrome affects 1 in 2,000 females
She is a daughter, a sister, a friend. Women and precious babies diagnosed with Turner Syndrome require a lifetime of specialized care.
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