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From 1938 to 2020: It’s Time for Change

Did you know that Turner Syndrome (TS) was first discovered in 1938? It might be hard to believe, given that, after 80 years, there is still a lack of awareness, research, and support for the TS community. Take a look…

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How to Find a Turner Syndrome Specialist

finding a doctor

Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with…

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How to Help Your Child Overcome Their Reading Challenges

tips for overcoming reading challenges

Is your child having lower test scores than the average student on topics such as reading and writing? Are they getting frustrated with or losing interest in reading with you or in class? They may have reading challenges, such as…

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Cyberbullying: How to Help your Child

 Is your child acting more upset, angry, hungry, antisocial, or tired lately? Has your child become less social online or become more negatively emotional when online? Does your child have health challenges that cause them to stand out at school,…

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How To Advocate for Your Child in School: Navigating 504 Plans and IEPs

Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP)…

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Perspectives on Self-advocacy

self-advocacy for Turner Syndrome

Do you want to advocate for yourself but do not know what self-advocacy actually means? Struggling to find examples of being a self-advocate? This article can help you! We recently talked with members from the Turner Syndrome (TS) community to…

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A Turner Syndrome Advocacy Success Story

advocacy for Turner syndrome

Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki…

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Self-Advocacy Tips for Healthcare, School, and Work

self-advocacy

This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re…

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Peer Chat: Self-Advocacy and Turner Syndrome

self-advocacy

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog writer. Self-advocacy is important for any patient who has Turner Syndrome (TS) and their caregivers. The ability to speak up for your needs is crucial to ensure access…

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Grassroots Activism for Turner Syndrome: YOU Can Make a Difference!

legislative advocacy for Turner Syndrome

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog post writer. Struggling with finding ways to make a positive impact in your community? Through grassroots activism and legislative advocacy for Turner Syndrome, we can all make a difference!…

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