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Powerfully Impacting the TS Community: Legislative Advocacy

Rally for Medical Research

     There are many ways to get involved in awareness and work within the Turner syndrome (TS) community. Legislative advocacy is a very important part of that work, as it allows us to communicate directly with our federal, state,…

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Equity in Healthcare: How It Impacts Women with TS

Subscribe to our Blog! Note: This post contains sensitive information about reproductive health that may not be appropriate for younger audiences. Everyone’s journey with TS is different. Please consult with your health care provider(s) for guidance regarding your unique health…

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Accomplishing Great Things: Turner Syndrome Foundation’s 2022 Annual Report

The Turner Syndrome Foundation (TSF) had a very productive 2022! We expanded our programs and initiatives to support patients, caregivers, and families affected by Turner syndrome (TS). Let’s take a look at TSF’s 2022 Annual Report, which outlines the organization’s…

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MLK Day of Service: Working Toward the Dream

On January 16th, we celebrate Dr. Martin Luther King, Jr. Day, which is also designated as a national day of service (MLK National Day of Service). Dr. King’s dream was that citizens would work together for a better and more…

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Get Ready for Turner Syndrome Awareness Month 2023!

Turner Syndrome Awareness Month 2023 is fast approaching! The entire month of February is dedicated to increasing awareness of Turner syndrome (TS). The Turner Syndrome Foundation’s (TSF’s) Awareness Committee has put together lots of fun-filled challenges for the month. Don’t…

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Legislative Advocacy at TSF: Pursuing Lasting Change

Advocacy takes many forms, from standing up for those experiencing discrimination to raising awareness of a global cause. The most effective advocacy measures are those that create sustained change via the laws that govern access to services and care. Legislative…

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How To Be of Service to Your Community

September 11th is a National Day of Service in the U.S. Serving your community benefits both you and others. One community you can serve is those affected by Turner syndrome (TS). The Turner Syndrome Foundation (TSF) supports advocacy, awareness, education,…

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Living Independently with Turner Syndrome

Turner Syndrome (TS) is a genetic condition that affects 1 in every 2,000 live female births. Individuals with TS usually have short stature, may be infertile, and may experience a variety of medical, cognitive, and psychological challenges. Given these challenges,…

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Student Volunteers Make a Difference, Too!

We often talk about the importance of “making a difference.” This can sound intimidating, especially for young people, but the Turner Syndrome Foundation (TSF) provides many ways for advocates of all ages to make a difference for Turner Syndrome (TS)….

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Legislative & Public Health Advocacy for Turner Syndrome

Rally for Medical Research

During Turner Syndrome (TS) Awareness Month, we hope you are discovering the many different tools communities can utilize to advocate for positive change. The TS community needs new leaders to help bring about this change. Will you be the one…

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