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Welcome Back Advocacy Coordinator, Liz Carmines!

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10 Ways to Raise Awareness after February

Awareness Month is a unique opportunity to call on legislators, the media, industry leaders, and more to pay attention and take action! But, it doesn’t mean we stop our efforts when February ends. In order to bring about real change,…

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My Story: “It’s Rewarding to Help Others”

turner syndrome advocate

A Turner Syndrome Advocacy Volunteer Shares Her Story My name is Kym and I was diagnosed with Turner Syndrome at 16 years old. I was born the youngest of six with my twin brother in 1971. Growing up I showed…

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Meet Doreen: Mother & Advocate

My husband Gary and I were married for 4 years, the proud parents of Paul, almost 2 years old, and pregnant with Olivia, when we received a call from our OBGYN with our amniocentesis test results. When I replied, “What…

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Rally for Medical Research

Advocating for Turner Syndrome is very easy: Put on a good pair of shoes, meet up with the group and tell your story! Join us at Capitol Hill on September 12-13th and meet legislators to raise awareness and advocate for…

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Rally for Medical Research

  2017 Rally for Medical Research Turner Syndrome Foundation representatives attended the 2017 Rally for Medical Research this September in Washington, DC. The meetings and reception were held in the Grand Hyatt Hotel and on Capitol Hill. Aligning with advocacy…

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