Turner Syndrome FoundationCategory: Patient
Upcoming Webinar: the Cognitive Impact of Turner Syndrome
Learn about the Turner Syndrome Foundation’s (TSF) upcoming webinar, The Cognitive Impact of TS, presented by Dr. Ilyse O’Desky. This webinar will take place on January 27, 2021 at 7:00 p.m. EST. The Cognitive Impact of Turner Syndrome The cognitive…
Read MoreChoosing a Health Insurance Plan
In this post, we will discuss some tips on how to choose a health insurance plan based on a recent webinar presented by Pfizer and hosted by the Turner Syndrome Foundation (TSF). Particularly, we will focus on considerations to think…
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Discussing Infertility: Upcoming Webinar
The upcoming webinar, Discussing Infertility, presented by NYU School of Medicine’s Dr. Gwendolyn Quinn, will help you learn how to approach conversations about infertility with others. Why is Discussing Infertility Important? Infertility is a wide-reaching issue that affects many. 10%…
Read MoreMy 2021 Word of the Year: Health
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she shares the meaning behind her “word of the year.” Health –…
Read MoreMy Story: Advice for Patients and Parents
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, we present the story of Olivia was diagnosed in utero. She discusses how she has…
Read MoreMy Story: Navigating Turner Syndrome Under the Radar
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of two women, Katelynne and Susan, who were both diagnosed later than…
Read MoreFrom 1938 to 2020: It’s Time for Change
Did you know that Turner Syndrome (TS) was first discovered in 1938? It might be hard to believe, given that, after 80 years, there is still a lack of awareness, research, and support for the TS community. Take a look…
Read MoreMy Story: Never Let a Diagnosis Get in Your Way
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Maria, a 29-year-old woman with TS. Maria discusses how she has…
Read MoreAdult Care Guidelines for Individuals with Turner Syndrome
In this post, we will share adult care guidelines for patients with Turner Syndrome (TS). We aim to provide a general overview of suggested physician visits, tests, and monitoring to ensure prevention of potential health concerns. Note: The information in…
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