Patient Health & Life

Articles promoting self-advocacy and relating to navigating personal and family health and life with TS.

Overcoming The Mental Mind Game

   The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers impacted by Turner syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community. These serve the purpose of educating those who are unfamiliar with these types of […]

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Turner Syndrome and Life Expectancy: Tips for Maintaining Longevity

We know that TS patients and their loved ones have a lot of questions about how TS can impact life expectancy. We at the Turner Syndrome Foundation (TSF) recognize that this is a sensitive topic for those living with Turner syndrome (TS). As you read through this post, it is important to remember that TS

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Turner Syndrome & Family History/Heredity

Subscribe to our blog After a child receives a diagnosis of Turner Syndrome (TS), parents and caregivers are likely to have many questions regarding their child’s health and future. One common question is whether or not TS is hereditary or somehow preventable. While there are rare exceptions,TS is not considered hereditary, meaning that it generally

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My Story: From Pregnancy Loss to Cast-iron Endurance

Subscribe to our blog The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community. This month, we share the story of a woman who learned

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Girl at doctor

Sharing a Turner Syndrome Diagnosis with Your Child at Different Stages

Subscribe to our blog Many parents struggle with sharing a Turner Syndrome (TS) diagnosis with their child. When is it appropriate? How do I share it? How much do I share? It is a difficult decision, but there are benefits to sharing the diagnosis and educating the child about their condition. It increases knowledge, self-advocacy,

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Turner Syndrome & Dental Health

Subscribe to our blog October is National Dental Hygiene Month, and it is time to shine a spotlight on the importance of a healthy smile. The basics of oral health are universally taught as brushing twice a day and flossing every day. These recommendations are easy to follow, and unwanted complications can arise when they

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My Story: Turner Syndrome and Gonadoblastoma

The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community. Since September is Ovarian Cancer Awareness Month, we share the story of Renee, who had

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The Changing Workplace: New Opportunities for Work-Life Balance

Subscribe to our blog The sudden change and isolation during the COVID pandemic pushed us into an uncomfortable and uncertain reality, one that led us to reconsider our choices and routines. The workplace changed, too, in ways that offer new opportunities for those seeking an improved work-life balance in the post-pandemic world. Individuals with Turner

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Living Independently with Turner Syndrome

Subscribe to our blog Turner Syndrome (TS) is a genetic condition that affects 1 in every 2,000 live female births. Individuals with TS usually have short stature, may be infertile, and may experience a variety of medical, cognitive, and psychological challenges. Given these challenges, patients with TS need access to specialized medical, educational, social, and

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