Turner Syndrome FoundationCategory: Patient
Susan’s Educational Journey
Susan is a volunteer blog post editor and translator for the Turner Syndrome Foundation (TSF). Her Turner Syndrome (TS) journey began when she was 19, after testing by the genetics department at her university. She is now 51. While TS…
Read MoreCyberbullying: How to Help your Child
Is your child acting more upset, angry, hungry, antisocial, or tired lately? Has your child become less social online or become more negatively emotional when online? Does your child have health challenges that cause them to stand out at school,…
Read MoreInsights on Education: Ask Star Sisters
We asked our Star Sisters, a private Facebook group for individuals with Turner Syndrome (TS), for their insights on education. Read below to see what three ladies with TS had to say about their educational journey, their biggest challenges, and…
Read MoreHow To Advocate for Your Child in School: Navigating 504 Plans and IEPs
Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP)…
Read MoreIn Celebration of Education
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on her educational journey and the things she celebrates in life….
Read MoreOvercoming Educational Challenges
Christina is a woman with Turner Syndrome, a wife, and a teacher. In this post, she shares her perspective on what unique educational challenges children with Turner Syndrome might face. She also discusses some strategies to support your child so…
Read MoreMy Hormone Therapy Experience
In this post, Katie, a woman who has Turner Syndrome (TS), talks about her experience with growth hormone and estrogen therapies. Her experience may not be the same as that of others, but may shed some light on the treatments…
Read MoreMy Daughter’s Turner Syndrome Journey: Q&A with a Mother
Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with…
Read MoreI Had Heart Surgery During a Pandemic
Nicole, a woman who has Turner Syndrome (TS), shares her experience undergoing heart surgery during the COVID-19 pandemic. Her heart surgery is not uncommon among those with TS, so many with TS can relate to her experience. I am a…
Read MoreFinancial Resources for Growth Hormone Therapy
Do you have a child or loved one who has Turner Syndrome (TS) and needs growth hormone therapy (GHT) but cannot afford it? Do you know another parent in this situation? Read below to learn about what financial resources for…
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