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Star Sisters Celebrate International Day of Friendship

friends on vacay

Friendship is born at that moment when one person says to another, you too? I thought I was the only one. -C.S. Lewis Hi! My name is Amanda, and I am 21 years old with Turner Syndrome (TS). After my…

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The Power of Labels

Turner Syndrome (TS) and other chronic conditions can become a large part of one’s identity, but the Turner Syndrome Foundation (TSF wants) individuals with TS to know that they are so much more than their diagnosis! How Labels Work Labels…

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Online Card Auction: Designer Highlight

EVENT START Friday, July 2, 20218:00 a.m. EDT EVENT END Friday, July 5, 20218:00 a.m. EDT WEBSITE TAKE ME TO THE AUCTION DONATE ONLINE AUCTION HOSTED BY LORI Proceeds from this online card auction benefit precious babies and the…

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My Story: Moving from Pain to Purpose

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their loved ones/caregivers. This month, it is an honor to share Bill’s story. His late wife, Jennifer, had TS and…

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The Men in Our Lives: Happy Father’s Day!


He’s the first man in your life. He is your first hero. He is your rock! On Father’s Day, we celebrate the special men in our lives–dads, family members, or other father figures. In honor of Father’s Day, we invited…

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Eating Healthy: Have You Eaten Your Veggies Today?

flat lay photography of vegetable salad on plate

Everywhere you turn for guidance on nutrition, you will find strong recommendations to eat more of a plant-based diet. But did you know that the many varieties of vegetables have fantastic healing properties? Eating a diet rich in vegetables (and…

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Fertility Preservation in Turner Syndrome

test for infertility, AMH, fertility hormones

In this post, we’ll review some of the information shared during the webinar “Fertility Preservation in Girls with Turner Syndrome” hosted by the Turner Syndrome Foundation, featuring guest speaker Dr. Kutluk Oktay–an OB/GYN physician and professor at Yale University. We…

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Balancing Emotional Wellness

balancing emotional wellbeing

From time to time, we all need a little support to maintain emotional wellness. After months of sheltering in place, we must find balance in managing health and emotional wellness as we begin anew. WEBINAR TOPIC Balancing Emotional Wellness REGISTER…

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Children’s Spotlight: Wave a Flag for TS

Chidrens Flag Day

June 14 is National Flag Day! Flags can be seen waving on front lawns, in hand during parades, and waving high above federal buildings. This gave us an idea! We thought of creating a Children’s Spotlight, a family-friendly activity for children…

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Turner Syndrome and Celiac Disease

The month of May has been dedicated to Celiac Disease Awareness. Increased awareness of both Turner Syndrome (TS) and celiac disease is critically important. Celiac disease is more prevalent in those with TS, so it is vital that patients, their…

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