Turner Syndrome FoundationCategory: Patient
Grassroots Activism for Turner Syndrome: YOU Can Make a Difference!
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog post writer. Struggling with finding ways to make a positive impact in your community? Through grassroots activism and legislative advocacy for Turner Syndrome, we can all make a difference!…
Read MoreFinding the Right Doctors for Your Daughter with Turner Syndrome
Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…
Read MoreWhy I Love the TSF Autumn Retreat
The annual Turner Syndrome Foundation Autumn Retreat is always a great time! Bringing together women and girls who have Turner Syndrome offers the opportunity to form special connections with others who understand their point of view. We get together in…
Read MoreTurner Syndrome Research: AJ’s Journey
Written by Audrey (AJ) Jones, Turner Syndrome Foundation (TSF) intern and researcher. AJ is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome (TS) and working with the TSF since 2016. After completing her Princeton University…
Read MoreTurner Syndrome and Relationships: Twitter Chat
Written by Cassidy Hooper, TSF volunteer Twitter Chat Facilitator Our Twitter discussion in May was about Turner Syndrome (TS) and relationships. It was so interesting and inspiring to learn about all the personal experiences with relationships as they relate to…
Read MoreUnderstanding Experiences with Turner Syndrome- Research Project
Audrey (AJ) Jones is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome and working with the Turner Syndrome Foundation (TSF) since 2016. After completing her Princeton University Bachelor’s thesis on Turner Syndrome communities, she is…
Read MoreFigure and Ground: Perceptions of Living with Turner Syndrome
Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome describes her perceptions of living with Turner Syndrome throughout her life using the concept of figure and ground. Our perceptions of our experiences, including living with Turner Syndrome,…
Read MoreTurner Syndrome Variations
Turner Syndrome manifests itself differently in each patient. This post will examine the different variations of Turner Syndrome and what that means for girls and women with the condition. Many people do not realize that there are two variations of…
Read MoreTurner Syndrome Research Opportunities
Written by Liz Rivera, TSF intern and currently a junior at Stockton University studying sociology and anthropology. Liz has a strong passion for helping people and hopes to connect people in need with support and resources to help them live…
Read MoreHow Aortic Dissection Surgery Impacted My Family Planning
Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences with family planning and Turner Syndrome after aortic dissection surgery. The Struggle of Infertility In honor of Women’s Health…
Read More
English
العربية
简体中文
Nederlands
Français
Deutsch
Italiano
Português
Русский
Español