Turner Syndrome Awareness Month 2026: A Community United for Awareness

Leave a Comment | Awareness, Get Involved, Mission | | ,

February is a special time for the Turner syndrome community. Each year during Turner Syndrome Awareness Month (TSAM), families, advocates, and supporters come together to share stories, educate others, and raise awareness about Turner syndrome. This year, the response from our community was truly inspiring. From classrooms and coffee shops to social media and fundraising […]

Turner Syndrome Awareness Month 2026: A Community United for Awareness Read More

Thank You, LSU Women’s Basketball & Coach Kim Mulkey

Leave a Comment | Awareness, Get Involved, Personal Stories | | ,

Every year, the LSU Lady Tigers women’s basketball team uses their platform for something bigger than basketball. On February 1st, 2026, they once again dedicated the day to raising awareness and support for Turner syndrome. This cause is deeply personal to Head Coach Kim Mulkey and her family. An Experience That Changed Everything We’re grateful

Thank You, LSU Women’s Basketball & Coach Kim Mulkey Read More

Small Actions, Big Impact: Turner Syndrome Awareness Month 2026

Leave a Comment | Awareness, Get Involved | | , ,

Every February, we come together to recognize Turner Syndrome Awareness Month (TSAM). This is a time to uplift Turner syndrome voices and educate the world about Turner syndrome. The conversations we start, the stories we share, and the actions we take during Awareness Month create ripple effects that last all year long by reaching communities

Small Actions, Big Impact: Turner Syndrome Awareness Month 2026 Read More

Her Fight is Our Fight Collage

After Awareness Month the Beat Goes On

Leave a Comment | Awareness, Essentials, Get Involved, Mission | | , , ,

Subscribe to our blog Throughout February, we proudly celebrated Turner Syndrome Awareness Month, honoring the incredible women and girls who show strength, resilience, and determination every day. While the official awareness month may be coming to an end, our commitment to raising awareness must continue all year long. By keeping the conversation going, we can

After Awareness Month the Beat Goes On Read More

From a Health Professional: Why don’t we know enough?

1 Comment | Awareness, Get Involved, Personal Stories | | ,

Subscribe to our blog Dear Health Professionals, When people ask me what I do for a living, my first answer is, “I breathe.” I often get a look of humor, contempt, curiosity, or disbelief.  Well, I am a healthcare professional, and I’m glad you put up with my opening line. Not many would, and I

From a Health Professional: Why don’t we know enough? Read More

Webinar Pediatric Referrals

Calling All Healthcare Professionals, Advocates, and Policymakers

1 Comment | Awareness, Get Involved | |

Subscribe to our blog Calling all Healthcare Professionals, Advocates, and Policymakers Like a fortified scaffold, an informed healthcare team can support a woman with TS in achieving their health goals. As girls with Turner syndrome (TS) grow into adults, these patients can benefit from primary care physicians and specialists adept at TS care in the

Calling All Healthcare Professionals, Advocates, and Policymakers Read More

Spreading Awareness with Rodrigo Colon

Leave a Comment | Awareness, Get Involved | | ,

Subscribe to our blog Rodrigo Colon sat down with Lori Kobular on his podcast, Own Your Career Special, to discuss her experience with Turner syndrome and the importance of awareness that truly impacts the lives of women. When Rodrigo’s granddaughter, Lily, was diagnosed with Turner Syndrome, his first reaction was, “What is that?” Rodrigo Colon

Spreading Awareness with Rodrigo Colon Read More

#Women’sHealthResearch Matters

Leave a Comment | Awareness, Get Involved | | , , ,

     As an individual or a group, there are lots of opportunities to be an advocate for healthcare equity and to make a true difference for women with TS. Advocacy takes many different forms, and your experience as an advocate can be tailored to your unique interests and skill sets. Legislative action is a

#Women’sHealthResearch Matters Read More