Awareness

Articles relating to awareness efforts and legislation.

Spreading Awareness with Rodrigo Colon

Subscribe to our blog Rodrigo Colon sat down with Lori Kobular on his podcast, Own Your Career Special, to discuss her experience with Turner syndrome and the importance of awareness that truly impacts the lives of women. When Rodrigo’s granddaughter, Lily, was diagnosed with Turner Syndrome, his first reaction was, “What is that?” Rodrigo Colon […]

Spreading Awareness with Rodrigo Colon Read More

#Women’sHealthResearch Matters

     As an individual or a group, there are lots of opportunities to be an advocate for healthcare equity and to make a true difference for women with TS. Advocacy takes many different forms, and your experience as an advocate can be tailored to your unique interests and skill sets. Legislative action is a

#Women’sHealthResearch Matters Read More

Rally for Medical Research

Powerfully Impacting the TS Community: Legislative Advocacy

   There are many ways to get involved in awareness and work within the Turner syndrome (TS) community. Legislative advocacy is a very important part of that work, as it allows us to communicate directly with our federal, state, and local representatives who have the ability to officially proclaim awareness for TS. National awareness for

Powerfully Impacting the TS Community: Legislative Advocacy Read More

Equity in Healthcare: How It Impacts Women with TS

Note: This post contains sensitive information about reproductive health that may not be appropriate for younger audiences. Everyone’s journey with TS is different. Please consult with your health care provider(s) for guidance regarding your unique health issues and appropriate treatments. TSF does not take a stance on medical treatments or provide medical advice. When seeking

Equity in Healthcare: How It Impacts Women with TS Read More

Turner Syndrome Awareness Month 2023: Let’s Keep the Momentum Going!

Subscribe to our blog Well, Turner Syndrome Awareness Month (TSAM) 2023 is a wrap, and what a wonderful month it was! Throughout February, the TS community–patients, families, advocates, and medical professionals–came together to raise awareness for this rare condition. The Turner Syndrome Foundation (TSF) sponsored a wide variety of activities and challenges for ”awareness ambassadors”

Turner Syndrome Awareness Month 2023: Let’s Keep the Momentum Going! Read More

Be a Social Media Influencer for the Turner Syndrome Community!

Subscribe to our blog The Turner Syndrome Foundation is looking for talent to move our mission forward. We are here to transform the lives of those living with Turner Syndrome and give them the best possible resources and care to live their healthiest lives. At TSF, we are looking to form ongoing, long-lasting partnerships and

Be a Social Media Influencer for the Turner Syndrome Community! Read More

Shopping Cart