Who We Are

When asked who we are at Turner Syndrome Foundation, we are the thought leaders and advocates working to identify solutions for patient and families affected by Turner Syndrome. Patients and their families are the heart in all we do.

Turner Syndrome Foundation (TSF) is an advocacy agency organized in 2008 and incorporated in 2009 as a 501(c)(3) nonprofit organization. TSF broadly serves worldwide providers and consumers with educational resources and support through open access to the website, TurnerSyndromeFoundation.org, as well as personal support, and outreach programs.

Who’s Who at the Turner Syndrome Foundation

The Foundation is governed by a volunteer Board of Directors and is advised by a volunteer Medical & Legal Advisory Board. A few individuals with subject expertise serve on an advisory council. The Executive Director ensures advancement of the Foundation’s programmatic objectives, development and fundraising goals, and manages all staff and volunteer leaders.


The Foundation relies on a considerable body of volunteers to execute many of the programs and services we provide. This enables us to be better stewards of our donors’ gifts. Time and talent are needed for ongoing or short-term assignments. Learn how you can apply to volunteer, participate, or lead a program initiative as an individual, community or professional in a capacity that best suits your interest and ability.

Learn how you can GET INVOLVED

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