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Make a gift today to increase the capacity to improve lives of girls and women with Turner Syndrome, as well as their families and healthcare providers. Your gift today is a promise for better tomorrows. 

Health Care Provider

Communication is the cornerstone of effective care for Turner Syndrome patients and their caregivers. The Turner Syndrome Foundation has developed this site to assist allied health professionals with complex medical concepts. “In medicine we cannot always cure, but we can…

Turner Syndrome Patient Registry

Latest Articles

Turner Syndrome Health Presentations at UTHealth

The University of Texas, Houston, recently hosted their annual “Turner Syndrome Community Day.” This is an event for patients and families to learn about a variety of health topics in a series of presentations. From clinical care guidelines, to dental…

Perspectives on Health and Turner Syndrome

In our second Twitter chat for Turner Syndrome awareness, we talked about health concerns. It was insightful to hear so many perspectives on the condition. As we learned, TS affects every woman and girl differently. There are some more common…

coming out turner syndrome diagnosis

An Awareness Success Story

Sometimes in our rush to think about awareness as big events and campaigns, we forget that awareness is, above all, personal. Connection is the heart of Turner Syndrome awareness. Communication is the heart of connection. Talking and writing are the…

A Virtual Chat for Turner Syndrome Awareness

This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….

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Involvement Guide

Awareness Month Involvement Packet

February Awareness Month is almost here, and we have prepared so many ways for you to join us in making change. Raising awareness happens all year, but February is a special time for us to focus our efforts and work…

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Awareness Webinar

"Taking Action this Awareness Month" Webinar

We have a very special free webinar planned for Thursday, January 9th at 8 pm EST! This will be a webinar to discuss all the things we have prepared for you in Awareness Month this February. Additionally, you will hear…

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