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Make a gift today to increase the capacity to improve lives of girls and women with Turner Syndrome, as well as their families and healthcare providers. Your gift today is a promise for better tomorrows. 

Health Care Provider

Communication is the cornerstone of effective care for Turner Syndrome patients and their caregivers. The Turner Syndrome Foundation has developed this site to assist allied health professionals with complex medical concepts. “In medicine we cannot always cure, but we can…

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Turner syndrome haiku's

Turner Syndrome Community Haikus

Today we wanted to share some creativity from the Turner Syndrome community in honor of National Haiku Day. “Observed annually on April 17, National Haiku Poetry Day encourages all to try their hand in creativity. Haiku poetry is a form of Japanese poetry that is non-rhyming and…

Announcing Long Island’s Turner Syndrome Clinic

Turner Syndrome Clinics, otherwise known as Specialized Centers of Care, offer comprehensive health care for individuals with Turner Syndrome. We are happy to announce a newly-approved clinic in Long Island and share how you can find one near you! Turner…

Everything you need to know about fertility preservation

Everything You Need to Know About Fertility Preservation Treatments

This post is based on the recent webinar by Dr. Oktay on “Fertility Preservation in Girls with Turner Syndrome.” It briefly highlights the importance of early diagnoses and treatment as well as the types of fertility preservation treatments individuals with…

My Story: I Feel So Lucky

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents and caregivers. In this post, Rita, a 78-year-old woman who was diagnosed with TS at 17 years old,…

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Estrogen Replacement Therapy Overview

Estrogen Replacement Therapy Overview

Estrogen Replacement Therapy (ERT) is an important treatment for adolescents and women with Turner Syndrome (TS). The below overview is provided by Lournaris Torres-Santiago, MD and Nelly Mauras, MD, from Nemours Children’s Health System in Jacksonville, FL. Note: The information…

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Estrogen Replacement Therapy FAQ

Estrogen Replacement Therapy FAQ

Estrogen Replacement Therapy is a common treatment for patients with Turner Syndrome. In this post, find the answers to some frequently asked questions about ERT. Thank you to Lournaris Torres-Santiago, MD and Nelly Mauras, MD of Nemours Children’s Health System,…

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