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Make a gift today to increase the capacity to improve lives of girls and women with Turner Syndrome, as well as their families and healthcare providers. Your gift today is a promise for better tomorrows. 

Health Care Provider

Communication is the cornerstone of effective care for Turner Syndrome patients and their caregivers. The Turner Syndrome Foundation has developed this site to assist allied health professionals with complex medical concepts. “In medicine we cannot always cure, but we can…

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Turner Syndrome Patient Registry

Latest Articles

A Doctor’s Turner Syndrome Story

Learn Dr. Mary Gwyn Roper’s story on how she was affected by TS, why she started working with TSF, her hopes for the future, and how you can help the TS community! A Doctor’s TS Story Dr. Roper was born…

finding a doctor

How to Find a Turner Syndrome Specialist

Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with…

Communicating With Your Physician: Tips On Self-Advocacy

In this post, we will discuss some tips on how to communicate with your physician. Particularly, we will focus on specific ways patients and caregivers can ensure that physicians are listening to and hearing their stories for effective clinical encounters….

blog series with Katie Steedly curling

Thankful for Turner Syndrome

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on how she made peace with and learned to be…

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My Story: I Wouldn’t Change a Thing

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Jill, a 28-year-old woman with TS. Jill discusses how she found…

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Celebrate Children’s Day with TSF!

World Children’s Day is a day to celebrate the rights and education of children. This year, in honor of Children’s Day on November 20th, the Turner Syndrome Foundation (TSF) is are offering two opportunities to celebrate your special child. Spotlight…

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