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Make a gift today to increase the capacity to improve lives of girls and women with Turner Syndrome, as well as their families and healthcare providers. Your gift today is a promise for better tomorrows. 

Health Care Provider

Communication is the cornerstone of effective care for Turner Syndrome patients and their caregivers. The Turner Syndrome Foundation has developed this site to assist allied health professionals with complex medical concepts. “In medicine we cannot always cure, but we can…

Turner Syndrome Patient Registry

Latest Articles

Recovering from Aortic Dissection Surgery

Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome. This month I would like to shed some light on the recovery process after…

Leaping for Turner Syndrome Awareness

February Awareness Month may be over, but we want to raise awareness year-round! We asked for photo submissions on Leap Day, February 29th, a bonus day of Awareness Month that only comes once every four years. Thanks for sharing your…

Volunteering to Make a Difference

As you read last week, Cassidy is a woman who volunteers with us to make a difference. She shared her story of overcoming challenges, finding support, and connecting with the community. This week, she shares why she volunteers and the…

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Positivity through the Journey

“I have always been shorter and smaller than my peers and that’s okay. I like being my own unique self! We are all beautiful, no matter what!“ Cassidy is a woman who has Turner Syndrome with a story to share….

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Move it for Millie 2020

Preparing to Move it for Millie

written by Heather Benoit- Millie’s Mom & Move it for Millie Event Director  Watch a video about Heather’s experience organizing this annual event. Overall, the impact of our event has been humbling and sincere. We have raised awareness throughout the…

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