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Make a gift today to increase the capacity to improve lives of girls and women with Turner Syndrome, as well as their families and healthcare providers. Your gift today is a promise for better tomorrows. 

Health Care Provider

Communication is the cornerstone of effective care for Turner Syndrome patients and their caregivers. The Turner Syndrome Foundation has developed this site to assist allied health professionals with complex medical concepts. “In medicine we cannot always cure, but we can…

Chromosome

Turner Syndrome Patient Registry

Latest Articles

Finding the Right Doctors for Your Daughter with Turner Syndrome

Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…

Turner syndrome research

Turner Syndrome Research: AJ’s Journey

Written by Audrey (AJ) Jones, Turner Syndrome Foundation (TSF) intern and researcher. AJ is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome (TS) and working with the TSF since 2016. After completing her Princeton University…

Turner Syndrome and Relationships: Twitter Chat

Written by Cassidy Hooper, TSF volunteer Twitter Chat Facilitator Our Twitter discussion in May was about Turner Syndrome (TS) and relationships. It was so interesting and inspiring to learn about all the personal experiences with relationships as they relate to…

Turner syndrome video campaign

Awareness Committee Video Project Increases Awareness of Turner Syndrome

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog post writer. TSF’s newest volunteer endeavor, the Awareness Committee, has started full speed ahead on its first project, a video project called The Questions Campaign. The Awareness Committee…

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occupational therapy and vision

Occupational Therapy for Visual Deficits Caused By Turner Syndrome: Free Webinar

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog writer. Occupational therapy (OT) can support many of those who have visual deficits caused by Turner Syndrome (TS) to perform daily functional tasks. Did you know that about 35%…

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legislative advocacy for Turner Syndrome

Grassroots Activism for Turner Syndrome: YOU Can Make a Difference!

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog post writer. Struggling with finding ways to make a positive impact in your community? Through grassroots activism and legislative advocacy for Turner Syndrome, we can all make a difference!…

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