Turner Syndrome Foundation
Research is a main aspect of our mission because it can improve future outcomes in many ways. Keep reading to learn about some of the reasons research is so important, and some opportunities that you can get involved in! Medical…
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Welcome!
Learn the indications of TS and understand your diagnosis!
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Turner Syndrome affects 1 in 2,000 females
She is a daughter, a sister, a friend. Women and precious babies diagnosed with Turner Syndrome require a lifetime of specialized care.
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New! Turner Syndrome Patient Handbook
Patient Handbook on Turner Syndrome
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Get Moving with Team TSF
Get moving for TS! Support our mission through fundraising & wearing Team TSF gear. You can make a difference!
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Succeed in School
Every day two or more girls with TS are born in the United States. Resources are available to help these young scholars succeed.
Make a Gift
Make a gift today to increase the capacity to improve lives of girls and women with Turner Syndrome, as well as their families and healthcare providers. Your gift today is a promise for better tomorrows.
Health Care Provider
Communication is the cornerstone of effective care for Turner Syndrome patients and their caregivers. The Turner Syndrome Foundation has developed this site to assist allied health professionals with complex medical concepts. “In medicine we cannot always cure, but we can…
Latest Articles
Participate in NIH COVID Impact Study
COVID-19 has undeniably has a profound impact on all members of society. Until this point, we haven’t been able to describe the impact on those who have Turner Syndrome specifically. Now, a study by NIH researchers will help us understand…
How to Help Your Child Overcome Their Reading Challenges
Is your child having lower test scores than the average student on topics such as reading and writing? Are they getting frustrated with or losing interest in reading with you or in class? They may have reading challenges, such as…
Defining Key Terms in Discussing Turner Syndrome
Medical information can be confusing, and defining key terms in discussing Turner Syndrome (TS) is important. In this post, we aim to provide definitions of some general medical terms and some specifically associated with TS. General Medical Terms Amniocentesis: procedure…
My Story: Living with an Autoimmune Disease and Other Medical Issues
This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Coping with TS can be challenging, but dealing with an…
Is Growth Hormone Therapy Right for Your Child?
In a recent webinar, Dr. Mary Gwyn Roper discussed Growth Hormone Therapy (GHT) in patients who have Turner Syndrome. Read below to learn some things she shared that might help you decide whether Growth Hormone Therapy (GHT) is right for…
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