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Health Care Provider

Communication is the cornerstone of effective care for Turner Syndrome patients and their caregivers. The Turner Syndrome Foundation has developed this site to assist allied health professionals with complex medical concepts. “In medicine we cannot always cure, but we can…


Cognition is a term referring to the mental processes involved in gaining knowledge and comprehension. These processes include thinking, knowing, remembering, judging and problem-solving. These are higher-level functions of the brain and encompass language, imagination, perception, and planning. Information about…

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Turner Syndrome Research eXchange PIN

TSF is proud to present TSRX!

Turner Syndrome Research eXchange Turner Syndrome Foundation is proud to announce the Turner Syndrome Research eXchange (TSRX) in collaboration with Invitae’s Patient Insights Network (PIN). TSRX is a space for permission-based sharing of your medical data to advance research and…

awareness month week 2

Turner Syndrome Awareness Month Week 2: Advocate!

It’s week two of Awareness Month and we have another great idea of how you can make a difference. Advocacy is the path to obtaining the support and services you need. As an advocacy organization, we understand that gaps exist…

awareness month week one

Turner Syndrome Awareness Month Week 1: Become a Supporter!

February is Turner Syndrome Awareness Month! Today is WEEK ONE of Turner Syndrome Awareness Month! That means you have an entire month to take action, raise awareness, and make a difference! There is major energy in the Turner Syndrome community…

Rare Disease Conference

Turner Syndrome Foundation has been invited to partake in the Inaugural Rare Disease Day at St. Joseph’s University Hospital, Paterson, NJ. on February 28th. Clinical and patient materials will be shared to the medical care providers in attendance. One patient…

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Keep the legislative campaign going!

  Our petition to send to legislators has seen great success in gaining signatures, but the momentum needs to continue in order to have the largest impact. With 568 signatures across the country we can gain attention, but we know…

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Pennsylvania legislature

Legislative Advocacy in PA

One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter,…

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