Make a Gift

Make a gift today to increase the capacity to improve lives of girls and women with Turner Syndrome, as well as their families and healthcare providers. Your gift today is a promise for better tomorrows. GIVE TODAY  

Health Care Provider

Communication is the cornerstone of effective care for Turner Syndrome patients and their caregivers. The Turner Syndrome Foundation has developed this site to assist allied health professionals with complex medical concepts. “In medicine we cannot always cure, but we can…

Turner Syndrome Patient Registry

Latest Articles

Welcome Back Advocacy Coordinator, Liz Carmines!

TSF is happy to welcome Liz Carmines back to the team as Advocacy Coordinator! In this role, Liz will be working one-on-one with YOU to connect you with an opportunity to take action and raise awareness. Liz spent the past…

Lessons Learned in Research

In celebration of the ten year anniversary of receiving her PhD, TSF Director of Research, Danielle Moore, shares the lessons and insights she’s learned as a medical and scientific researcher. Celebrating Lessons in 15 Years of Scientific and Medical Research…

butterfly pod

TS Podcast: The Butterfly Pod

Brooke Caron and her mom, Kathy, are veteran volunteers of the Turner Syndrome Foundation! They’ve been successful in raising awareness of TS, even getting Turner Syndrome Awareness Month declared in their home state of Maine. Now they’re getting creative with…

Time is Running Out! Register for the Autumn Retreat

Time is running out to register for the Autumn Retreat! Don’t miss this opportunity! A weekend all for you!  We know just how important it is for women, girls, and family members affected by Turner Syndrome to have a community…

Learn More
Turner Syndrome Research eXchange

Research Opportunities

Research is a team effort. The more people that are on the team, the more effective research can be. It is important for all women, girls, and family members affected by Turner Syndrome to contribute to clinical trials in order…

Learn More
share TS diagnosis, tina talks turners

Introducing Tina Talks Turner’s!

A video and companion book to help young girls come to terms with a diagnosis

Learn More
X