Turner Syndrome Foundation
Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…
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2020 Turner Syndrome Autumn Retreat
We hope you will join us at the 3rd Annual Autumn Retreat!
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Welcome!
Learn the indications of TS and understand your diagnosis!
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Turner Syndrome affects 1 in 2,000 females
She is a daughter, a sister, a friend. Women and precious babies diagnosed with Turner Syndrome require a lifetime of specialized care.
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New! Turner Syndrome Patient Handbook
Patient Handbook on Turner Syndrome
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2019 Annual Report
2019 Annual Report
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Get Moving with Team TSF
Get moving for TS! Support our mission through fundraising & wearing Team TSF gear. You can make a difference!
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Succeed in School
Every day two or more girls with TS are born in the United States. Resources are available to help these young scholars succeed.
Make a Gift
Make a gift today to increase the capacity to improve lives of girls and women with Turner Syndrome, as well as their families and healthcare providers. Your gift today is a promise for better tomorrows.
Health Care Provider
Communication is the cornerstone of effective care for Turner Syndrome patients and their caregivers. The Turner Syndrome Foundation has developed this site to assist allied health professionals with complex medical concepts. “In medicine we cannot always cure, but we can…
Latest Articles
Turner Syndrome Research: AJ’s Journey
Written by Audrey (AJ) Jones, Turner Syndrome Foundation (TSF) intern and researcher. AJ is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome (TS) and working with the TSF since 2016. After completing her Princeton University…
Turner Syndrome and Relationships: Twitter Chat
Written by Cassidy Hooper, TSF volunteer Twitter Chat Facilitator Our Twitter discussion in May was about Turner Syndrome (TS) and relationships. It was so interesting and inspiring to learn about all the personal experiences with relationships as they relate to…
Awareness Committee Video Project Increases Awareness of Turner Syndrome
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog post writer. TSF’s newest volunteer endeavor, the Awareness Committee, has started full speed ahead on its first project, a video project called The Questions Campaign. The Awareness Committee…
Occupational Therapy for Visual Deficits Caused By Turner Syndrome: Free Webinar
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog writer. Occupational therapy (OT) can support many of those who have visual deficits caused by Turner Syndrome (TS) to perform daily functional tasks. Did you know that about 35%…
Grassroots Activism for Turner Syndrome: YOU Can Make a Difference!
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog post writer. Struggling with finding ways to make a positive impact in your community? Through grassroots activism and legislative advocacy for Turner Syndrome, we can all make a difference!…
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