Turner Syndrome Foundation
Learn Dr. Mary Gwyn Roper’s story on how she was affected by TS, why she started working with TSF, her hopes for the future, and how you can help the TS community! A Doctor’s TS Story Dr. Roper was born…
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Welcome!
Learn the indications of TS and understand your diagnosis!
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Turner Syndrome affects 1 in 2,000 females
She is a daughter, a sister, a friend. Women and precious babies diagnosed with Turner Syndrome require a lifetime of specialized care.
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New! Turner Syndrome Patient Handbook
Patient Handbook on Turner Syndrome
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Get Moving with Team TSF
Get moving for TS! Support our mission through fundraising & wearing Team TSF gear. You can make a difference!
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Succeed in School
Every day two or more girls with TS are born in the United States. Resources are available to help these young scholars succeed.
Make a Gift
Make a gift today to increase the capacity to improve lives of girls and women with Turner Syndrome, as well as their families and healthcare providers. Your gift today is a promise for better tomorrows.
Health Care Provider
Communication is the cornerstone of effective care for Turner Syndrome patients and their caregivers. The Turner Syndrome Foundation has developed this site to assist allied health professionals with complex medical concepts. “In medicine we cannot always cure, but we can…
Latest Articles
How to Find a Turner Syndrome Specialist
Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with…
Communicating With Your Physician: Tips On Self-Advocacy
In this post, we will discuss some tips on how to communicate with your physician. Particularly, we will focus on specific ways patients and caregivers can ensure that physicians are listening to and hearing their stories for effective clinical encounters….
Thankful for Turner Syndrome
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on how she made peace with and learned to be…
My Story: I Wouldn’t Change a Thing
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Jill, a 28-year-old woman with TS. Jill discusses how she found…
Celebrate Children’s Day with TSF!
World Children’s Day is a day to celebrate the rights and education of children. This year, in honor of Children’s Day on November 20th, the Turner Syndrome Foundation (TSF) is are offering two opportunities to celebrate your special child. Spotlight…
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