Patients and caregivers of young children are urged to become part of the solution to improved quality of care outcomes for all girls and women with Turner Syndrome.
Animamos a los médicos a informar a los pacientes sobre el Registro de Pacientes con Síndrome de Turner.
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- Belong to a growing network of support
- Become a positive role model and advocate for Turner Syndrome
- Contribute to new research initiatives
- Gain helpful insights and access to information & resources
- Receive the most current information and updates
- Participating in patient centered education programs & outreach
- Be connected – Peer to peer support