Turner Syndrome FoundationArchives
A Virtual Chat for Turner Syndrome Awareness
This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….
Read MoreSupport TSF at Work
Do you know all of the ways your employer can support TSF? Learn about them here (you may even get a day off to volunteer)!
Read MoreTS Presentation at 2019 PENS Conference
Dr. B. Michelle Schweiger, pediatric endocrinologist of Cedars-Sinai Medical Center and TSF Professional Member, will be speaking at the 2019 Pediatric Endocrinology Nursing Society (PENS) Conference on April 27, 2019 in Long Beach, CA. Dr. Schweiger’s presentation, Specific Care Considerations…
Read More10 Ways to Raise Awareness after February
Awareness Month is a unique opportunity to call on legislators, the media, industry leaders, and more to pay attention and take action! But, it doesn’t mean we stop our efforts when February ends. In order to bring about real change,…
Read MoreA Gift from Above
Emily is both a mother and postpartum nurse. She helps other parents cope with a Turner Syndrome diagnosis while raising a miracle of her own. With this unique perspective, Emily understands the importance of raising Turner Syndrome awareness. On April…
Read MoreWhy You Should Support Awareness Month
Every eight hours a baby is born with Turner Syndrome and their lives are a miracle. Only 1-3% of Turner Syndrome babies survive until full-term. Those that do make it will require specialized medical care at every walk of life….
Read MoreHow Physicians Can Support Awareness Month
Doctors know the importance of preventative medicine for overall health and wellness. When it comes to Turner Syndrome, early diagnosis and preventative treatments are especially important. With a late diagnosis, treatment options like growth hormone therapy are unavailable. You can…
Read MoreMy Story: No Diagnosis Without Awareness
Catrina was diagnosed with Turner Syndrome at 20 after a chance encounter with a cashier at her college bookstore. The cashier asked her if she had Turner Syndrome. Catrina’s mother explained, “They looked at her when she was little, but…
Read MoreHost a Casual Day Fundraiser
Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…
Read MoreAwareness Month Fundraisers
Raise awareness while you shop when you support your fellow volunteers’ Awareness Month fundraisers! Pampered Chef, Swarovski Jewelry, custom cards, and more!
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