Turner Syndrome FoundationArchives
Preparing to Move it for Millie
written by Heather Benoit- Millie’s Mom & Move it for Millie Event Director Watch a video about Heather’s experience organizing this annual event. Overall, the impact of our event has been humbling and sincere. We have raised awareness throughout the…
Read MoreShow Support for Your Loved One
We have many new items in our shop that will help you show support for a loved one. When someone you care about sees you raising awareness of Turner Syndrome they will know that they are supported. 100% of proceeds…
Read MoreA Virtual Chat for Turner Syndrome Awareness
This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….
Read MoreSupport TSF at Work
Do you know all of the ways your employer can support TSF? Learn about them here (you may even get a day off to volunteer)!
Read More10 Ways to Raise Awareness after February
Awareness Month is a unique opportunity to call on legislators, the media, industry leaders, and more to pay attention and take action! But, it doesn’t mean we stop our efforts when February ends. In order to bring about real change,…
Read MoreA Gift from Above
Emily is both a mother and postpartum nurse. She helps other parents cope with a Turner Syndrome diagnosis while raising a miracle of her own. With this unique perspective, Emily understands the importance of raising Turner Syndrome awareness. On April…
Read MoreWhy You Should Support Awareness Month
Every eight hours a baby is born with Turner Syndrome and their lives are a miracle. Only 1-3% of Turner Syndrome babies survive until full-term. Those that do make it will require specialized medical care at every walk of life….
Read MoreMy Story: No Diagnosis Without Awareness
Catrina was diagnosed with Turner Syndrome at 20 after a chance encounter with a cashier at her college bookstore. The cashier asked her if she had Turner Syndrome. Catrina’s mother explained, “They looked at her when she was little, but…
Read MoreHost a Casual Day Fundraiser
Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…
Read MoreFebruary is Turner Syndrome Awareness Month
Why is Awareness Month Important? February 1 officially marks the start of Turner Syndrome Awareness Month! While it’s important to raise awareness for Turner Syndrome all year long, February is a chance to do a little more! Everyone wants to…
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