Archives


Preparing to Move it for Millie

Move it for Millie 2020

written by Heather Benoit- Millie’s Mom & Move it for Millie Event Director  Watch a video about Heather’s experience organizing this annual event. Overall, the impact of our event has been humbling and sincere. We have raised awareness throughout the…

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Show Support for Your Loved One

Shop TSF

We have many new items in our shop that will help you show support for a loved one. When someone you care about sees you raising awareness of Turner Syndrome they will know that they are supported. 100% of proceeds…

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A Virtual Chat for Turner Syndrome Awareness

This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….

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Support TSF at Work

turner syndrome foundation employee volunteer

Do you know all of the ways your employer can support TSF? Learn about them here (you may even get a day off to volunteer)!

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10 Ways to Raise Awareness after February

Awareness Month is a unique opportunity to call on legislators, the media, industry leaders, and more to pay attention and take action! But, it doesn’t mean we stop our efforts when February ends. In order to bring about real change,…

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A Gift from Above

Emily is both a mother and postpartum nurse. She helps other parents cope with a Turner Syndrome diagnosis while raising a miracle of her own. With this unique perspective, Emily understands the importance of raising Turner Syndrome awareness. On April…

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Why You Should Support Awareness Month

turner syndrome, awareness month, raise awareness

Every eight hours a baby is born with Turner Syndrome and their lives are a miracle. Only 1-3% of Turner Syndrome babies survive until full-term. Those that do make it will require specialized medical care at every walk of life….

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My Story: No Diagnosis Without Awareness

turner syndrome awareness early diagnosis

Catrina was diagnosed with Turner Syndrome at 20 after a chance encounter with a cashier at her college bookstore. The cashier asked her if she had Turner Syndrome. Catrina’s mother explained, “They looked at her when she was little, but…

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Host a Casual Day Fundraiser

jean day

Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…

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February is Turner Syndrome Awareness Month

turner syndrome awareness month

Why is Awareness Month Important? February 1 officially marks the start of Turner Syndrome Awareness Month! While it’s important to raise awareness for Turner Syndrome all year long, February is a chance to do a little more! Everyone wants to…

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