TSF Joins Network for Advancing Sex Chromosome Aneuploidy Research Readiness

Leave a Comment | Mission, Research | | ,

The Turner Syndrome Foundation is proud to announce its involvement in the Network for Advancing Sex Chromosome Aneuploidy Research Readiness (NASCARR), a newly funded initiative through the Rare Diseases Clinical Research Network (RDCRN). This partnership represents an important step forward in advancing research, collaboration, and long-term progress for individuals with Turner syndrome and the broader […]

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Star Sisters: A Hub for the Turner Syndrome Community

Leave a Comment | Community/Events, Essentials, Get Involved | | , ,

Star Sisters is a private online community hosted by the Turner Syndrome Foundation for adult women with Turner syndrome (TS) and caregivers of a child with TS. What’s Included in Star Sisters? Star Sisters maintains a private Facebook group for members to share their stories, share updates about their journey, ask for advice, and receive

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YOU Can Be a Voice for Turner Syndrome: Join Our Advocacy Committee

Leave a Comment | Education & Communicating TS, Get Involved, Mission | | , ,

The TSF Legislative Advocacy Committee is a volunteer group that works together to advocate for Turner syndrome on a local, state, and national level in the U.S. Anyone can get involved in this effort! Keep reading to learn what legislative advocacy is, why it’s important, what the Committee’s projects entail, how to get involved with

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Shaping Better School Experiences for Students with Turner Syndrome

Leave a Comment | Education & Communicating TS, Get Involved | | , ,

Education plays a critical role in the lives of individuals with Turner syndrome (TS), but too often, families and educators are left navigating challenges without the right tools, awareness, or support. Why the Education Working Group? For many individuals with Turner syndrome, medical care is only one part of the story. Academic and social experiences

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Turner Syndrome Awareness Month 2026: A Community United for Awareness

Leave a Comment | Awareness, Get Involved, Mission | | ,

February is a special time for the Turner syndrome community. Each year during Turner Syndrome Awareness Month (TSAM), families, advocates, and supporters come together to share stories, educate others, and raise awareness about Turner syndrome. This year, the response from our community was truly inspiring. From classrooms and coffee shops to social media and fundraising

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Introducing Mike McDowell: TSF Board Member

1 Comment | Personal Stories | | ,

One of the many struggles women with Turner syndrome and their families can face is a lack of understanding of the condition. This can include their own lack of understanding, or in more common cases, a lack of understanding by medical professionals, teachers, and the general public. Many get involved with the Turner Syndrome Foundation

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Small Actions, Big Impact: Turner Syndrome Awareness Month 2026

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Every February, we come together to recognize Turner Syndrome Awareness Month (TSAM). This is a time to uplift Turner syndrome voices and educate the world about Turner syndrome. The conversations we start, the stories we share, and the actions we take during Awareness Month create ripple effects that last all year long by reaching communities

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Research Opportunity: TS & Social Skills –

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Research is critical to advancing the understanding of Turner syndrome, and successful research requires participation from those living with the condition. In this blog, learn about a new research study you can participate in to help a Doctoral candidate and woman with TS generate more knowledge about social skills in Turner syndrome. About the Researcher

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Why I Give: Standing With the Turner Syndrome Community

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There are so many reasons individuals choose to give to the Turner Syndrome Foundation, but at the heart of it, it always comes back to the same truth: No one living with Turner syndrome should ever feel invisible, unheard, or alone. Yet for so many girls, women, and families affected by Turner syndrome (TS), that

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