What Are School Accommodations? School accommodations are designed to help students with different learning needs succeed in the classroom. It is important that both parents and teachers do their best to help support and advocate for students with Turner syndrome. This can look like making sure all proper paperwork is in place, going to all […]
Five School Accommodations to Support Students with Turner Syndrome Read More
Girls and women with Turner Syndrome (TS) face unique cognitive, emotional, and educational challenges that are often underrecognized, yet highly addressable with the right support. In the Turner Syndrome Foundation webinar: Psychosocial & Educational Considerations for Turner Syndrome, Mackenzie Norman, PhD., walked families, educators, and providers through the latest research and real-world strategies for improving
FAQ: Psychosocial Considerations for Turner Syndrome Read More
When it comes to supporting girls with Turner Syndrome (TS), we often think of care in two separate worlds: the medical clinic and the classroom. However, when these spheres work in isolation, important needs often go unmet. Girls with Turner Syndrome often present quietly. They may not act out or fall behind academically, but internally,
Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome Read More
Turner Syndrome (TS) is often discussed in terms of medical needs and physical development, but there are invisible areas of difference that can be just as impactful, one of them being social development. For example, TS patient Sydney, “TS has been more of a mental, social battle mostly. From the different doctors appointments to the
Social Skills Development in Turner Syndrome Read More
How Educators and Families Can Support Strengths and Challenges in Learning Turner syndrome (TS) is a chromosomal condition affecting about 1 in 2,000 females, and while the physical characteristics may be obvious, it is lesser known that the condition also affects learning and cognition. Understanding the learning strengths and challenges associated with TS is essential
Understanding the Cognitive Profile of Girls with Turner Syndrome Read More
Why Reading about Turner Syndrome is Important “As someone who was an avid reader throughout school and trying to get back into the groove of regular reading despite the increased demands of everyday life, I will never get tired of listing the improvements reading can have to someone,” says Brooke Caron, a woman with Turner
6 Books about Turner Syndrome Read More
Many adult women with Turner syndrome (TS) are not getting the ongoing medical care they require. This often begins during the transition from pediatric to adult care, when support tends to drop off. Too few transition programs or clinics are in place to guide this transition, and as a result, many women stop treatment altogether.
The Hidden Healthcare Gap: Why Adult Women with Turner Syndrome Are Being Left Behind Read More
The 2025 Petition for Turner Syndrome and Why it Matters We’re thrilled to see that nearly 200 people have signed the Turner Syndrome Foundation’s Petition for Patient Care so far in 2025! While the majority of the signatures came from within the United States, we’re excited that we also had support from Cameroon, Canada, and
The Importance of Turner Syndrome Advocacy Read More
There are many ways to get involved in awareness and work within the Turner syndrome (TS) community. Legislative advocacy is a very important part of that work, as it allows us to communicate directly with our federal, state, and local representatives who have the ability to officially proclaim awareness for TS. National awareness for
Powerfully Impacting the TS Community: Legislative Advocacy Read More
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