Star Sisters is a private online community hosted by the Turner Syndrome Foundation for adult women with Turner syndrome (TS) and caregivers of a child with TS. What’s Included in Star Sisters? Star Sisters maintains a private Facebook group for members to share their stories, share updates about their journey, ask for advice, and receive […]
Star Sisters: A Hub for the Turner Syndrome Community Read More
The TSF Legislative Advocacy Committee is a volunteer group that works together to advocate for Turner syndrome on a local, state, and national level in the U.S. Anyone can get involved in this effort! Keep reading to learn what legislative advocacy is, why it’s important, what the Committee’s projects entail, how to get involved with
YOU Can Be a Voice for Turner Syndrome: Join Our Advocacy Committee Read More
Education plays a critical role in the lives of individuals with Turner syndrome (TS), but too often, families and educators are left navigating challenges without the right tools, awareness, or support. Why the Education Working Group? For many individuals with Turner syndrome, medical care is only one part of the story. Academic and social experiences
Shaping Better School Experiences for Students with Turner Syndrome Read More
Every February, we come together to recognize Turner Syndrome Awareness Month (TSAM). This is a time to uplift Turner syndrome voices and educate the world about Turner syndrome. The conversations we start, the stories we share, and the actions we take during Awareness Month create ripple effects that last all year long by reaching communities
Small Actions, Big Impact: Turner Syndrome Awareness Month 2026 Read More
Join the Fairbanks and Tampa Bay Rays on June 7th for Strikeouts for Turner Syndrome: A Community Day of Hope and Awareness For the second year in a row, Pete Fairbanks, pitcher for the Tampa Bay Rays, and his wife Lydia are inviting you to be part of something far greater than a scorecard. For
Pitching for a Purpose: Join Fairbanks Strikeouts for Turner Syndrome Read More
Do you love to read? Are you always looking for your next great book, or maybe searching for a reason to finally start that TBR pile? This summer, you can turn pages and make a difference with the Turn a Page for Turner Syndrome Summer Read-A-Thon! From June to August 2025, readers from all over
Turn a Page for Turner Syndrome: A Summer Read-A-Thon with Purpose Read More
The 2025 Petition for Turner Syndrome and Why it Matters We’re thrilled to see that nearly 200 people have signed the Turner Syndrome Foundation’s Petition for Patient Care so far in 2025! While the majority of the signatures came from within the United States, we’re excited that we also had support from Cameroon, Canada, and
The Importance of Turner Syndrome Advocacy Read More
Subscribe to our blog Throughout February, we proudly celebrated Turner Syndrome Awareness Month, honoring the incredible women and girls who show strength, resilience, and determination every day. While the official awareness month may be coming to an end, our commitment to raising awareness must continue all year long. By keeping the conversation going, we can
After Awareness Month the Beat Goes On Read More
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