Give the Gift of Camp

turner syndrome camp

What holiday gift are you thinking to get for your loved one this year? A new sweater? Another toy? Why not give her what she really wants! Friendship, community, personal growth, and new adventures!

Think outside of the gift box with a weekend at the Turner Syndrome Autumn Retreat! The Autumn Retreat features educational opportunities, outdoor activities like an adventure course, and best of all – the chance to connect with like-minded individuals. The Retreat is exclusive to women, girls, and family members affected by Turner Syndrome, creating a welcoming and familiar environment.

The Autumn Retreat is the perfect gift! Whether she’s looking to connect with others or just wants a weekend away, she’ll find it at the Retreat! Purchase now and you’ll even save 15% off your order! Use the code BELLS2018 at checkout before December 31 at midnight!

Give a gift that will last even when the holidays are over. Imagine the look on her face when she realizes the incredible gift you’ve given her. No more toys forgotten on the floor or unwanted gifts taking up room in the closet. Surprise her with this unique and meaningful gift – no wrapping paper required!

Family members are invited and encouraged to attend as well! Remember, book now to save with code BELLS2018!

Event Details
Autumn Retreat
September 20-22, 2019
YMCA Camp Ockanickon, Medford, NJ

Double Your Donation with a Matching Gift

matching gift

Countless companies across America are celebrating their employees’ support of nonprofit organizations by offering a matching gift. Most programs will match your donation dollar for dollar, allowing you to double or even triple the value of your donation! Matching your gift is basically a no-cost donation for you!

To see if your employer has a matching gift program, speak to your Human Resources department. If they do have a program, get a form from your employer and submit it to TSF at:

Turner Syndrome Foundation
P.O. Box 726, Holmdel, NJ 07733

Other Ways to Support TSF Through Workplace Giving

Payroll Deductions
You can have your company deduct a small amount of your paycheck each pay period for a year. This is the perfect way to make a large donation and pay for it in small, easy to digest installments. Payroll deductions also make it easy for you to track your charitable contributions when you need it for tax purposes.

Volunteer Programs
Employee volunteer programs reward employees who take time to give back to a charity of their choice. For example, your employer may offer a $100 donation for every 10 hours you volunteer with a nonprofit organization. Some companies will even reward groups of employees who organize for nonprofit projects. Speak to your company’s Human Resources department to see if a volunteer program is available to you and in what form – many programs vary from company to company.

Speak to your employer about the options you have to give back and instantly double your impact today!

Donor Frequently Asked Questions

In the final months of the year, many charitable organizations begin reaching out for support to help power them through the coming year. Did you know there are more than 1.5 million nonprofit organizations registered in the United States? However, 54% of donors give to the same 20 organizations! We’re sharing some information below to show you why the Turner Syndrome Foundation is a good fit for you this year!

What is TSF’s mission?

The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care of those affected by Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan may lead to a brighter and healthier future for all young girls and women with Turner syndrome.

How do you fulfill your mission?

Each year, TSF partners with physicians, legislators, industry leaders and more to raise a greater awareness through education, research, and advocacy – all while providing one-on-one support to patients on demand.

How will you use my donation?

We currently have exciting projects in the works! For example, the Turner Syndrome Council on Cardiology commissioned by TSF is developing materials to educate physicians on cardiovascular health in Turner Syndrome care. Did you know more than 50% of TS women will have a heart defect, putting them at a great risk of early mortality? Your support will help change this.

What makes TSF unique?

We never charge anyone to access the wealth of information on our website. We believe these life-changing resources should be available to those who need it, when they need it. Other organizations can’t say that.

Where can I learn more?

You can learn more about TSF by visiting the About Us section of our website. You can also visit our GuideStar and GreatNonprofits pages to hear testimonies and learn more about our specific programs.

YOU Make the Cause!

Thanksgiving Greetings

Two simple words deserve repeating. Thank you! Thank you to all who give generously of themselves to empower the enduring mission of the Turner Syndrome Foundation. You are the selfless heroes who go above and beyond personal responsibilities to give back and make a difference in the lives of others. You make this mission a reality.

You support this cause meaningfully because you care. Gifts of support in all amounts contribute greatly. Whether you are a one-time donor, an annual donor or a major donor, equally you sacrifice to support this cause. Thank you. We are stronger with you. 

You, our volunteers, interns and staff are the engine of this mission. You develop and execute programs with core values to improve and save lives. Thank you. Your talent shapes the future of TS. 

Educators, clinicians and researchers dedicated to a greater understanding of Turner Syndrome enlighten the world and bring hope to the future of TS. It is because of you that we see progression in education and research initiatives. Thank you. Your contribution to these initiatives advance this cause.

We here at the Turner Syndrome Foundation are thankful for your kindness and generosity! With your support we lesson the suffering of people. Together, we thoughtfully tackle issues that would otherwise be ignored. Thank you. You are a gift to this cause. You make this mission thrive!

We invite you to view the Annual Report to learn more about the power and promise of this mission. Thank you. You help the people we serve. 

Autumn is a beautiful time of the year. During this season of reflection, we join together in thanks and gratitude for traditions that shape our lives. For those who seek comfort during this time of the year, we hold you close in our thoughts and send an embrace of support. Peace and blessings to all on this Thanksgiving.

Truly yours,

Laura Fasciano, Director & Founding President

Throw a “Spirit-of-Giving” Holiday Party

The holidays are a time when friends, family, coworkers, and more get together to celebrate! There are many reasons to host a holiday party – ugly sweater parties, Secret Santa soirees, and year-end office gatherings to name a few. You can turn any of your usual get-togethers into a Spirit-of-Giving holiday party just by adding a giving back component!

A giving back theme can liven up your usual party or start a new tradition in your neighborhood that your community will appreciate for years to come! Your party doesn’t need to be a fundraising gala or expensive rendezvous – unless you prefer that, of course! A Spirit-of-Giving party isn’t about the decorations; it’s about offering a chance for your guests to do good!

There are a few ways your holiday party can give back to TSF!

  1. Charge “admission” to your gathering by requesting a fixed amount
  2. Request on the invitation that guests make a donation
  3. Provide a space for guests to leave their holiday “gifts” in the form of a donation

Fun Ways to Encourage Your Guests to Give:

  1. Tell your story at the party, showing guests why this cause is so important to you
  2. Raffle off exciting items
  3. Give a special prize to the highest donor
  4. Share the amount you raised at the end of the party and celebrate it!

Giving back can be just as fun and festive as your usual party – and make it that much more special! So gather your community, support an important cause, and go into the New Year feeling amazing! Get started by completing the interest form below. 

 

 

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November is Caregivers Month

November is National Family Caregivers Month!

An entire month to celebrate the contribution of more than 44 million Americans who volunteer to care for a family member, friend, or loved one.  While caregivers can sometimes be overlooked, it’s important to show them just how appreciated they are. Join us in recognizing these amazing caregivers throughout November and beyond!

This year’s theme is “Supercharge Your Caregiving” – because even superheroes need tools! We’re sharing some tools below to help you manage it all and celebrate, too!

Caregiving Tools
  1. Share your story! Is there someone special in your life who offers you care and support? Are you proud to care for someone? Let us know!
  2. Find tons of resources on the TSF website, like care guidelines, inspiring stories, and more!
  3. Get some help with insurance assistance programs.
  4. Visit the TSF Map to find your state’s Facebook page. Like and follow to connect with other caregivers in your area.

Thank you to everyone caring for a loved one with Turner Syndrome! We appreciate everything you do!

As a special thank you, you’ll be the first to see the 2018 TSF Annual Report! The Report shares everything we’ve been up to this year with your support! Want to get on the list to see it first once it’s released? Complete this brief form and we’ll send it right to your inbox!

2019 Turner Syndrome Retreat – Reserve your spot!

2019 turner syndrome retreat

We are excited to announce that we are hosting a Turner Syndrome Autumn Retreat again for you this September! We know how important it is to form lasting connections, especially with people who understand your story. This is the perfect opportunity to do just that!

 LIMITED OFFER! Use discount code BELLS2018 at registration checkout, now through 1/1/19 12:01AM, to save 15% from your order. Offer does not include 5K registrations. 

What makes the Autumn Retreat special?

This is the first event of its kind – a chance for women & girls with TS and family members to come together, have fun, learn, and unwind surrounded by nature. The Retreat specializes in your needs, offering not just memories to last a lifetime, but skills and knowledge to help you manage your life with Turner Syndrome. The Retreat will provide a laid-back summer camp vibe, making sure everyone is comfortable to be themselves.

Who should attend?

Are you affected by Turner Syndrome? Then this weekend is for you! Women & girls with TS, parents, and family members are invited and encouraged to join us!

Read some reviews from last year’s Retreat weekend!

“Words cant adequately describe what an honor it was having the opportunity to be apart of such an amazing weekend. Even with the rain on Sunday the retreat weekend couldn’t have been more of a blast. I thoroughly enjoyed spending quality time with you and such a wonderful group of people. It really shows the impact that the incredible foundation you founded has on others. My head is still spinning after a life changing weekend.”

“I did walk away exchanging emails with a few other moms.  Great job serving the needs of others!  And thank you for the love that you put into it ;)” 

“[We] had a great time. We enjoyed the new friends we made and the scheduled activities.”

Andrea Levey

Levey, Andrea Eden

In loving memory of Andrea Eden Levey

Memorial Donations

 

Camping, Climbing, & Connecting: 2018 Turner Syndrome Retreat

“Words can’t adequately describe what an honor it was having the opportunity to be a part of such an amazing weekend.”

Friday night’s games, dinner, and campfire gave everyone a chance to get to know one another – setting the tone for a weekend full of connections and new friendships. On Saturday, the day started with a nature hike around the grounds of Camp Ockanickon. With perfect fall weather, this activity was a great way to stretch our legs before a morning of presentations. Special guests joined us to speak on topics like nutrition, bullying, research, and financial literacy. After lunch we headed back outside for games and a chance to climb the camp’s rock wall! Good job to the superstars who challenged themselves to give it a try! Finally, on Sunday we started the day with yoga and ended with the Team TSF Lake Walk. The weather didn’t hold out for us on Sunday, so those who wanted to stay dry inside enjoyed a rain party. The weather couldn’t stop everyone though – a few brave souls completed the 5K!

The scheduled activities made sure everyone had something to enjoy. However, the part we are most proud of and the real reason for hosting this event was to provide a space for women, girls, and family members to connect, laugh, and share their stories. We are so thrilled by the friendships we saw blossoming, the experienced advice we saw being offered, and the contact information being exchanged by the end of the weekend! We are sure this is not the last time many of these ladies will be seeing each other!

A special thank you to our sponsors Novo Nordisk, Pfizer, Genentech, and Manasquan Bank for supporting this event. Also to Wawa, Goddess Garden Organics, and Simply Soothing for providing supplies. And finally to Sarah Barnes of the Children’s Hospital of Pennsylvania, Gina Soares of Investor’s Bank, Ellen McSpadden of Cheerful Chatter, and Julia Keklak of The Coriell Institute for volunteering your time to share your knowledge.

“My head is still spinning after a life-changing weekend, and I am so looking forward to having the opportunity to get even more involved with the Foundation.” 

Support TSF to give more girls and women the opportunity to attend life-changing events like this one in the future!

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