Behind every resource shared, every family supported, and every awareness campaign launched at the Turner Syndrome Foundation (TSF), there is one constant force making it all possible: our volunteers. In 2025, volunteers continued to power TSF in countless ways, often behind the scenes, always with heart. Their time, skills, and lived experience help ensure that […]
The Heart of TSF: Celebrating Volunteer Impact in 2025 Read More
There are so many reasons individuals choose to give to the Turner Syndrome Foundation, but at the heart of it, it always comes back to the same truth: No one living with Turner syndrome should ever feel invisible, unheard, or alone. Yet for so many girls, women, and families affected by Turner syndrome (TS), that
Why I Give: Standing With the Turner Syndrome Community Read More
Girls and women with Turner Syndrome (TS) face unique cognitive, emotional, and educational challenges that are often underrecognized, yet highly addressable with the right support. In the Turner Syndrome Foundation webinar: Psychosocial & Educational Considerations for Turner Syndrome, Mackenzie Norman, PhD., walked families, educators, and providers through the latest research and real-world strategies for improving
FAQ: Psychosocial Considerations for Turner Syndrome Read More
When it comes to supporting girls with Turner Syndrome (TS), we often think of care in two separate worlds: the medical clinic and the classroom. However, when these spheres work in isolation, important needs often go unmet. Girls with Turner Syndrome often present quietly. They may not act out or fall behind academically, but internally,
Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome Read More
Turner Syndrome (TS) is often discussed in terms of medical needs and physical development, but there are invisible areas of difference that can be just as impactful, one of them being social development. For example, TS patient Sydney, “TS has been more of a mental, social battle mostly. From the different doctors appointments to the
Social Skills Development in Turner Syndrome Read More
The 2025 Strikeouts for Turner Syndrome campaign was a powerful reminder of what community, advocacy, and compassion can achieve together. This initiative—born from the hearts of Pete and Lydia Fairbanks in loving memory of their daughter, Ellis—was a heartfelt call to action to raise awareness, spark conversations, and ensure that no family facing Turner syndrome
Together for Turner Syndrome: Strikeouts for Turner Syndrome 2025 Read More
How Educators and Families Can Support Strengths and Challenges in Learning Turner syndrome (TS) is a chromosomal condition affecting about 1 in 2,000 females, and while the physical characteristics may be obvious, it is lesser known that the condition also affects learning and cognition. Understanding the learning strengths and challenges associated with TS is essential
Understanding the Cognitive Profile of Girls with Turner Syndrome Read More
Why Reading about Turner Syndrome is Important “As someone who was an avid reader throughout school and trying to get back into the groove of regular reading despite the increased demands of everyday life, I will never get tired of listing the improvements reading can have to someone,” says Brooke Caron, a woman with Turner
6 Books about Turner Syndrome Read More
Many adult women with Turner syndrome (TS) are not getting the ongoing medical care they require. This often begins during the transition from pediatric to adult care, when support tends to drop off. Too few transition programs or clinics are in place to guide this transition, and as a result, many women stop treatment altogether.
The Hidden Healthcare Gap: Why Adult Women with Turner Syndrome Are Being Left Behind Read More
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