The Role of Rehabilitation Counselors for the Deaf & Hard-Of-Hearing

Leave a Comment | Patient Health & Life | | ,

The information presented in this blog comes from the webinar, Hearing Loss Rehabilitation & Counseling. Rehabilitation counselors play a vital role in supporting Deaf and hard-of-hearing individuals as they navigate personal, educational, social, and professional challenges. These professionals may support individuals through counseling, supporting them in accessing resources, and more. In this blog, you will […]

The Role of Rehabilitation Counselors for the Deaf & Hard-Of-Hearing Read More

“You Have to Be Loud”: Voices from the Turner Syndrome Community

Leave a Comment | Patient Health & Life, Personal Stories | | ,

In honor of Turner Syndrome Awareness Month 2026, the Turner Syndrome Foundation hosted a Patient and Parent Panel event to raise awareness and build community. This event brought together three panelists: two women living with Turner syndrome and one mom to a daughter with Turner syndrome, in addition to the facilitator, a woman with Turner

“You Have to Be Loud”: Voices from the Turner Syndrome Community Read More

The Kinds of Support All TS Women Need

Leave a Comment | Patient Health & Life | |

Living with Turner syndrome (TS) often means navigating healthcare, education, relationships, and life transitions with unique considerations. Building a strong Turner syndrome support system can make a meaningful difference in emotional well-being, confidence, and long-term health. While many women with TS become strong self-advocates, knowing what kind of support to ask for is not always

The Kinds of Support All TS Women Need Read More

Advice for Girls with Turner Syndrome on Going to College

Leave a Comment | Patient Health & Life | | ,

The transition to college from high school can be daunting for any 18 year old, or even anyone going back to school, especially when it can sometimes mean relocating away from your familiar support system. For those with conditions like Turner syndrome, there may be additional challenges to consider that the average student might not

Advice for Girls with Turner Syndrome on Going to College Read More

FAQ: Hearing Loss in Turner Syndrome

Leave a Comment | Patient Health & Life | | ,

Individuals with Turner syndrome (TS) are more prone to hearing loss due to both structural and inner ear issues. In childhood, differences in skull and throat structure can lead to frequent middle ear infections (otitis media), causing conductive hearing loss. As they age, many develop sensorineural hearing loss due to inner ear or auditory nerve

FAQ: Hearing Loss in Turner Syndrome Read More

 Why Genetic Counseling Matters in Turner Syndrome

Leave a Comment | Patient Health & Life | | ,

Turner syndrome (TS) is a condition that occurs in about 1 in every 2,000 live female births. TS is random and is characterized by a missing or partially missing X chromosome. TS symptoms are a spectrum and can look very different from person to person. Some may have short stature or delayed puberty, while others

 Why Genetic Counseling Matters in Turner Syndrome Read More

Psychosocial Considerations for Turner Syndrome

FAQ: Psychosocial Considerations for Turner Syndrome

1 Comment | Advocacy, Education & Communicating TS | | ,

Girls and women with Turner Syndrome (TS) face unique cognitive, emotional, and educational challenges that are often underrecognized, yet highly addressable with the right support. In the Turner Syndrome Foundation webinar: Psychosocial & Educational Considerations for Turner Syndrome, Mackenzie Norman, PhD., walked families, educators, and providers through the latest research and real-world strategies for improving

FAQ: Psychosocial Considerations for Turner Syndrome Read More

Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome

Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome

Leave a Comment | Advocacy, Education & Communicating TS | | ,

When it comes to supporting girls with Turner Syndrome (TS), we often think of care in two separate worlds: the medical clinic and the classroom. However, when these spheres work in isolation, important needs often go unmet. Girls with Turner Syndrome often present quietly. They may not act out or fall behind academically, but internally,

Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome Read More

Social Skills Development in Turner Syndrome

Social Skills Development in Turner Syndrome

2 Comments | Advocacy, Education & Communicating TS | | , ,

Turner Syndrome (TS) is often discussed in terms of medical needs and physical development, but there are invisible areas of difference that can be just as impactful, one of them being social development. For example, TS patient Sydney, “TS has been more of a mental, social battle mostly. From the different doctors appointments to the

Social Skills Development in Turner Syndrome Read More