Researching Social Skills and Turner Syndrome: Findings from a Virtual Training Study

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My name is McKenna Fleming. I am 22 years old, and I was diagnosed with Turner syndrome in 2019. I am currently in a Doctorate program to become an occupational therapist. I have been so fortunate to partner with the Turner Syndrome Foundation to conduct my capstone project research study on the lived experiences of […]

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The Role of Rehabilitation Counselors for the Deaf & Hard-Of-Hearing

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The information presented in this blog comes from the webinar, Hearing Loss Rehabilitation & Counseling. Rehabilitation counselors play a vital role in supporting Deaf and hard-of-hearing individuals as they navigate personal, educational, social, and professional challenges. These professionals may support individuals through counseling, supporting them in accessing resources, and more. In this blog, you will

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“You Have to Be Loud”: Voices from the Turner Syndrome Community

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In honor of Turner Syndrome Awareness Month 2026, the Turner Syndrome Foundation hosted a Patient and Parent Panel event to raise awareness and build community. This event brought together three panelists: two women living with Turner syndrome and one mom to a daughter with Turner syndrome, in addition to the facilitator, a woman with Turner

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The Kinds of Support All TS Women Need

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Living with Turner syndrome (TS) often means navigating healthcare, education, relationships, and life transitions with unique considerations. Building a strong Turner syndrome support system can make a meaningful difference in emotional well-being, confidence, and long-term health. While many women with TS become strong self-advocates, knowing what kind of support to ask for is not always

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Advice for Girls with Turner Syndrome on Going to College

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The transition to college from high school can be daunting for any 18 year old, or even anyone going back to school, especially when it can sometimes mean relocating away from your familiar support system. For those with conditions like Turner syndrome, there may be additional challenges to consider that the average student might not

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FAQ: Hearing Loss in Turner Syndrome

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Individuals with Turner syndrome (TS) are more prone to hearing loss due to both structural and inner ear issues. In childhood, differences in skull and throat structure can lead to frequent middle ear infections (otitis media), causing conductive hearing loss. As they age, many develop sensorineural hearing loss due to inner ear or auditory nerve

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 Why Genetic Counseling Matters in Turner Syndrome

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Turner syndrome (TS) is a condition that occurs in about 1 in every 2,000 live female births. TS is random and is characterized by a missing or partially missing X chromosome. TS symptoms are a spectrum and can look very different from person to person. Some may have short stature or delayed puberty, while others

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Psychosocial Considerations for Turner Syndrome

FAQ: Psychosocial Considerations for Turner Syndrome

1 Comment | Advocacy, Education & Communicating TS | | ,

Girls and women with Turner Syndrome (TS) face unique cognitive, emotional, and educational challenges that are often underrecognized, yet highly addressable with the right support. In the Turner Syndrome Foundation webinar: Psychosocial & Educational Considerations for Turner Syndrome, Mackenzie Norman, PhD., walked families, educators, and providers through the latest research and real-world strategies for improving

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Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome

Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome

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When it comes to supporting girls with Turner Syndrome (TS), we often think of care in two separate worlds: the medical clinic and the classroom. However, when these spheres work in isolation, important needs often go unmet. Girls with Turner Syndrome often present quietly. They may not act out or fall behind academically, but internally,

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