Personal Stories

Articles with personal stories of women with TS.

My Story is Not Meant to be Inspirational

Subscribe to our blog Turner syndrome can be difficult. Learn about Aleah’s challenges with ear infections, making friends, and learning with NVLD. My story is not meant to be inspirational; it’s meant to help girls with Turner syndrome feel less alone. Aleah Hi, my name is Aleah. I’m a 19-year-old girl with Turner Syndrome. I […]

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Overcoming The Mental Mind Game

   The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers impacted by Turner syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community. These serve the purpose of educating those who are unfamiliar with these types of

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Equity in Healthcare: How It Impacts Women with TS

Note: This post contains sensitive information about reproductive health that may not be appropriate for younger audiences. Everyone’s journey with TS is different. Please consult with your health care provider(s) for guidance regarding your unique health issues and appropriate treatments. TSF does not take a stance on medical treatments or provide medical advice. When seeking

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My Story/Voices of Infertility: My Little Miracle Man

Subscribe to our blog The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community. For many women with Turner Syndrome (TS), infertility is a devastating part

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TSF Celebrates National Disability Awareness Month

Subscribe to our blog March is National Disability Awareness Month. It is a time to celebrate the contributions of those with disabilities, including people who also have chronic conditions like Turner syndrome (TS). While TS is not in itself a disability, some individuals with the condition can also have physical or cognitive disabilities. The Turner

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My Story: From Pregnancy Loss to Cast-iron Endurance

Subscribe to our blog The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community. This month, we share the story of a woman who learned

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Turner Syndrome Care Around the World

Subscribe to our blog Throughout the years, the amount of available resources, treatments and educational material about Turner syndrome (TS) has steadily increased. TS is gaining much more attention in the medical field, with new research and more recognition around the world than in the past. The international medical community is finally beginning to grasp

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My Story: Grateful for My Early Diagnosis

Subscribe to our blog The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers impacted by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community. This month, we share the story of Alyssa, a woman who

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My Story: Turner Syndrome and Gonadoblastoma

The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community. Since September is Ovarian Cancer Awareness Month, we share the story of Renee, who had

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