Parent

Articles of interest to parents of a child with TS or future parents of TS.

My Story/Voices of Infertility: My Little Miracle Man

Subscribe to our blog The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community. For many women with Turner Syndrome (TS), infertility is a devastating part […]

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What School Psychologists Need to Know About Students with Turner Syndrome

Subscribe to our blog Students with Turner syndrome (TS) often have special needs in the classroom. Some experience nonverbal learning disorder (NVLD), social anxiety, or other challenges. School psychologists are in a unique position to nurture these students’ strengths and support them in their challenges. Below is a review of an article from the National

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Girl at doctor

Sharing a Turner Syndrome Diagnosis with Your Child at Different Stages

Subscribe to our blog Many parents struggle with sharing a Turner Syndrome (TS) diagnosis with their child. When is it appropriate? How do I share it? How much do I share? It is a difficult decision, but there are benefits to sharing the diagnosis and educating the child about their condition. It increases knowledge, self-advocacy,

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Turner Syndrome and the Importance of Newborn Screening

Subscribe to our blog Medical advancements in newborn screening have improved the early diagnosis and treatment of chronic diseases, including Turner syndrome (TS). This screening is efficient, cost-effective, and although not frequently talked about, includes routine tests that take place prenatally or immediately after birth. Since September is Newborn Screening Awareness Month, we will take

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A Guide to Common Challenges of Elementary Schoolers with Turner Syndrome

Subscribe to our blog School can be difficult for many students, but especially if they have a chronic condition. This article will address the common challenges of elementary schoolers with Turner Syndrome (TS) and how to help them overcome them.. Disclaimers: Caretakers, this article is not meant to be a replacement for medically based educational

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How To Communicate Effectively

Subscribe to our blog The importance of communication has increased during the pandemic, The Turner Syndrome Foundation (TSF) presents this article to discuss effective communication and the barriers to it, communication in different situations, communication for social change (like TS awareness!), and resources to enhance your communication skills.  Paradigm Shift with Communication During the Pandemic

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How To Open a Conversation About Turner Syndrome Diagnosis

Subscribe to our blog One of the most challenging aspects of Turner Syndrome (TS) is knowing when and how to approach the TS diagnosis conversation. Whether you are a parent/caregiver or patient, read on to learn more about when and how to have this important conversation. The Importance of Approaching the TS Diagnosis Conversation We

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Stress Free Health Care

The Importance of Stress Free Health Care Did you remember to take your medicine today? Did you attend your doctor’s appointment? Maintaining good health practices is a frequent topic of discussion in society. From talking about certain diets such as Veganism, to exercising, all of these health practices require a sense of responsibility and discipline

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