There are many opportunities for you to take part of the mission. First, ask yourself or your group, how committed are you to the cause? What will you bring to the mission by way of resources or influence? How much time will you give freely as a volunteer? These questions will help determine what you choose to do. Next, take a look at some of the opportunities listed below, and apply! Once you apply you will be invited to join a meeting.
We are more successful as an advocacy organization when individuals and groups stand with the cause and take action to give back in a meaningful way. If you have any questions, please email info@tsfusa.org. Happy trails!
REPRESENT
Be a spokesperson for Turner syndrome awareness. By representing the cause, the spokesperson(s) need not have TS, but should be passionate and represent the cause to create interest, improve the understanding of TS and influence greater support for TS.
NETWORK
Business to business influencer(s) network within their communities to create mutually beneficial partnerships that are amenable to the support Turner Syndrome.
BRAND + PURPOSE = GOOD WILL
We’re excited to partner with businesses that align with core values of this mission.
SERVE
Medical, legal and professionals are sought to lead as an advisor or on committee. Committees include: Development, Research, Education, Health, Advocacy
MEDICAL PROFESSIONAL APPLICATION
EXPAND CARE
Expand the network of allied health professionals dedicated to the care of TS by sharing information about the benefits of Professional Membership.
AWARENESS AMBASSADOR
Share information in your network and community: individuals, groups, agencies and health care professionals, educators and legislators with branded materials to disseminate.
WE LEARN WEBINARS
Expert speakers in their field are invited to submit a proposal to make a presentation as part of the WE Learn webinar series.
WE Learn Presenter Proposal
HOST AN EVENT
Bring people together to support the mission! Porch party, indoors/outdoors, club or team. Get your people together to talk & support TS!
Host Event
PITCH A STORY
Have an idea or story to share that you believe will improve the understanding of TS and move the mission forward? We want to hear from you. Pitch a Story
START A CLUB
Organize a club supporting Turner Syndrome.
VIDEO EDITOR
Edit video content into smaller sound bites. Take photos to make short films. Work with various group on assignment, as needed.
RESEARCH | WRITER | EDITOR
Research medical topics, read white papers and write consumer based articles for the Turner Syndrome Foundation’s blog.
JOURNALIST
Interview and write human interest and community featured articles to expand the understanding and support of this cause.
GRAPHICS DESIGNER
Professionally design cause brand collaterals and resources, booklets, pamphlets, flyers, and posters for print and digital media.
BUSINESS ANALYST
Evaluate data to provide greater insight to the issues, solutions and impact of the mission, its people and purpose.
DATA MINING
Research project carefully enter data on templated information spreadsheets.
Event Type:
All
All
Advocacy
Community
Corporate
Education
Fundraiser
Fundraiser
research
research
Team TSF
Virtual
State:
All
All
Arizona
California
Colorado
Delaware
Florida
Georgia
Illinois
Louisianna
Missouri
Nebraska
Nebraska
Nevada
New Jersey
New York
North Carolina
Pennsylvania
Tennessee
Texas
Virginia
Virginia
Washington
Washington DC
Event Location:
All
All
13 and Market, St. Louis, MO
Anderson Point Park Small Picnic Shelter
Buffalo Wild Wings
Capitol Hill
Cedars-Sinai Medical Center
Clarks Creek Greenway
Eno River State Park
Harris Middle School
Hyatt Regency
Kiawah Island Golf Resort
Los Angeles, CA
LSU Pete Maravich Assembly Center
McGovern Medical School in the University of Texas Medical Center
Monmouth Park
Monmouth Park & Oceanfront Promenade
Munroe Meyer Institute
Online
Peltier Park
Red Bull Arena
Red Mill
Road Runner Sports
Secaucus Public Library
Snyders Park
Snyders Park, Fort Lauderdale, FL
SoulCycle
St. Joseph's Children's Hospital
The Brownstone
The Children’s Hospital at Montefiore
The Salted Rim
Times Square
Tupelo Honey
Turner Syndrome Foundation- NJ
UTH Health Houston
YMCA Camp Ockanickon
Ynot Italian Restaurant
Yo Factor
Zacharias Park
2022feb1:00 amfeb(feb 28)11:59 pmIt's February Awareness Month!Month Long Event (february)
February is Turner Syndrome Awareness Month, a special opportunity to take action! Every February our community comes together to post, share, talk, and educate. We challenge you to take action
February is Turner Syndrome Awareness Month, a special opportunity to take action! Every February our community comes together to post, share, talk, and educate. We challenge you to take action this February – then keep the momentum going all year long!
Month Long Event (february)
Fundraiser contest hosted by Doreen Sullivan. Raising $2000 -$1,000 of the proceeds will benefit TSF - $1,000 paid out to winners Setting up this football pool to have some fun, win some money (perhaps)
more
Fundraiser contest hosted by Doreen Sullivan.
Raising $2000
-$1,000 of the proceeds will benefit TSF
– $1,000 paid out to winners
Setting up this football pool to have some fun, win some money (perhaps) and support a good cause!
Select your boxes here. Donating $25 per box:
https://superbowlpoolsite.com/contest/462473
Doreen Squares Contest is an online squares contest created for free at Super Bowl Pool Site.
This contest was created by Doreen Sullivan. This fundraiser is a proceeds benefit hosted by an individual, and not by TSF. If you have any questions about this contest, please direct those questions via email to the commissioner at drs0908@aol.com
Rules: https://superbowlpoolsite.com/rules/462473
Month Long Event (january)
Month Long Event (january)
Card artists are invited to donate cards for the February Awareness Month annual card auction! World renowned artists, and enthusiasts, have joined together to support Lori Kobular's fundraiser for Turner
Card artists are invited to donate cards for the February Awareness Month annual card auction! World renowned artists, and enthusiasts, have joined together to support Lori Kobular’s fundraiser for Turner Syndrome Awareness. You can help Lori to reach her fundraising goals again this year. Lori is asking for your generous support to make this event a continued tremendous success. The cards will be awarded to the highest bidder!
The event is being organized by Lori Kobular on Instagram @mulchlady6 or email: lkobular@tsfusa.org.
1 (Wednesday) 9:00 am - 28 (Tuesday) 11:59 pm
2023thu09feb8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
Awareness Committee will meet the third Wednesday of each month to rally, brainstorm and plan for awareness outreach and impact. If you would like to be part of the committee,
more
Awareness Committee will meet the third Wednesday of each month to rally, brainstorm and plan for awareness outreach and impact. If you would like to be part of the committee, please complete a volunteer application and let us know you wish to be part of the committee. If you have already submitted a volunteer application, email kholly@tsfusa.org to let her know that you would like to be part of the working committee. Link to Join: https://turnersyndromefoundation.org/volunteer_take_action/talent-application/
Why join this committee? 1- You can make a difference 2- You all meet some really great people 3- You will hone new skills & learn more about the mission. Gaining experience through doing is good for the mission and for you, too!
Thank you to everyone who is part of the awareness committee. We are so glad that you are here!
(Wednesday) 8:00 pm - 9:00 pm
2023thu16feb8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
2023thu23feb8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working
Join the Advocacy Working Group! Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. We are accepting applications for this working group. Sign up below.
The advocacy working group meets on Thursday evenings 8PM EDT.
Note: There will be no meeting on November 3, 2022.
(Thursday) 8:00 pm
Join in on a night of conversation, building connections, sharing stories and coloring together with friends! Socialize, have fun & introduce your pets to the Star Sisters community! What you'll need:
more
Join in on a night of conversation, building connections, sharing stories and coloring together with friends! Socialize, have fun & introduce your pets to the Star Sisters community!
What you’ll need: Get comfy – relax in the comfort of home to meet & share with friends!
Being a Star Sisters is a way to connect with others in the Turner syndrome community to share honest experiences and form a sisterhood of positivity. This is an opportunity to raise awareness while receiving support. All meet-ups and events occur online – so anyone personally affected by TS, almost anywhere can participate!
Star Sister’s enjoy these benefits offered freely to all who join.
If you are new to TSF and wish to join Star Sisters, sign up here: https://turnersyndromefoundation.org/living/star-sisters/star-sisters-application/
(Friday) 8:00 pm - 9:00 pm
Theme: Organization by Organic Themes.
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