Turner Syndrome FoundationArchives
Turner Syndrome Variations
Turner Syndrome manifests itself differently in each patient. This post will examine the different variations of Turner Syndrome and what that means for girls and women with the condition. Many people do not realize that there are two variations of…
Read MoreOur Daughter’s Health Journey
Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…
Read MoreHow Aortic Dissection Surgery Impacted My Family Planning
Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences with family planning and Turner Syndrome after aortic dissection surgery. The Struggle of Infertility In honor of Women’s Health…
Read MoreTwitter Chat: Turner Syndrome and Women’s Health
Written by Cassidy Hooper, TSF volunteer Twitter Chat Facilitator In anticipation of Women’s Health Month this month, we had a wonderful Twitter discussion in April about Turner Syndrome and women’s health. We talked about different women’s experiences with Turner Syndrome and…
Read MoreHealthy Coping Strategies for Anxiety
In our most recent webinar with Paula Glashausser, LCSW, ACM, she shared several healthy coping strategies for those who experience anxiety. In this blog we will provide an overview of some “emotional coping” strategies she outlined. These simple exercises can…
Read MoreMy First Pelvic Ultrasound: Reflecting on Love and Normalcy
Katie Steedly Curling, PhD, writer & guest blogger for TSF, describes her first experience with a pelvic ultrasound and reflects on this “normal” part of womanhood. A Big Deal My first pelvic ultrasound occurred when I was 37 at the…
Read MoreTurner Syndrome and Pregnancy: Against All Odds
Heather, a woman who has Turner Syndrome, shares how she was able to successfully use IVF to start her family. The majority of females who have Turner Syndrome are unable to have children, and even if they can, pregnancy often…
Read MoreExpecting a Baby Girl with Turner Syndrome
If you are a parent expecting a baby girl with Turner Syndrome, first of all, congratulations! This is an exciting time of life, despite the questions and concerns a Turner Syndrome diagnosis might bring. Turner Syndrome is completely random, and…
Read MoreMy Life After Aortic Dissection Surgery
Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome after aortic dissection surgery. Life Post-Surgery Hello again! I hope everyone is doing well…
Read MoreMental Health and Turner Syndrome
Written by Cassidy Hooper, Turner Syndrome woman and TSF volunteer Twitter Chat Facilitator What a great discussion about mental health and Turner Syndrome we had on Twitter on March 25th! We got to learn so much from women with Turner…
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