Turner Syndrome FoundationArchives
Estrogen Replacement Therapy Overview
Estrogen Replacement Therapy (ERT) is an important treatment for adolescents and women with Turner Syndrome (TS). The below overview is provided by Lournaris Torres-Santiago, MD and Nelly Mauras, MD, from Nemours Children’s Health System in Jacksonville, FL. Note: The information…
Read MoreEverything You Need to Know About Fertility Preservation Treatments
This post is based on the recent webinar by Dr. Oktay on “Fertility Preservation in Girls with Turner Syndrome.” It briefly highlights the importance of early diagnoses and treatment as well as the types of fertility preservation treatments individuals with…
Read MoreThe Importance of Vitamin C
In honor of National Vitamin C Day, we’ll talk about vitamin C–its effects on the body and health benefits for people living with Turner Syndrome (TS). Note: The information in this post is educational and should not replace medical advice…
Read MoreEstrogen Replacement Therapy FAQ
Estrogen Replacement Therapy is a common treatment for patients with Turner Syndrome. In this post, find the answers to some frequently asked questions about ERT. Thank you to Lournaris Torres-Santiago, MD and Nelly Mauras, MD of Nemours Children’s Health System,…
Read MoreSports and Other Activities for Children with Turner Syndrome
This post highlights important tips for children with Turner Syndrome (TS) interested in sports and other activities. This information is based on a recent webinar on the Cognitive Impact of TS, hosted by the Turner Syndrome Foundation (TSF) and presented…
Read MoreMake Your Voice Heard!
“I have Turner Syndrome and it took a very long time to diagnose my condition. I would greatly appreciate any representation this community is given.” Shaylie, Oregon For February Awareness Month, Turner Syndrome Foundation launched a petition to advocate for…
Read MoreUpcoming Webinar: the Cognitive Impact of Turner Syndrome
Learn about the Turner Syndrome Foundation’s (TSF) upcoming webinar, The Cognitive Impact of TS, presented by Dr. Ilyse O’Desky. This webinar will take place on January 27, 2021 at 7:00 p.m. EST. The Cognitive Impact of Turner Syndrome The cognitive…
Read MoreChoosing a Health Insurance Plan
In this post, we will discuss some tips on how to choose a health insurance plan based on a recent webinar presented by Pfizer and hosted by the Turner Syndrome Foundation (TSF). Particularly, we will focus on considerations to think…
Read MoreHealth Insurance and Reimbursements FAQ’s- Accessing Growth Hormone
This post presents important information about the types of insurances and reimbursement process for growth hormone treatment from recent webinar “Insurance & Reimbursement – A Turner Syndrome Foundation Webinar” presented by Patient Affairs Liaisons from Pfizer. What is a Patient…
Read MoreMy 2021 Word of the Year: Health
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she shares the meaning behind her “word of the year.” Health –…
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