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TS & Reproductive Health: It’s Not Just About Fertility

The Livia Wan Endowed Chair, Vice Chair of Research in the Department of OB-GYN, Professor in Population Health and the Center for Medical Ethics at the New York University School of Medicine.

This post contains sensitive information about reproductive health and infertility. Some of the information may not be suitable for young readers. In this post, we will delve into reproductive health and Turner syndrome, with a particular focus on Dr. Gwendolyn…

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Turner Syndrome and Life Expectancy: Tips for Maintaining Longevity

We know that TS patients and their loved ones have a lot of questions about how TS can impact life expectancy. We at the Turner Syndrome Foundation (TSF) recognize that this is a sensitive topic for those living with Turner…

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The Connection between Turner Syndrome and Autism

Is there a connection between Turner syndrome (TS) and Autism Spectrum Disorder (ASD)? Both conditions occur on a spectrum, which means they will vary greatly in how they present in patients. Is there a connection between the two conditions, though?…

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My Story/Voices of Infertility: My Little Miracle Man

The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community. For…

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Turner Syndrome & Family History/Heredity

After a child receives a diagnosis of Turner Syndrome (TS), parents and caregivers are likely to have many questions regarding their child’s health and future. One common question is whether or not TS is hereditary or somehow preventable. While there…

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TSF Celebrates National Disability Awareness Month

March is National Disability Awareness Month. It is a time to celebrate the contributions of those with disabilities, including people who also have chronic conditions like Turner syndrome (TS). While TS is not in itself a disability, some individuals with…

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My Story: From Pregnancy Loss to Cast-iron Endurance

The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community….

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Sharing a Turner Syndrome Diagnosis with Your Child at Different Stages

Many parents struggle with sharing a Turner Syndrome (TS) diagnosis with their child. When is it appropriate? How do I share it? How much do I share? It is a difficult decision, but there are benefits to sharing the diagnosis…

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Turner Syndrome Care Around the World

Throughout the years, the amount of available resources, treatments and educational material about Turner syndrome (TS) has steadily increased. TS is gaining much more attention in the medical field, with new research and more recognition around the world than in…

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Managing a Chronic Condition as a Young Adult

Managing a chronic condition like Turner syndrome (TS) can be challenging, especially as a young adult transitioning from pediatric to adult care. Let’s talk about taking control of your condition, developing a support system, and advocating for your own healthcare….

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