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Take a Step For TS

Intro 2021 has been busy for many of us. It’s hard to balance our academic, work, family, and social lives on top of weathering the pandemic’s many changes. Because of that, it has become difficult for us to find time…

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Everything You Need To Know about the TSRX-PIN Registry

One of the many things the COVID-19 pandemic has taught us is the importance of scientific research. Without research, we could not solve many health questions, like how to help treat people with rare conditions like Turner Syndrome (TS) during…

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New Resource for Parents Expecting a Baby with Turner Syndrome

prenatal diagnosis

New Resource for Expectant Parents: Prenatal Testing & Information About Turner Syndrome booklet. Learn more

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Making Exercise Enjoyable

We all know that exercise is good for us, but for someone with a chronic condition like Turner Syndrome (TS), it is even more important. Read below for some tips for making exercise more enjoyable for you and your children….

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A Guide to Common Challenges of Elementary Schoolers with Turner Syndrome

School can be difficult for many students, but especially if they have a chronic condition. This article will address the common challenges of elementary schoolers with Turner Syndrome (TS) and how to help them overcome them.. Disclaimers: Caretakers, this article…

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How To Open a Conversation About Turner Syndrome Diagnosis

One of the most challenging aspects of Turner Syndrome (TS) is knowing when and how to approach the TS diagnosis conversation. Whether you are a parent/caregiver or patient, read on to learn more about when and how to have this…

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Stress Free Health Care

The Importance of Stress Free Health Care Did you remember to take your medicine today? Did you attend your doctor’s appointment? Maintaining good health practices is a frequent topic of discussion in society. From talking about certain diets such as…

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Turner Syndrome and Diabetes

diabetes

Diabetes is a condition that affects a large percentage of individuals with Turner Syndrome (TS). It has received even more attention due to the pandemic, as there is now a growing focus on staying healthy to help strengthen our immune…

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How to Live Courageously With Type 2 Diabetes: Webinar

Confronting T2 Diabetes in Turner Syndrome Did you know that the Turner Syndrome community is at a heightened risk for developing type II diabetes? Sugary drinks and other sweet treats lovingly doled out to children may not have been the…

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My Story: What I’ve Learned as an Angel Mommy

Chelsea Patterson is a make-up artist and blogger from Michigan. Since losing her unborn baby, Noa, to Turner Syndrome (TS)-related complications, she has been on a mission to spread awareness of TS and support other angel mommies. Below is the…

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