“You are in control of what happens to your body” is a phrase I have often said to my patients. In the nine years I’ve worked as a registered nurse, I frequently encountered patients and families who felt defeated, unheard, and powerless in making decisions about their own health. Many of them shared that they’re
A Nurse’s Guide to Self-Advocacy in Healthcare Read More
The information presented in this blog comes from the webinar, Hearing Loss Rehabilitation & Counseling. Rehabilitation counselors play a vital role in supporting Deaf and hard-of-hearing individuals as they navigate personal, educational, social, and professional challenges. These professionals may support individuals through counseling, supporting them in accessing resources, and more. In this blog, you will
The Role of Rehabilitation Counselors for the Deaf & Hard-Of-Hearing Read More
Individuals with Turner Syndrome face higher risk of developing insulin resistance, glucose intolerance, and Diabetes Mellitus Type 1 and 2. The advancement of technology in medicine can improve management of metabolic disease and enhance long-term health outcomes. This article dives into the various technologies and medications available for individuals with Diabetes Mellitus. Information presented in
Updated Technologies for the Treatment of Diabetes Read More
The majority of individuals with Turner syndrome (TS) are affected by primary ovarian failure (POI), thus requiring hormonal therapy to induce puberty. However, around 16% of individuals with TS show complete spontaneous pubertal development with menarche (first menstrual cycle). A study of French TS patients showed that the age of spontaneous menarche was around 13.2
Turner Syndrome, Spontaneous Puberty, and Fertility Read More
Our Turner Syndrome Story My name is Niki Jacobs, and I am a proud mom of a 5 year old, spunky, spit fire butterfly named Eliana. She was diagnosed with Turner syndrome in 2025 after her amazing pediatrician put a handful of puzzle pieces together. We were lucky she was aware of what Turner syndrome
Tips for Starting Growth Hormone Injections in Turner Syndrome Read More
Occupational therapy is often a helpful intervention for girls with Turner syndrome (TS) who need assistance learning to complete functional tasks in daily life. In this blog, learn what occupational therapy is, how it may be helpful for a girl with TS, and how it can be accessed. What is Occupational Therapy? According to the
The Role of Occupational Therapy for Turner Syndrome Read More
Turner Syndrome patients have an increased risk for several skeletal issues, including knock knees, also known as genu valgum. Knock knees have significant implications for mobility and long term joint health, but can be treated most effectively with early diagnosis. Thus, this article focuses on knock knees in individuals with TS, covering prevalence, potential impacts,
Knock Knees and Turner Syndrome Read More
Medical history is important. It gives us a framework of where we have been and where we need to go. It shapes the way we think and practice medicine but also guides our future. The history and intersection of Turner syndrome (TS) and Diabetes Mellitus (DM) can give us valuable insight into current research gaps
The History of Turner Syndrome & Diabetes Mellitus Read More
I am both a retired pediatric endocrinologist and a woman with Turner syndrome (TS). I have been a pediatric endocrinologist since 2000, and enjoy interacting with other girls and women with TS. My personal medical journey and pediatric endocrinology training have given me a unique perspective in the ongoing knowledge of Turner syndrome management. My
Medical Gaps In The Treatment of Adult Women with Turner Syndrome Read More
Subscribe to our Newsletter
Subscribe to our Newsletter
