While there continues to be improvements in awareness, health care, research, and understanding of Turner syndrome, which I have seen firsthand since I was diagnosed around 2006-2007 at 10 years old, there is still a long way to go in improving health outcomes and quality of life. Many of the advances we have today exist
Community Voices: Why Advocacy Matters in Turner Syndrome Read More
“You are in control of what happens to your body” is a phrase I have often said to my patients. In the nine years I’ve worked as a registered nurse, I frequently encountered patients and families who felt defeated, unheard, and powerless in making decisions about their own health. Many of them shared that they’re
A Nurse’s Guide to Self-Advocacy in Healthcare Read More
What Are School Accommodations? School accommodations are designed to help students with different learning needs succeed in the classroom. It is important that both parents and teachers do their best to help support and advocate for students with Turner syndrome. This can look like making sure all proper paperwork is in place, going to all
Five School Accommodations to Support Students with Turner Syndrome Read More
My name is McKenna Fleming. I am 22 years old, and I was diagnosed with Turner syndrome in 2019. I am currently in a Doctorate program to become an occupational therapist. I have been so fortunate to partner with the Turner Syndrome Foundation to conduct my capstone project research study on the lived experiences of
Researching Social Skills and Turner Syndrome: Findings from a Virtual Training Study Read More
The TSF Legislative Advocacy Committee is a volunteer group that works together to advocate for Turner syndrome on a local, state, and national level in the U.S. Anyone can get involved in this effort! Keep reading to learn what legislative advocacy is, why it’s important, what the Committee’s projects entail, how to get involved with
YOU Can Be a Voice for Turner Syndrome: Join Our Advocacy Committee Read More
Education plays a critical role in the lives of individuals with Turner syndrome (TS), but too often, families and educators are left navigating challenges without the right tools, awareness, or support. Why the Education Working Group? For many individuals with Turner syndrome, medical care is only one part of the story. Academic and social experiences
Shaping Better School Experiences for Students with Turner Syndrome Read More
Register to Receive theWebinar Link & Recording This is a We Learn education activity presented by an expert in their field as part of the Turner Syndrome Foundation’s programming. Donations help our mission continue to develop and provide programs that support the TS community. Show your commitment to the cause—become a 1938 Sustaining Supporter. Short overview
Pediatric Referral Webinar Read More
Girls and women with Turner Syndrome (TS) face unique cognitive, emotional, and educational challenges that are often underrecognized, yet highly addressable with the right support. In the Turner Syndrome Foundation webinar: Psychosocial & Educational Considerations for Turner Syndrome, Mackenzie Norman, PhD., walked families, educators, and providers through the latest research and real-world strategies for improving
FAQ: Psychosocial Considerations for Turner Syndrome Read More
When it comes to supporting girls with Turner Syndrome (TS), we often think of care in two separate worlds: the medical clinic and the classroom. However, when these spheres work in isolation, important needs often go unmet. Girls with Turner Syndrome often present quietly. They may not act out or fall behind academically, but internally,
Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome Read More
Subscribe to our Newsletter
Subscribe to our Newsletter
