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Community/Events

Join us at the BlueClaws x TSF Baseball Game!

Subscribe to our blog Join Us and Wear Your GREEN for TS Awareness Join us at the TSF x Blue Claws baseball game with the Turner Syndrome Foundation as the community partner! By buying tickets, you will be supporting TS females and their families. Invite everyone – friends, families, coworkers, Girl Scout troops, all are welcome! Businesses can help sponsor tickets and play a huge role in our mission. You can be one of the 6500 people that attend these games for a great time while making a big difference in someone’s life.  So much hard work went into making this possible Lori Kobular, Vice President of TSF, set the

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Webinar Driving
Patient Health & Life

Steering Towards Success: Join Us for a Webinar on Driving with TS

Subscribe to our blog Women with Turner Syndrome (TS), as well as their parents and loved ones, may be wondering how to navigate the challenges with learning to drive safely. The Turner Syndrome Foundation’s (TSF) We Learn Webinar series can help.  “Driving to a lot of people means independence, freedom, the ability to go where you want to go when you want to go and not depend on anybody else.”? Megan Edwards Collins Experienced Driver with TS & Researcher TSF is hosting the webinar, Turner Syndrome and Driving: Skills Required and Resources Available, on May 30, 2024, at 8 p.m. The webinar’s speaker, Megan Edwards Collins, has Turner syndrome and

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Patient Health & Life

Obstructive Sleep Apnea & TS

Subscribe to our blog In the hustle and bustle of life, sleep often takes a backseat to our other priorities. However, the significance of quality sleep is crucial when it comes to overall health and well-being. Not only does sleep rejuvenate the body and mind, it also plays a crucial role in various bodily functions, including immune function, cognitive performance, and emotional regulation (Nunez et al. 2023).  For individuals living with Turner syndrome, sleep can present unique challenges. In this blog post, we’ll explore the connection between Turner syndrome and obstructive sleep apnea by reviewing the risk factors, symptoms, and management strategies.  Understanding Obstructive Sleep Apnea (OSA) The Challenges of

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Give.Get.Period. Lg
Patient Health & Life

The Challenges of Growing into Womanhood with Turner Syndrome

Subscribe to our blog Introduction to Womanhood As young girls transition into womanhood, they embark on a journey filled with numerous physical, emotional, and mental challenges. While every individual’s experience is unique, the complexities of growing into womanhood are further complicated when a girl has Turner syndrome. We will discuss all of these changes along with the additional challenges TS brings.  Details for a donation giveaway at the end as well! Physical Changes The onset of puberty is driven by hormonal shifts that set off a series of physical changes. Some changes include the development of breasts, the onset of menstruation, increases in height, and the growth of armpit and

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Community/Events

Take a Step for TS

Subscribe to our blog Walk Toward a Brighter Future,Join Take a Step for TS 2024 The Turner Syndrome (TS) community is walking together for TS awareness and research this spring.  From April 1 through April 15, 2024, the Turner Syndrome Foundation is hosting Take a Step for TS 2024, a walk to promote awareness and raise funds to help TSF save more lives.  Now, you can be a part of this annual event to remember, to grow a community, and to raise awareness. After joining a team, you can help us towards our total $150,000 fundraising goal dedicated to providing more research, webinars, and articles to help further educate patients and clinicians.

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Personal Stories

My Story is Not Meant to be Inspirational

Subscribe to our blog Turner syndrome can be difficult. Learn about Aleah’s challenges with ear infections, making friends, and learning with NVLD. My story is not meant to be inspirational; it’s meant to help girls with Turner syndrome feel less alone. Aleah Hi, my name is Aleah. I’m a 19-year-old girl with Turner Syndrome. I love baking, acting, and reading.    I was born in a small city in Michigan called Battle Creek. I had three hospitalizations between 4-months-old and 6-months-old because of recurrent Mastoiditis (described below). When I was 9-months-old, doctors wanted to have me genetically tested because I had Mastoiditis and Lymphedema as an infant.  That’s how we

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