Archives


2nd Annual- Move It For Millie

Previous Event: Move It For Millie 2018

Read More

Meet Doreen: Mother & Advocate

My husband Gary and I were married for 4 years, the proud parents of Paul, almost 2 years old, and pregnant with Olivia, when we received a call from our OBGYN with our amniocentesis test results. When I replied, “What…

Read More

The Power Within You

volunteer take action turner syndrome

These moments in history show the power we all have within us if we’re willing to stand up and take action. What power do you have within you?

Read More

From Heartbroken to Hopeful

Kourtney’s Story “My pregnancy with Natalie was my third pregnancy. After two fetal loses, the doctors were watching me closely and considered me high risk. We were terrified to get our hopes up that this pregnancy would be successful. At…

Read More

A mother’s lament. A heartbreaking truth

October is National Bullying Prevention Month, an issue that affects everyone without discrimination. Here is a mother’s lament on the bullying of her daughter. A heartbreaking truth for many. This is an email sent to a superintendent of schools: “This morning…

Read More

Overcoming Labels: How ONE Sixth Grader Opens Up About Having Turner Syndrome

It takes a strong, resilient, and driven person to overcome a label that has been associated with them their entire life. This is the case with 12-year-old Natalie Mohorter, an extremely intelligent, beautiful young sixth grader with Turner’s Syndrome. Natalie tried to deliver to people while organizing her sixth grade Gateway Project, a capstone class assignment meant to spread awareness about any topic of her choice. In this project, she officially came out to her fellow classmates, teachers, and community about having Turner Syndrome.

Read More

A collaborative effort for TS Awareness

Have you met anyone affected by Turner Syndrome yet? If you have, would you like to re-live the experience? Here’s how to make it happen, while making a difference. You can be part of an awareness event planning in your…

Read More

Bake Sale for Turner Syndrome

Bakers! Where are you? Blossom your baking talents & step out of your comfort zone by hosting a Bake Sale for Turner Syndrome. We WILL help you!

Read More

Share: Turner Syndrome PSA

turner syndrome psa

Know the signs. Change a life. For more than a decade, the median diagnosis age for Turner Syndrome has been 15 years old. This is a problem. In the best possible situations, Turner Syndrome girls are diagnosed at birth or…

Read More
X