Join the Fairbanks and Tampa Bay Rays on June 7th for Strikeouts for Turner Syndrome: A Community Day of Hope and Awareness For the second year in a row, Pete Fairbanks, pitcher for the Tampa Bay Rays, and his wife Lydia are inviting you to be part of something far greater than a scorecard. For […]
Pitching for a Purpose: Join Fairbanks Strikeouts for Turner Syndrome Read More
Living with Turner syndrome (TS) presents unique challenges and triumphs, not only for the girls and women diagnosed, but also for their families. Often, loved ones become key advocates, navigating the journey alongside them. In this post, we share the stories of three mothers, Lucia, Victoria, and Kimberly, who are dedicated to understanding TS and
From the Mother’s Viewpoint: Advocating for Turner Syndrome Girls Read More
Subscribe to our blog Throughout February, we proudly celebrated Turner Syndrome Awareness Month, honoring the incredible women and girls who show strength, resilience, and determination every day. While the official awareness month may be coming to an end, our commitment to raising awareness must continue all year long. By keeping the conversation going, we can
After Awareness Month the Beat Goes On Read More
Subscribe to our blog Dear Health Professionals, When people ask me what I do for a living, my first answer is, “I breathe.” I often get a look of humor, contempt, curiosity, or disbelief. Well, I am a healthcare professional, and I’m glad you put up with my opening line. Not many would, and I
From a Health Professional: Why don’t we know enough? Read More
Subscribe to our blog We’ve all heard of friendship bracelets. But, what if there was a bracelet that could connect our special community here? With the Little Words Project, that opportunity is here! My name is Nicole Topp, and I’m proud to have helped create a bracelet for us that beautifully displays TSF surrounded with
A Valentine’s Gift For You and TSF: Friendship Bracelets Read More
As an individual or a group, there are lots of opportunities to be an advocate for healthcare equity and to make a true difference for women with TS. Advocacy takes many different forms, and your experience as an advocate can be tailored to your unique interests and skill sets. Legislative action is a
#Women’sHealthResearch Matters Read More
Note: This post contains sensitive information about reproductive health that may not be appropriate for younger audiences. Everyone’s journey with TS is different. Please consult with your health care provider(s) for guidance regarding your unique health issues and appropriate treatments. TSF does not take a stance on medical treatments or provide medical advice. When seeking
Equity in Healthcare: How It Impacts Women with TS Read More
Subscribe to our blog Well, Turner Syndrome Awareness Month (TSAM) 2023 is a wrap, and what a wonderful month it was! Throughout February, the TS community–patients, families, advocates, and medical professionals–came together to raise awareness for this rare condition. The Turner Syndrome Foundation (TSF) sponsored a wide variety of activities and challenges for ”awareness ambassadors”
Turner Syndrome Awareness Month 2023: Let’s Keep the Momentum Going! Read More
Subscribe to our blog SHOW ME AWARENESS MONTH ACTIVITIES Awareness
Turner Syndrome Awareness Month The X Factor Read More
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