TSF Joins Network for Advancing Sex Chromosome Aneuploidy Research Readiness

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The Turner Syndrome Foundation is proud to announce its involvement in the Network for Advancing Sex Chromosome Aneuploidy Research Readiness (NASCARR), a newly funded initiative through the Rare Diseases Clinical Research Network (RDCRN). This partnership represents an important step forward in advancing research, collaboration, and long-term progress for individuals with Turner syndrome and the broader […]

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Research Opportunity: TS & Social Skills –

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Research is critical to advancing the understanding of Turner syndrome, and successful research requires participation from those living with the condition. In this blog, learn about a new research study you can participate in to help a Doctoral candidate and woman with TS generate more knowledge about social skills in Turner syndrome. About the Researcher

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Paid Research Opportunity

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Are you an adult with Turner syndrome? We would love to hear about your experiences moving from pediatric to adult healthcare!   We’re inviting you to join a research study about the transition from pediatric to adult care for people with Turner Syndrome. Help us make medical care more accessible and affirming for everyone. What

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#Women’sHealthResearch Matters

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     As an individual or a group, there are lots of opportunities to be an advocate for healthcare equity and to make a true difference for women with TS. Advocacy takes many different forms, and your experience as an advocate can be tailored to your unique interests and skill sets. Legislative action is a

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Ways to support turner syndrome research

Register for TSRX to Help Science Know More About Turner Syndrome!

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     The future of Turner syndrome research is in the hands of the patient community. The Turner Syndrome Foundation, in collaboration with Invitae Patient Insights Network (PIN), has established a TSRX PIN to assist the patient community in assisting the scientific community in creating an inclusive global data registry on TS; the biggest in

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The Connection between Turner Syndrome and Autism

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Subscribe to our blog Is there a connection between Turner syndrome (TS) and Autism Spectrum Disorder (ASD)? Both conditions occur on a spectrum, which means they will vary greatly in how they present in patients. Is there a connection between the two conditions, though? While knowledge of both conditions changes over time, and we have

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Turner Syndrome & Verbal Skills: a Good-news Story!

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Subscribe to our blog We often hear a lot about the challenges of Turner syndrome (TS), which vary from patient to patient. But let’s make sure to look at the positives, too! One of those for individuals with TS is having above-average verbal skills. How can we nurture this in individuals with TS and help

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International TS Treatments

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Subscribe to our blog Intro Much of the Turner Syndrome Foundation’s (TSF) focus is on helping individuals with Turner Syndrome (TS) manage their health challenges. However, with the pandemic highlighting the power of spreading awareness and sharing research to overcome global health challenges, we decided to change our approach. Written by a collaborative team of

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