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Everything You Need To Know about the TSRX-PIN Registry

One of the many things the COVID-19 pandemic has taught us is the importance of scientific research. Without research, we could not solve many health questions, like how to help treat people with rare conditions like Turner Syndrome (TS) during…

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Connection Between Turner Syndrome and Math Skills

Is it true that all individuals  with Turner Syndrome (TS) are weaker in math than their peers? According to the many TS patients the Turner Syndrome Foundation (TSF) interacts with, they can definitely experience challenges. But, there are many exceptions…

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Exercise and Young People with Turner Syndrome

Event Gallery

This post summarizes an article by Dr. Thalia Thompson, et al. titled “A Mixed-Methods Study of Physical Activity and Quality of Life in Adolescents with Turner Syndrome.” It explores how Turner Syndrome (TS) affects young people’s ability to exercise, given…

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The Importance of Research

the importance of research

Research is a main aspect of our mission because it can improve future outcomes in many ways. Keep reading to learn about some of the reasons research is so important, and some opportunities that you can get involved in! Medical…

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Participate in NIH COVID Impact Study

COVID-19 has undeniably has a profound impact on all members of society. Until this point, we haven’t been able to describe the impact on those who have Turner Syndrome specifically. Now, a study by NIH researchers will help us understand…

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Turner Syndrome Research: AJ’s Journey

Turner syndrome research

Written by Audrey (AJ) Jones, Turner Syndrome Foundation (TSF) intern and researcher. AJ is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome (TS) and working with the TSF since 2016. After completing her Princeton University…

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Understanding Experiences with Turner Syndrome- Research Project

Research Opportunity

Audrey (AJ) Jones is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome and working with the Turner Syndrome Foundation (TSF) since 2016. After completing her Princeton University Bachelor’s thesis on Turner Syndrome communities, she is…

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Turner Syndrome Research Opportunities

Ways to support turner syndrome research

Written by Liz Rivera, TSF intern and currently a junior at Stockton University studying sociology and anthropology. Liz has a strong passion for helping people and hopes to connect people in need with support and resources to help them live…

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Charitable giving is easy for New Jersey state employees!

New Jersey state employees have the opportunity to support us throughout the year thanks to the New Jersey Employees Charitable Campaign!

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Research Opportunities

Turner Syndrome Research eXchange

Research is a team effort. The more people that are on the team, the more effective research can be. It is important for all women, girls, and family members affected by Turner Syndrome to contribute to clinical trials in order…

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