Research Archives | Turner Syndrome Foundation

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The Importance of Research

the importance of research

Research is a main aspect of our mission because it can improve future outcomes in many ways. Keep reading to learn about some of the reasons research is so important, and some opportunities that you can get involved in! Medical…

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Participate in NIH COVID Impact Study

COVID-19 has undeniably has a profound impact on all members of society. Until this point, we haven’t been able to describe the impact on those who have Turner Syndrome specifically. Now, a study by NIH researchers will help us understand…

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Turner Syndrome Transition Study

All Turner Syndrome patients ages 12-25 are able to support research through this online survey! Check out this research opportunity from Nisha Patel, a two-year endocrinology fellow at Nationwide Children’s Hospital in Columbus, Ohio. She is studying the transition from…

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Turner Syndrome Research: AJ’s Journey

Turner syndrome research

Written by Audrey (AJ) Jones, Turner Syndrome Foundation (TSF) intern and researcher. AJ is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome (TS) and working with the TSF since 2016. After completing her Princeton University…

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Understanding Experiences with Turner Syndrome- Research Project

Research Opportunity

Audrey (AJ) Jones is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome and working with the Turner Syndrome Foundation (TSF) since 2016. After completing her Princeton University Bachelor’s thesis on Turner Syndrome communities, she is…

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Turner Syndrome Research Opportunities

Ways to support turner syndrome research

Written by Liz Rivera, TSF intern and currently a junior at Stockton University studying sociology and anthropology. Liz has a strong passion for helping people and hopes to connect people in need with support and resources to help them live…

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Charitable giving is easy for New Jersey state employees!

New Jersey state employees have the opportunity to support us throughout the year thanks to the New Jersey Employees Charitable Campaign!

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Lessons Learned in Research

TSF Board Member

In celebration of the ten year anniversary of receiving her PhD, TSF Director of Research, Danielle Moore, shares the lessons and insights she’s learned as a medical and scientific researcher. Celebrating Lessons in 15 Years of Scientific and Medical Research…

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Research Opportunities

Turner Syndrome Research eXchange

Research is a team effort. The more people that are on the team, the more effective research can be. It is important for all women, girls, and family members affected by Turner Syndrome to contribute to clinical trials in order…

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Introducing: Turner Syndrome Council on Cardiology

Introducing a New Turner Syndrome Foundation Cardiovascular Health Initiative Cardiovascular health is a major concern for many people. Heart disease is the number one killer of women in the United States, with cardiac issues leading to death in 1 in…

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