Turner Syndrome FoundationArchives
Rally for Medical Research
Advocating for Turner Syndrome is very easy: Put on a good pair of shoes, meet up with the group and tell your story! Join us at Capitol Hill on September 12-13th and meet legislators to raise awareness and advocate for…
Read MorePAID OPINION STUDY
Paid for your opinion: Recruitment for a usability and human factors research study into a new injecting device is underway. Patients who have growth disorders and those who are involved in treating them, are sought to gain feedback about the…
Read MoreAre you interested in sharing your experience with Turner Syndrome?
Audrey (AJ) Jones, a first year cultural anthropology doctoral student at Emory University, is conducting an ethnographic study of girls and women with Turner Syndrome. ABOUT STUDY: Unlike the typical medical studies of Turner Syndrome, this study is interested in…
Read MoreRutgers University Study on the Epidemiology of TS
Rutgers Student Studies Health Concerns in Turner Syndrome For MPH Project Veronia Hanna, Rutgers University Masters of Public Health student, chose to study Turner Syndrome for her practicum poster presentation, a final project required for Masters of Public Health candidates….
Read MoreSurvey Parent Perspectives on Delivery of Diagnosis
Survey – Sex Chromosome Aneuploidies: Parent Perspectives on Delivery of Diagnosis You are invited to participate in a research study that focuses on the experience parents have had while receiving a diagnosis of a sex chromosome aneuploidy (SCA) for their…
Read MoreRally for Medical Research
2017 Rally for Medical Research Turner Syndrome Foundation representatives attended the 2017 Rally for Medical Research this September in Washington, DC. The meetings and reception were held in the Grand Hyatt Hotel and on Capitol Hill. Aligning with advocacy…
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