Archives


Support TSF at Work

turner syndrome foundation employee volunteer

Do you know all of the ways your employer can support TSF? Learn about them here (you may even get a day off to volunteer)!

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A Gift from Above

Emily is both a mother and postpartum nurse. She helps other parents cope with a Turner Syndrome diagnosis while raising a miracle of her own. With this unique perspective, Emily understands the importance of raising Turner Syndrome awareness. On April…

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My Story: No Diagnosis Without Awareness

turner syndrome awareness early diagnosis

Catrina was diagnosed with Turner Syndrome at 20 after a chance encounter with a cashier at her college bookstore. The cashier asked her if she had Turner Syndrome. Catrina’s mother explained, “They looked at her when she was little, but…

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Host a Casual Day Fundraiser

jean day

Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…

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2nd Annual- Move It For Millie

Previous Event: Move It For Millie 2018

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Cards For Charity

“I am selling my homemade cards on the Cards for Charity Facebook page with all money from the sales being donated to the Turner Syndrome Foundation from now through March.  Some of the lovely designers have sent me their cards…

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From Heartbroken to Hopeful

Kourtney’s Story “My pregnancy with Natalie was my third pregnancy. After two fetal loses, the doctors were watching me closely and considered me high risk. We were terrified to get our hopes up that this pregnancy would be successful. At…

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Protected: WEBED- 2018.11.07

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Introducing: Turner Syndrome Council on Cardiology

Introducing a New Turner Syndrome Foundation Cardiovascular Health Initiative Cardiovascular health is a major concern for many people. Heart disease is the number one killer of women in the United States, with cardiac issues leading to death in 1 in…

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Rally for Medical Research

Advocating for Turner Syndrome is very easy: Put on a good pair of shoes, meet up with the group and tell your story! Join us at Capitol Hill on September 12-13th and meet legislators to raise awareness and advocate for…

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