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Perspectives on Health and Turner Syndrome

In our second Twitter chat for Turner Syndrome awareness, we talked about health concerns. It was insightful to hear so many perspectives on the condition. As we learned, TS affects every woman and girl differently. There are some more common…

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An Awareness Success Story

coming out turner syndrome diagnosis

by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF Sometimes in our rush to think about awareness as big events and campaigns, we forget that awareness is, above all, personal. Connection is the heart of Turner Syndrome awareness….

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A Virtual Chat for Turner Syndrome Awareness

This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….

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Awareness Month Involvement Packet

Involvement Guide

February Awareness Month is almost here, and we have prepared so many ways for you to join us in making change. Raising awareness happens all year, but February is a special time for us to focus our efforts and work…

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A Woman’s Perspective on Infertility

coming out turner syndrome diagnosis

by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF The Topic of Infertility Infertility is definitely not a typical holiday topic, but it is a quiet discussion that whispers around the corners of my holidays: at family gatherings,…

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Attend the Patient Workshop in California!

Cedars Sinai Workshop

Join the Department of Pediatrics at the Cedars-Sinai Medical Center in Los Angeles, California for a Turner Syndrome workshop! This workshop will take place on January 9, 2020 from 12:30 to 2. It features lectures by Dr. Michelle Schwieger and…

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Three Women Connected by TS

turner syndrome women connection

Laura Fasciano, Dawn Petr, and Lori Kobular, are friends, mothers, volunteers, and TSF Board Members. But they weren’t always united over the common goal of making a difference for all women and girls affected by TS. Turner Syndrome, a condition often seen as…

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Giving back to our health care providers!

Turner Syndrome Specialist

November is the month of being thankful, and with that we would like to thank the health care providers who go above and beyond each day for girls and women affected by Turner Syndrome. 1 in 2000 girls are affected…

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Charitable giving is easy for New Jersey state employees!

New Jersey state employees have the opportunity to support us throughout the year thanks to the New Jersey Employees Charitable Campaign!

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Coming Out with Turner Syndrome

coming out turner syndrome diagnosis

by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF A writing teacher explained to me after he read my essay, “The Unspeakable Gift,” that the essay was the moment I came out as a woman living with Turner…

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