Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with your specific health needs, called specialists, and how to refer others to specialists that have […]
How to Find a Turner Syndrome Specialist Read More
Subscribe to our blog Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP) and what to do if the plan’s results are not satisfactory.
How To Advocate for Your Child in School: Navigating 504 Plans and IEPs Read More
Do you want to advocate for yourself but do not know what self-advocacy actually means? Struggling to find examples of being a self-advocate? This article can help you! We recently talked with members from the Turner Syndrome (TS) community to get their perspectives on self-advocacy. These women also share their personal stories about how they
Perspectives on Self-advocacy Read More
Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki shares how her group successfully advocated in the state of Nebraska. Renee’s Turner Syndrome Advocacy
A Turner Syndrome Advocacy Success Story Read More
Subscribe to our blog One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter, Carly Joy, went before the Pennsylvania State Senate on behalf of
Legislative Advocacy in PA Read More
Subscribe to our blog We have been running our campaign to gain signatures on a letter to legislators for a few weeks now and have recieved great feedback! We’d like to further stress how simple it is to sign on to this legislative advocacy, yet how much of an impact your support can have. Our
The importance of writing to your legislators Read More
Social consciousness of Turner Syndrome is evident through our solid base of youth activists. TAKE ACTION and visit https://turnersyndromefoundation.org/volunteer/ to get involved.
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