The 2025 Petition for Turner Syndrome and Why it Matters We’re thrilled to see that nearly 200 people have signed the Turner Syndrome Foundation’s Petition for Patient Care so far in 2025! While the majority of the signatures came from within the United States, we’re excited that we also had support from Cameroon, Canada, and […]
The Importance of Turner Syndrome Advocacy Read More
Subscribe to our blog Hello! Hello there, my name is Angela. I am blessed with many things in life. I have wonderful family and friends, a love for reading and learning, the cutest dog ever, and I also have Turner syndrome. As a nurse, I am passionate about health education so I hope anyone reading
My Story: Being an Advocate for Myself and Others Read More
   As an individual or a group, there are lots of opportunities to be an advocate for healthcare equity and to make a true difference for women with TS. Advocacy takes many different forms, and your experience as an advocate can be tailored to your unique interests and skill sets. Legislative action is a
#Women’sHealthResearch Matters Read More
  There are many ways to get involved in awareness and work within the Turner syndrome (TS) community. Legislative advocacy is a very important part of that work, as it allows us to communicate directly with our federal, state, and local representatives who have the ability to officially proclaim awareness for TS. National awareness for
Powerfully Impacting the TS Community: Legislative Advocacy Read More
Note: This post contains sensitive information about reproductive health that may not be appropriate for younger audiences. Everyone’s journey with TS is different. Please consult with your health care provider(s) for guidance regarding your unique health issues and appropriate treatments. TSF does not take a stance on medical treatments or provide medical advice. When seeking
Equity in Healthcare: How It Impacts Women with TS Read More
Turner Syndrome (TS) and other chronic conditions can become a large part of one’s identity, but the Turner Syndrome Foundation (TSF wants) individuals with TS to know that they are so much more than their diagnosis! How Labels Work Labels reflect how people think about others and themselves. They not only influence how a personal
Subscribe to our blog Calling your local government officials is a great way to spread awareness of your cause and fight for actionable change, but many people may not know how to do it, or why. This article will tell you everything you need to know about advocating via phone calls, how to do it,
How To Call Government Officials Like A Pro Read More
Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with your specific health needs, called specialists, and how to refer others to specialists that have
How to Find a Turner Syndrome Specialist Read More
Subscribe to our blog Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP) and what to do if the plan’s results are not satisfactory.
How To Advocate for Your Child in School: Navigating 504 Plans and IEPs Read More
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