In honor of Turner Syndrome Awareness Month 2026, the Turner Syndrome Foundation hosted a Patient and Parent Panel event to raise awareness and build community. This event brought together three panelists: two women living with Turner syndrome and one mom to a daughter with Turner syndrome, in addition to the facilitator, a woman with Turner
“You Have to Be Loud”: Voices from the Turner Syndrome Community Read More
“Is Turner syndrome inherited?” is one of the most common questions about this genetic disorder. At first glance, it might seem like something that runs in families, especially since it often comes up in genetics classes and discussions. After all, when a condition involves chromosomes, it is natural to wonder whether it can be passed
Is Turner Syndrome Inherited? Read More
Living with Turner syndrome (TS) often means navigating healthcare, education, relationships, and life transitions with unique considerations. Building a strong Turner syndrome support system can make a meaningful difference in emotional well-being, confidence, and long-term health. While many women with TS become strong self-advocates, knowing what kind of support to ask for is not always
The Kinds of Support All TS Women Need Read More
Star Sisters is a private online community hosted by the Turner Syndrome Foundation for adult women with Turner syndrome (TS) and caregivers of a child with TS. What’s Included in Star Sisters? Star Sisters maintains a private Facebook group for members to share their stories, share updates about their journey, ask for advice, and receive
Star Sisters: A Hub for the Turner Syndrome Community Read More
The majority of individuals with Turner syndrome (TS) are affected by primary ovarian failure (POI), thus requiring hormonal therapy to induce puberty. However, around 16% of individuals with TS show complete spontaneous pubertal development with menarche (first menstrual cycle). A study of French TS patients showed that the age of spontaneous menarche was around 13.2
Turner Syndrome, Spontaneous Puberty, and Fertility Read More
The TSF Legislative Advocacy Committee is a volunteer group that works together to advocate for Turner syndrome on a local, state, and national level in the U.S. Anyone can get involved in this effort! Keep reading to learn what legislative advocacy is, why it’s important, what the Committee’s projects entail, how to get involved with
YOU Can Be a Voice for Turner Syndrome: Join Our Advocacy Committee Read More
Education plays a critical role in the lives of individuals with Turner syndrome (TS), but too often, families and educators are left navigating challenges without the right tools, awareness, or support. Why the Education Working Group? For many individuals with Turner syndrome, medical care is only one part of the story. Academic and social experiences
Shaping Better School Experiences for Students with Turner Syndrome Read More
The transition to college from high school can be daunting for any 18 year old, or even anyone going back to school, especially when it can sometimes mean relocating away from your familiar support system. For those with conditions like Turner syndrome, there may be additional challenges to consider that the average student might not
Advice for Girls with Turner Syndrome on Going to College Read More
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