Skin Conditions Commonly Seen in Turner Syndrome

Life with Turner syndrome (TS) means navigating both external and internal medical conditions, one of which includes skin conditions. Consequently, ongoing visits to a dermatologist are usually recommended for the care and treatment for individuals with TS. In this article, we will review the common skin conditions seen in TS patients and care recommendations. Melanocytic

Skin Conditions Commonly Seen in Turner Syndrome Read More

Cardiovascular Concerns in Children and Adolescents with TS

Turner syndrome (TS) has a strong association with congenital heart conditions and acquired cardiovascular conditions. Congenital heart disease (CHD) can be found in up to half of individuals with TS and cardiovascular complications are the leading cause of death in this group (De Groote et al., 2025).  Regular screening is essential to the early detection

Cardiovascular Concerns in Children and Adolescents with TS Read More

Understanding Pregnancy Loss in Turner Syndrome

Turner syndrome (TS) impacts about 1 in 2,000 women and girls all over the planet. For the families whose developing baby receives this diagnosis, it often marks the beginning of a difficult journey, since the medical odds are stacked against long-term development for the fetus. Conversely, for women surviving with TS, there are health factors

Understanding Pregnancy Loss in Turner Syndrome Read More

Lymphedema in Turner Syndrome: Diagnosis & Treatment

In part one of this blog, we covered the lymphatic system, what lymphedema is, and how to recognize early signs. In this blog, we will discuss how lymphedema is diagnosed, treatment options, and how to advocate for yourself or your child. Information presented in this article comes from the webinar “Understanding Lymphedema.” Diagnosis and Clinical

Lymphedema in Turner Syndrome: Diagnosis & Treatment Read More

Lymphedema in Turner Syndrome: Signs and Symptoms

Lymphedema is common in individuals with Turner syndrome, affecting about 2 out of 3 people in their lifetime. Lymphedema is commonly misunderstood and underdiagnosed, needing more research in diagnostic tools and individualized treatment. This blog will give an introduction into the lymphatic system, lymphedema, and how to spot early signs. A second part will highlight

Lymphedema in Turner Syndrome: Signs and Symptoms Read More

Hypoplastic Left Heart Syndrome & Turner Syndrome

The chromosomal abnormalities that cause Turner syndrome have far-reaching effects across multiple body systems. One of the more prevalent effects of TS can be found in the heart, as congenital heart defects are present in 23-50% of all individuals with TS (Silberbach et al., 2018).    The exact cause of these congenital defects remains unclear,

Hypoplastic Left Heart Syndrome & Turner Syndrome Read More

The Signs of Turner Syndrome in Pregnancy & Newborns

What is Turner Syndrome? Most people are born with two sex chromosomes. Females inherit a pair of two X chromosomes, one from each parent, while males will inherit an X chromosome from their mother and a Y chromosome from their father. Girls and women with Turner syndrome (TS), however, only have one X chromosome, due

The Signs of Turner Syndrome in Pregnancy & Newborns Read More

Researching Social Skills and Turner Syndrome: Findings from a Virtual Training Study

My name is McKenna Fleming. I am 22 years old, and I was diagnosed with Turner syndrome in 2019. I am currently in a Doctorate program to become an occupational therapist. I have been so fortunate to partner with the Turner Syndrome Foundation to conduct my capstone project research study on the lived experiences of

Researching Social Skills and Turner Syndrome: Findings from a Virtual Training Study Read More