The Role of Rehabilitation Counselors for the Deaf & Hard-Of-Hearing

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The information presented in this blog comes from the webinar, Hearing Loss Rehabilitation & Counseling. Rehabilitation counselors play a vital role in supporting Deaf and hard-of-hearing individuals as they navigate personal, educational, social, and professional challenges. These professionals may support individuals through counseling, supporting them in accessing resources, and more. In this blog, you will […]

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Updated Technologies for the Treatment of Diabetes

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Individuals with Turner Syndrome face higher risk of developing insulin resistance, glucose intolerance, and Diabetes Mellitus Type 1 and 2. The advancement of technology in medicine can improve management of metabolic disease and enhance long-term health outcomes. This article dives into the various technologies and medications available for individuals with Diabetes Mellitus. Information presented in

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“You Have to Be Loud”: Voices from the Turner Syndrome Community

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In honor of Turner Syndrome Awareness Month 2026, the Turner Syndrome Foundation hosted a Patient and Parent Panel event to raise awareness and build community. This event brought together three panelists: two women living with Turner syndrome and one mom to a daughter with Turner syndrome, in addition to the facilitator, a woman with Turner

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The Kinds of Support All TS Women Need

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Living with Turner syndrome (TS) often means navigating healthcare, education, relationships, and life transitions with unique considerations. Building a strong Turner syndrome support system can make a meaningful difference in emotional well-being, confidence, and long-term health. While many women with TS become strong self-advocates, knowing what kind of support to ask for is not always

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Star Sisters: A Hub for the Turner Syndrome Community

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Star Sisters is a private online community hosted by the Turner Syndrome Foundation for adult women with Turner syndrome (TS) and caregivers of a child with TS. What’s Included in Star Sisters? Star Sisters maintains a private Facebook group for members to share their stories, share updates about their journey, ask for advice, and receive

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Turner Syndrome, Spontaneous Puberty, and Fertility

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The majority of individuals with Turner syndrome (TS) are affected by primary ovarian failure (POI), thus requiring hormonal therapy to induce puberty. However, around 16% of individuals with TS show complete spontaneous pubertal development with menarche (first menstrual cycle). A study of French TS patients showed that the age of spontaneous menarche was around 13.2

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YOU Can Be a Voice for Turner Syndrome: Join Our Advocacy Committee

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The TSF Legislative Advocacy Committee is a volunteer group that works together to advocate for Turner syndrome on a local, state, and national level in the U.S. Anyone can get involved in this effort! Keep reading to learn what legislative advocacy is, why it’s important, what the Committee’s projects entail, how to get involved with

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Shaping Better School Experiences for Students with Turner Syndrome

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Education plays a critical role in the lives of individuals with Turner syndrome (TS), but too often, families and educators are left navigating challenges without the right tools, awareness, or support. Why the Education Working Group? For many individuals with Turner syndrome, medical care is only one part of the story. Academic and social experiences

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