Researching Social Skills and Turner Syndrome: Findings from a Virtual Training Study

Leave a Comment | Education & Communicating TS, Research | | , ,

My name is McKenna Fleming. I am 22 years old, and I was diagnosed with Turner syndrome in 2019. I am currently in a Doctorate program to become an occupational therapist. I have been so fortunate to partner with the Turner Syndrome Foundation to conduct my capstone project research study on the lived experiences of […]

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TSF Joins Network for Advancing Sex Chromosome Aneuploidy Research Readiness

1 Comment | Mission, Research | | ,

The Turner Syndrome Foundation is proud to announce its involvement in the Network for Advancing Sex Chromosome Aneuploidy Research Readiness (NASCARR), a newly funded initiative through the Rare Diseases Clinical Research Network (RDCRN). This partnership represents an important step forward in advancing research, collaboration, and long-term progress for individuals with Turner syndrome and the broader

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The Role of Rehabilitation Counselors for the Deaf & Hard-Of-Hearing

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The information presented in this blog comes from the webinar, Hearing Loss Rehabilitation & Counseling. Rehabilitation counselors play a vital role in supporting Deaf and hard-of-hearing individuals as they navigate personal, educational, social, and professional challenges. These professionals may support individuals through counseling, supporting them in accessing resources, and more. In this blog, you will

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Updated Technologies for the Treatment of Diabetes

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Individuals with Turner Syndrome face higher risk of developing insulin resistance, glucose intolerance, and Diabetes Mellitus Type 1 and 2. The advancement of technology in medicine can improve management of metabolic disease and enhance long-term health outcomes. This article dives into the various technologies and medications available for individuals with Diabetes Mellitus. Information presented in

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“You Have to Be Loud”: Voices from the Turner Syndrome Community

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In honor of Turner Syndrome Awareness Month 2026, the Turner Syndrome Foundation hosted a Patient and Parent Panel event to raise awareness and build community. This event brought together three panelists: two women living with Turner syndrome and one mom to a daughter with Turner syndrome, in addition to the facilitator, a woman with Turner

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The Kinds of Support All TS Women Need

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Living with Turner syndrome (TS) often means navigating healthcare, education, relationships, and life transitions with unique considerations. Building a strong Turner syndrome support system can make a meaningful difference in emotional well-being, confidence, and long-term health. While many women with TS become strong self-advocates, knowing what kind of support to ask for is not always

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Star Sisters: A Hub for the Turner Syndrome Community

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Star Sisters is a private online community hosted by the Turner Syndrome Foundation for adult women with Turner syndrome (TS) and caregivers of a child with TS. What’s Included in Star Sisters? Star Sisters maintains a private Facebook group for members to share their stories, share updates about their journey, ask for advice, and receive

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Turner Syndrome, Spontaneous Puberty, and Fertility

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The majority of individuals with Turner syndrome (TS) are affected by primary ovarian failure (POI), thus requiring hormonal therapy to induce puberty. However, around 16% of individuals with TS show complete spontaneous pubertal development with menarche (first menstrual cycle). A study of French TS patients showed that the age of spontaneous menarche was around 13.2

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