Category: Research


Are you interested in sharing your experience with Turner Syndrome?

Audrey (AJ) Jones, a first year cultural anthropology doctoral student at Emory University, is conducting an ethnographic study of girls and women with Turner Syndrome.  ABOUT STUDY: Unlike the typical medical studies of Turner Syndrome, this study is interested in…

Read More

TSF is proud to present TSRX!

Turner Syndrome Research eXchange PIN

Turner Syndrome Research eXchange Turner Syndrome Foundation is proud to announce the Turner Syndrome Research eXchange (TSRX) in collaboration with Invitae’s Patient Insights Network (PIN). TSRX is a space for permission-based sharing of your medical data to advance research and…

Read More

Survey Parent Perspectives on Delivery of Diagnosis

Survey – Sex Chromosome Aneuploidies: Parent Perspectives on Delivery of Diagnosis You are invited to participate in a research study that focuses on the experience parents have had while receiving a diagnosis of a sex chromosome aneuploidy (SCA) for their…

Read More

©2017 Turner Syndrome Foundation

X