Research

Articles discussing research relating to TS.

Ways to support turner syndrome research

Register for TSRX to Help Science Know More About Turner Syndrome!

     The future of Turner syndrome research is in the hands of the patient community. The Turner Syndrome Foundation, in collaboration with Invitae Patient Insights Network (PIN), has established a TSRX PIN to assist the patient community in assisting the scientific community in creating an inclusive global data registry on TS; the biggest in […]

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The Connection between Turner Syndrome and Autism

Subscribe to our blog Is there a connection between Turner syndrome (TS) and Autism Spectrum Disorder (ASD)? Both conditions occur on a spectrum, which means they will vary greatly in how they present in patients. Is there a connection between the two conditions, though? While knowledge of both conditions changes over time, and we have

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Turner Syndrome & Verbal Skills: a Good-news Story!

Subscribe to our blog We often hear a lot about the challenges of Turner syndrome (TS), which vary from patient to patient. But let’s make sure to look at the positives, too! One of those for individuals with TS is having above-average verbal skills. How can we nurture this in individuals with TS and help

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International TS Treatments

Subscribe to our blog Intro Much of the Turner Syndrome Foundation’s (TSF) focus is on helping individuals with Turner Syndrome (TS) manage their health challenges. However, with the pandemic highlighting the power of spreading awareness and sharing research to overcome global health challenges, we decided to change our approach. Written by a collaborative team of

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Electronic Health Records Enhance Turner Syndrome Diagnosis

Subscribe to our blog The Importance of Early Diagnosis Early diagnosis is crucial because it helps: give growth hormone and/or hormone replacement therapies enough time to improve the health and height of patients with TS; and make potentially lifesaving medical interventions for heart, kidney, and other health challenges possible, keeping them from developing into dangerous

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Everything You Need To Know about the TSRX-PIN Registry

Subscribe to our blog One of the many things the COVID-19 pandemic has taught us is the importance of scientific research. Without research, we could not solve many health questions, like how to help treat people with rare conditions like Turner Syndrome (TS) during the pandemic. Whether you’re a medical professional, researcher, or patient, it

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