The Hidden Healthcare Gap

The Hidden Healthcare Gap: Why Adult Women with Turner Syndrome Are Being Left Behind

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Many adult women with Turner syndrome (TS) are not getting the ongoing medical care they require. This often begins during the transition from pediatric to adult care, when support tends to drop off. Too few transition programs or clinics are in place to guide this transition, and as a result, many women stop treatment altogether. […]

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The Importance of Turner Syndrome Advocacy

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The 2025 Petition for Turner Syndrome and Why it Matters We’re thrilled to see that nearly 200 people have signed the Turner Syndrome Foundation’s Petition for Patient Care so far in 2025! While the majority of the signatures came from within the United States, we’re excited that we also had support from Cameroon, Canada, and

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Back to School Guide for Parents, Students, and Teachers

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Subscribe to our blog School is Back in Session! Here are some tips for students, parents, and teachers in grades K-12 to help prepare for the school year.   The Turner Syndrome Foundation (TSF) also has a College 101 webinar geared towards college students available to view right now! Click to View Now for FREE! Parents

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Psychosocial and Educational Considerations

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Subscribe to our blog The State of Healthcare and Educational Access for Girls with TS Turner syndrome (TS) can have varying degrees of impact on one’s education through both potential learning and physical disabilities. These may include social cognition, ADHD or ADD, math abilities, and visuospatial organization.  Often girls with Turner syndrome and their families

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Let’s Learn: Nonverbal Learning Disabilities (NVLD)

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If the term NVLD (Nonverbal Learning Disability) is unfamiliar, we are here to change that today! Nonverbal Learning Disabilities are learning disabilities where an individual has deficits in visual-spatial abilities and math, often contradicting their strong verbal skills. It is estimated that these disabilities are present to some degree in 99% of females with TS.

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Psychologist & student

What School Psychologists Need to Know About Students with Turner Syndrome

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Subscribe to our blog Students with Turner syndrome (TS) often have special needs in the classroom. Some experience nonverbal learning disorder (NVLD), social anxiety, or other challenges. School psychologists are in a unique position to nurture these students’ strengths and support them in their challenges. Below is a review of an article from the National

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Girl at doctor

Sharing a Turner Syndrome Diagnosis with Your Child at Different Stages

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Subscribe to our blog Many parents struggle with sharing a Turner Syndrome (TS) diagnosis with their child. When is it appropriate? How do I share it? How much do I share? It is a difficult decision, but there are benefits to sharing the diagnosis and educating the child about their condition. It increases knowledge, self-advocacy,

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How To Spread Your Butterfly Wings & Be Successful in College

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Subscribe to our blog Getting accepted to college is a huge accomplishment. Many students wonder if they are prepared for the challenges they might face when entering college and feel worried about managing academic and personal life. The transition from high school to college can be intimidating, but there are many opportunities and resources available

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