school support plan

Understanding the Cognitive Profile of Girls with Turner Syndrome

How Educators and Families Can Support Strengths and Challenges in Learning Turner syndrome (TS) is a chromosomal condition affecting about 1 in 2,000 females, and while the physical characteristics may be obvious, it is lesser known that the condition also affects learning and cognition. Understanding the learning strengths and challenges associated with TS is essential […]

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6 Books To Read About Turner Syndrome

6 Books about Turner Syndrome

Why Reading about Turner Syndrome is Important “As someone who was an avid reader throughout school and trying to get back into the groove of regular reading despite the increased demands of everyday life, I will never get tired of listing the improvements reading can have to someone,” says Brooke Caron, a woman with Turner

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The Hidden Healthcare Gap

The Hidden Healthcare Gap: Why Adult Women with Turner Syndrome Are Being Left Behind

Many adult women with Turner syndrome (TS) are not getting the ongoing medical care they require. This often begins during the transition from pediatric to adult care, when support tends to drop off. Too few transition programs or clinics are in place to guide this transition, and as a result, many women stop treatment altogether.

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TSAM Advocacy Graphic

The Importance of Turner Syndrome Advocacy

The 2025 Petition for Turner Syndrome and Why it Matters We’re thrilled to see that nearly 200 people have signed the Turner Syndrome Foundation’s Petition for Patient Care so far in 2025! While the majority of the signatures came from within the United States, we’re excited that we also had support from Cameroon, Canada, and

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Back to School Guide for Parents, Students, and Teachers

Subscribe to our blog School is Back in Session! Here are some tips for students, parents, and teachers in grades K-12 to help prepare for the school year.   The Turner Syndrome Foundation (TSF) also has a College 101 webinar geared towards college students available to view right now! Click to View Now for FREE! Parents

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Webinar Psychosocial and Educational Considerations

Psychosocial and Educational Considerations

Subscribe to our blog The State of Healthcare and Educational Access for Girls with TS Turner syndrome (TS) can have varying degrees of impact on one’s education through both potential learning and physical disabilities. These may include social cognition, ADHD or ADD, math abilities, and visuospatial organization.  Often girls with Turner syndrome and their families

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Let’s Learn: Nonverbal Learning Disabilities (NVLD)

If the term NVLD (Nonverbal Learning Disability) is unfamiliar, we are here to change that today! Nonverbal Learning Disabilities are learning disabilities where an individual has deficits in visual-spatial abilities and math, often contradicting their strong verbal skills. It is estimated that these disabilities are present to some degree in 99% of females with TS.

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Psychologist & student

What School Psychologists Need to Know About Students with Turner Syndrome

Subscribe to our blog Students with Turner syndrome (TS) often have special needs in the classroom. Some experience nonverbal learning disorder (NVLD), social anxiety, or other challenges. School psychologists are in a unique position to nurture these students’ strengths and support them in their challenges. Below is a review of an article from the National

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