Together for Turner Syndrome: Strikeouts for Turner Syndrome 2025

Together for Turner Syndrome: Strikeouts for Turner Syndrome 2025

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The 2025 Strikeouts for Turner Syndrome campaign was a powerful reminder of what community, advocacy, and compassion can achieve together. This initiative—born from the hearts of Pete and Lydia Fairbanks in loving memory of their daughter, Ellis—was a heartfelt call to action to raise awareness, spark conversations, and ensure that no family facing Turner syndrome […]

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Her Fight is Our Fight Collage

After Awareness Month the Beat Goes On

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Subscribe to our blog Throughout February, we proudly celebrated Turner Syndrome Awareness Month, honoring the incredible women and girls who show strength, resilience, and determination every day. While the official awareness month may be coming to an end, our commitment to raising awareness must continue all year long. By keeping the conversation going, we can

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Rally for Medical Research

Powerfully Impacting the TS Community: Legislative Advocacy

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   There are many ways to get involved in awareness and work within the Turner syndrome (TS) community. Legislative advocacy is a very important part of that work, as it allows us to communicate directly with our federal, state, and local representatives who have the ability to officially proclaim awareness for TS. National awareness for

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Psychologist & student

What School Psychologists Need to Know About Students with Turner Syndrome

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Subscribe to our blog Students with Turner syndrome (TS) often have special needs in the classroom. Some experience nonverbal learning disorder (NVLD), social anxiety, or other challenges. School psychologists are in a unique position to nurture these students’ strengths and support them in their challenges. Below is a review of an article from the National

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Girl at doctor

Sharing a Turner Syndrome Diagnosis with Your Child at Different Stages

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Subscribe to our blog Many parents struggle with sharing a Turner Syndrome (TS) diagnosis with their child. When is it appropriate? How do I share it? How much do I share? It is a difficult decision, but there are benefits to sharing the diagnosis and educating the child about their condition. It increases knowledge, self-advocacy,

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Turner Syndrome and the Importance of Newborn Screening

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Subscribe to our blog Medical advancements in newborn screening have improved the early diagnosis and treatment of chronic diseases, including Turner syndrome (TS). This screening is efficient, cost-effective, and although not frequently talked about, includes routine tests that take place prenatally or immediately after birth. Since September is Newborn Screening Awareness Month, we will take

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The Changing Workplace: New Opportunities for Work-Life Balance

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Subscribe to our blog The sudden change and isolation during the COVID pandemic pushed us into an uncomfortable and uncertain reality, one that led us to reconsider our choices and routines. The workplace changed, too, in ways that offer new opportunities for those seeking an improved work-life balance in the post-pandemic world. Individuals with Turner

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How To Spread Your Butterfly Wings & Be Successful in College

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Subscribe to our blog Getting accepted to college is a huge accomplishment. Many students wonder if they are prepared for the challenges they might face when entering college and feel worried about managing academic and personal life. The transition from high school to college can be intimidating, but there are many opportunities and resources available

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Living Independently with Turner Syndrome

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Subscribe to our blog Turner Syndrome (TS) is a genetic condition that affects 1 in every 2,000 live female births. Individuals with TS usually have short stature, may be infertile, and may experience a variety of medical, cognitive, and psychological challenges. Given these challenges, patients with TS need access to specialized medical, educational, social, and

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