Subscribe to our blog Turner Syndrome (TS) is a genetic condition that affects 1 in every 2,000 live female births. Individuals with TS usually have short stature, may be infertile, and may experience a variety of medical, cognitive, and psychological challenges. Given these challenges, patients with TS need access to specialized medical, educational, social, and […]
Living Independently with Turner Syndrome Read More
Subscribe to our blog Intro Are you struggling with talking to your family about infertility caused by Turner Syndrome (TS)? Are you a woman with TS who’s finding it difficult to talk to your partner or strangers about it? This article will discuss everything you need to know about talking about infertility, from what it
How To Confidently Talk about Infertility: a Guide Read More
Subscribe to our blog One of the many things the COVID-19 pandemic has taught us is the importance of scientific research. Without research, we could not solve many health questions, like how to help treat people with rare conditions like Turner Syndrome (TS) during the pandemic. Whether you’re a medical professional, researcher, or patient, it
Everything You Need To Know about the TSRX-PIN Registry Read More
New Resource for Expectant Parents: Prenatal Testing & Information About Turner Syndrome booklet. Learn more
New Resource for Parents Expecting a Baby with Turner Syndrome Read More
Subscribe to our blog In this post, we’ll review some of the information shared during the webinar “Fertility Preservation in Girls with Turner Syndrome” hosted by the Turner Syndrome Foundation, featuring guest speaker Dr. Kutluk Oktay–an OB/GYN physician and professor at Yale University. We will discuss the process of fertility, how to test for infertility,
Fertility Preservation in Turner Syndrome Read More
Subscribe to our blog Calling your local government officials is a great way to spread awareness of your cause and fight for actionable change, but many people may not know how to do it, or why. This article will tell you everything you need to know about advocating via phone calls, how to do it,
How To Call Government Officials Like A Pro Read More
Subscribe to our blog In this post, we will share adult care guidelines for patients with Turner Syndrome (TS). We aim to provide a general overview of suggested physician visits, tests, and monitoring to ensure prevention of potential health concerns. Note: The information in this post is educational and should not replace medical advice from
Adult Care Guidelines for Individuals with Turner Syndrome Read More
Subscribe to our blog Growth hormone and estrogen therapies are among the most common treatments for individuals who have Turner Syndrome (TS). Short stature affects at least 95% of all individuals with TS and is the most consistent and readily recognizable clinical feature of TS. Additionally, only 16% of those affected have spontaneous puberty, and many
What Are Growth Hormone and Estrogen Therapy? Read More
Subscribe to our blog Turner Syndrome manifests itself differently in each patient. This post will examine the different variations of Turner Syndrome and what that means for girls and women with the condition. Many people do not realize that there are two variations of Turner Syndrome, commonly called classic and mosaic. Patients with each type can show
Turner Syndrome Variations Read More
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