The 2025 Petition for Turner Syndrome and Why it Matters We’re thrilled to see that nearly 200 people have signed the Turner Syndrome Foundation’s Petition for Patient Care so far in 2025! While the majority of the signatures came from within the United States, we’re excited that we also had support from Cameroon, Canada, and […]
The Importance of Turner Syndrome Advocacy Read More
Subscribe to our blog Like many women with Turner syndrome (TS), I went my whole life with the reality that I most likely would never be able to have my own kids, a diagnosis confirmed with recent testing. Even though I had the understanding, it still hit harder than I could have ever imagined when
Infertility in Women with Turner Syndrome: Kayla’s Story Read More
Subscribe to our blog Throughout February, we proudly celebrated Turner Syndrome Awareness Month, honoring the incredible women and girls who show strength, resilience, and determination every day. While the official awareness month may be coming to an end, our commitment to raising awareness must continue all year long. By keeping the conversation going, we can
After Awareness Month the Beat Goes On Read More
Subscribe to our blog Hello! Hello there, my name is Angela. I am blessed with many things in life. I have wonderful family and friends, a love for reading and learning, the cutest dog ever, and I also have Turner syndrome. As a nurse, I am passionate about health education so I hope anyone reading
My Story: Being an Advocate for Myself and Others Read More
Subscribe to our blog Previous versions of this post were originally published in February 2021 and October 2022. The Turner Syndrome Foundation (TSF) is wrapping up its celebration of TS Awareness Month (TSAM) for 2025, but its mission to promote awareness and advocacy for TS will continue every day. TSF hosted several awareness, advocacy, and
Subscribe to our blog Hey, I’m Jaclyn Hey! I’m Jaclyn. A 31 year-old millennial thriving on Celsius, an upbeat Spotify playlist, and cheetah print everything. Though I do not have Turner syndrome myself, my reason for being here is a pretty freakin’ incredible one. Meet Sammie Sam & I met when we were about 7
Sammie’s Story (Jaclyn’s Version) Read More
Subscribe to our blog imagining the possibilities with Cryptocurrency Philanthropy As we look back, it appears that non-cash gifts flourished. People gave generously with gifts of stock and donor advised funds in addition to corporate grants and workplace matching gifts. All donors, no matter the amount or frequency of their giving, bolstered this cause with
Non-Cash donations & Cryptocurrency Read More
Subscribe to our blog Awareness During Crohn’s & Colitis Week Crohn’s & Colitis Awareness Week is from December 1st -7th. This is a great time to shine a light on inflammatory bowel disease (IBD), such as Crohn’s disease and ulcerative colitis, and its prevalence in Turner syndrome. Crohn’s disease and colitis can have a significant
Turner Syndrome and Inflammatory Bowel Disease Read More
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