Turner syndrome (TS) is a genetic disorder characterized by the loss or alteration of one X chromosome in biological women. This genetic alteration can have knockdown effects that are reflected in elevated or reduced risks of certain kinds of cancer for TS patients. The impact of TS on the risk of solid tumors will be […]
Tumors and Turner Syndrome Read More
When Lia’s mom, Ashley, received her daughter’s Turner Syndrome (TS) diagnosis at just 12 weeks gestation, the world shifted. A flagged NIPTS test, followed by confirmation through amniocentesis and CVS testing, brought a wave of fear and uncertainty. “My world came crashing down,” she shares. “Not being able to enjoy my pregnancy still sits with
Born to Be Brave: Lia’s Story and a Growing Legacy of Advocacy Read More
When a child is diagnosed with Turner syndrome (TS), it’s natural to have questions about their life and future. You may be focused on managing present or future medical challenges, but just as important are the questions that arise around education, independence, and career opportunities. One common concern we often hear is “What kind of
Turner Syndrome and Careers: A World of Opportunities Read More
Many adult women with Turner syndrome (TS) are not getting the ongoing medical care they require. This often begins during the transition from pediatric to adult care, when support tends to drop off. Too few transition programs or clinics are in place to guide this transition, and as a result, many women stop treatment altogether.
The Hidden Healthcare Gap: Why Adult Women with Turner Syndrome Are Being Left Behind Read More
Join the Fairbanks and Tampa Bay Rays on June 7th for Strikeouts for Turner Syndrome: A Community Day of Hope and Awareness For the second year in a row, Pete Fairbanks, pitcher for the Tampa Bay Rays, and his wife Lydia are inviting you to be part of something far greater than a scorecard. For
Pitching for a Purpose: Join Fairbanks Strikeouts for Turner Syndrome Read More
Do you love to read? Are you always looking for your next great book, or maybe searching for a reason to finally start that TBR pile? This summer, you can turn pages and make a difference with the Turn a Page for Turner Syndrome Summer Read-A-Thon! From June to August 2025, readers from all over
Turn a Page for Turner Syndrome: A Summer Read-A-Thon with Purpose Read More
Living with Turner syndrome (TS) presents unique challenges and triumphs, not only for the girls and women diagnosed, but also for their families. Often, loved ones become key advocates, navigating the journey alongside them. In this post, we share the stories of three mothers, Lucia, Victoria, and Kimberly, who are dedicated to understanding TS and
From the Mother’s Viewpoint: Advocating for Turner Syndrome Girls Read More
How can women with Turner syndrome find their path in life despite challenges? How can you advocate for your health needs? Rosie shares her journey with Turner syndrome and how she has overcome challenges in her life. In addition, she shares an important message for medical professionals. Navigating External Judgement & Overcoming Childhood Challenges I
My Story: Finding My Path Read More
Turner syndrome (TS) is a genetic disorder and individuals with TS may have an increased risk of certain health conditions, including some cancers. While TS itself does not cause cancer, associated hormonal and genetic factors may contribute to an increased risk. The impact of Turner syndrome on several types of cancer risk will be explored
An Overview of Turner Syndrome and Various Cancer Risks Read More
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