Turner Syndrome and the Importance of Newborn Screening

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Subscribe to our blog Medical advancements in newborn screening have improved the early diagnosis and treatment of chronic diseases, including Turner syndrome (TS). This screening is efficient, cost-effective, and although not frequently talked about, includes routine tests that take place prenatally or immediately after birth. Since September is Newborn Screening Awareness Month, we will take […]

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A Guide to Common Challenges of Elementary Schoolers with Turner Syndrome

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Subscribe to our blog School can be difficult for many students, but especially if they have a chronic condition. This article will address the common challenges of elementary schoolers with Turner Syndrome (TS) and how to help them overcome them.. Disclaimers: Caretakers, this article is not meant to be a replacement for medically based educational

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How To Communicate Effectively

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Subscribe to our blog The importance of communication has increased during the pandemic, The Turner Syndrome Foundation (TSF) presents this article to discuss effective communication and the barriers to it, communication in different situations, communication for social change (like TS awareness!), and resources to enhance your communication skills.  Paradigm Shift with Communication During the Pandemic

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How To Open a Conversation About Turner Syndrome Diagnosis

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Subscribe to our blog One of the most challenging aspects of Turner Syndrome (TS) is knowing when and how to approach the TS diagnosis conversation. Whether you are a parent/caregiver or patient, read on to learn more about when and how to have this important conversation. The Importance of Approaching the TS Diagnosis Conversation We

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Stress Free Health Care

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The Importance of Stress Free Health Care Did you remember to take your medicine today? Did you attend your doctor’s appointment? Maintaining good health practices is a frequent topic of discussion in society. From talking about certain diets such as Veganism, to exercising, all of these health practices require a sense of responsibility and discipline

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My Story: What I’ve Learned as an Angel Mommy

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Chelsea Patterson is a make-up artist and blogger from Michigan. Since losing her unborn baby, Noa, to Turner Syndrome (TS)-related complications, she has been on a mission to spread awareness of TS and support other angel mommies. Below is the story of how she worked through a tragic experience to honor Noa and help other

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Turner Syndrome and Fertility: Act Early!

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Subscribe to our blog While infertility is one of the primary symptoms of Turner Syndrome (TS), fertility treatments can help some patients, primarily those with mosaic TS. In this post, we summarize and discuss the article “Importance of early and precise ascertainment of mosaic TS for fertility preservation and assisted reproduction counseling,” by Borini and

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