Patient Archives | Page 3 of 11 | Turner Syndrome Foundation //

Category: Patient


Communicating With Your Physician: Tips On Self-Advocacy

In this post, we will discuss some tips on how to communicate with your physician. Particularly, we will focus on specific ways patients and caregivers can ensure that physicians are listening to and hearing their stories for effective clinical encounters….

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The Importance of Research

the importance of research

Research is a main aspect of our mission because it can improve future outcomes in many ways. Keep reading to learn about some of the reasons research is so important, and some opportunities that you can get involved in! Medical…

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Exercise for a Great Cause!

the benefits of exercise

This article talks about the benefits of exercising, particularly walking, and how you can exercise for a great cause! Read below to learn more and sign up for the Turner Syndrome Foundation‘s (TSF) Take a Step for Turner Syndrome event….

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Defining Key Terms in Discussing Turner Syndrome

Turner syndrome definitions

Medical information can be confusing, and defining key terms in discussing Turner Syndrome (TS) is important. In this post, we aim to provide definitions of some general medical terms and some specifically associated with TS. General Medical Terms Amniocentesis: procedure…

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My Story: Living with an Autoimmune Disease and Other Medical Issues

This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Coping with TS can be challenging, but dealing with other…

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Is Growth Hormone Therapy Right for Your Child?

is growth hormone therapy right for your child?

In a recent webinar, Dr. Mary Gwyn Roper discussed Growth Hormone Therapy (GHT) in patients who have Turner Syndrome. Read below to learn some things she shared that might help you decide whether Growth Hormone Therapy (GHT) is right for…

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Autoimmune Diseases Common in Turner Syndrome

autoimmune diseases common in turner syndrome

In this post, we will discuss some of the autoimmune diseases commonly associated with Turner Syndrome (TS), including Hashimoto’s thyroiditis, diabetes, and celiac disease. Learn more about the causes, symptoms, diagnosis, and treatment of these conditions below. Note: The information…

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Let’s Take a Step for Turner Syndrome

Virtual Walk Run Turner syndrome

During these difficult times, the Turner Syndrome Foundation knows that it has been challenging to stay active for many people. That’s why we are excited to announce our first-ever virtual run/walk! It is the perfect opportunity to get active while…

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Finding Your “Something”

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome (TS). In this article, she reflects on finding her “something”–a cause that speaks to her…

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Participate in NIH COVID Impact Study

COVID-19 has undeniably has a profound impact on all members of society. Until this point, we haven’t been able to describe the impact on those who have Turner Syndrome specifically. Now, a study by NIH researchers will help us understand…

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