This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re talking to a doctor or your boss about an unmet need or accommodation. Self-advocacy can […]
Self-Advocacy Tips for Healthcare, School, and Work Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses recognizing your beauty in a world that often focuses on the external. You’ve got to get up every morning with a smile on your face,
Recognizing Your Beauty Read More
Subscribe to our blog In our most recent webinar with Paula Glashausser, LCSW, ACM, she shared several healthy coping strategies for those who experience anxiety. In this blog we will provide an overview of some “emotional coping” strategies she outlined. These simple exercises can be done discreetly even in a social setting, making them excellent
Healthy Coping Strategies for Anxiety Read More
Subscribe to our blog Written by Cassidy Hooper, Turner Syndrome woman and TSF volunteer Twitter Chat Facilitator What a great discussion about mental health and Turner Syndrome we had on Twitter on March 25th! We got to learn so much from women with Turner Syndrome about their perspectives on mental health as shaped by their
Mental Health and Turner Syndrome Read More
Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome. This month I would like to shed some light on the open-heart surgery that I underwent last year, and how self-advocacy led to a life-saving intervention. I hope that
Self-Advocacy for Better Health Read More
Patient Handbook on Turner Syndrome
New! Turner Syndrome Patient Handbook Read More
Subscribe to our blog Click to order a copy! The Turner Syndrome Patient Guide is available upon request. The “Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome- Brief Synopsis” is a guide that provides a summary of the main points from the 2017 report for medical professionals about indicators of
Turner Syndrome Patient Guide Available Upon Request Read More
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