Occupational therapy is often a helpful intervention for girls with Turner syndrome (TS) who need assistance learning to complete functional tasks in daily life. In this blog, learn what occupational therapy is, how it may be helpful for a girl with TS, and how it can be accessed. What is Occupational Therapy? According to the […]
The Role of Occupational Therapy for Turner Syndrome Read More
Turner Syndrome patients have an increased risk for several skeletal issues, including knock knees, also known as genu valgum. Knock knees have significant implications for mobility and long term joint health, but can be treated most effectively with early diagnosis. Thus, this article focuses on knock knees in individuals with TS, covering prevalence, potential impacts,
Knock Knees and Turner Syndrome Read More
Medical history is important. It gives us a framework of where we have been and where we need to go. It shapes the way we think and practice medicine but also guides our future. The history and intersection of Turner syndrome (TS) and Diabetes Mellitus (DM) can give us valuable insight into current research gaps
The History of Turner Syndrome & Diabetes Mellitus Read More
I am both a retired pediatric endocrinologist and a woman with Turner syndrome (TS). I have been a pediatric endocrinologist since 2000, and enjoy interacting with other girls and women with TS. My personal medical journey and pediatric endocrinology training have given me a unique perspective in the ongoing knowledge of Turner syndrome management. My
Medical Gaps In The Treatment of Adult Women with Turner Syndrome Read More
Underscoring our commitment to serve and inform Turner syndrome patients wherever they are located, these are three patient stories and experiences from different geographic locations. These stories from Germany, the United Kingdom, and the United States represent that across the would, many experiences with TS are unique, while there are common threads that connect us
An International Perspective from Turner Syndrome Patients Read More
The Turner Syndrome Foundation is grateful to have the support of many amazing Board Members who are passionate about advancing the cause. We are excited to introduce the newest member of our Board: Marvin Prestridge IV, Trustee Corporate Partnerships! Marvin joins our Board with a personal connection to TS in hopes of bringing awareness to
Introducing Marvin Prestridge: TSF Board Member Read More
Getting Diagnosed with Turner Syndrome at 10 Years Old Before my diagnosis at 10 years old I had a fairly typical childhood (and still did even after diagnosis). Aside from frequent ear infections, curled toenails, being a bit colicky as a baby, and growing a little more slowly compared to other children around me my
My Story: Living, Learning, and Leading with Turner Syndrome Read More
Individuals with Turner syndrome (TS) are more prone to hearing loss due to both structural and inner ear issues. In childhood, differences in skull and throat structure can lead to frequent middle ear infections (otitis media), causing conductive hearing loss. As they age, many develop sensorineural hearing loss due to inner ear or auditory nerve
FAQ: Hearing Loss in Turner Syndrome Read More
Turner syndrome (TS) is a condition that occurs in about 1 in every 2,000 live female births. TS is random and is characterized by a missing or partially missing X chromosome. TS symptoms are a spectrum and can look very different from person to person. Some may have short stature or delayed puberty, while others
Why Genetic Counseling Matters in Turner Syndrome Read More
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