Turner Syndrome FoundationCategory: Patient
My Story: Navigating Turner Syndrome Under the Radar
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of two women, Katelynne and Susan, who were both diagnosed later than…
Read MoreFrom 1938 to 2020: It’s Time for Change
Did you know that Turner Syndrome (TS) was first discovered in 1938? It might be hard to believe, given that, after 80 years, there is still a lack of awareness, research, and support for the TS community. Take a look…
Read MoreMy Story: Never Let a Diagnosis Get in Your Way
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Maria, a 29-year-old woman with TS. Maria discusses how she has…
Read MoreAdult Care Guidelines for Individuals with Turner Syndrome
In this post, we will share adult care guidelines for patients with Turner Syndrome (TS). We aim to provide a general overview of suggested physician visits, tests, and monitoring to ensure prevention of potential health concerns. Note: The information in…
Read MoreHow YOU Can Support the Turner Syndrome Community
Want to make a difference and help people in your community? This article will explain how you can support the Turner Syndrome (TS) community, as well as the Turner Syndrome Foundation (TSF). All About Turner Syndrome What Is Turner Syndrome?…
Read MorePediatric Care Guidelines for Turner Syndrome
In this post, we will share care guidelines for pediatric patients with Turner syndrome (TS). We aim to provide a general breakdown of suggested physician visits and tests to expect to ensure early monitoring and prevention of potential health concerns….
Read MoreThankful for Turner Syndrome
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on how she made peace with and learned to be…
Read MoreMy Story: I Wouldn’t Change a Thing
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Jill, a 28-year-old woman with TS. Jill discusses how she found…
Read MoreCommon Doctors for Individuals with Turner Syndrome
Turner syndrome (TS) is a complex disorder, and a variety of specialized healthcare providers are involved in its management depending on individual needs. Although finding the right provider is a challenge of its own, remember that we are here to…
Read MoreHow to Find a Turner Syndrome Specialist
Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with…
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