Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with your specific health needs, called specialists, and how to refer others to specialists that have […]
How to Find a Turner Syndrome Specialist Read More
This article talks about the benefits of exercising, particularly walking, and how you can exercise for a great cause! Read below to learn more and sign up for the Turner Syndrome Foundation‘s (TSF) Take a Step for Turner Syndrome event. Disclaimer: This article should not be taken as medical advice. It is only meant to
Exercise for a Great Cause! Read More
In a recent webinar, Dr. Mary Gwyn Roper discussed Growth Hormone Therapy (GHT) in patients who have Turner Syndrome. Read below to learn some things she shared that might help you decide whether Growth Hormone Therapy (GHT) is right for your child. Disclaimer: This post is not meant to replace individualized medical advice. Deciding whether
Is Growth Hormone Therapy Right for Your Child? Read More
During these difficult times, the Turner Syndrome Foundation knows that it has been challenging to stay active for many people. That’s why we are excited to announce our first-ever virtual run/walk! It is the perfect opportunity to get active while making a difference. Keep reading to learn more. About the Take a Step for TS
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Subscribe to our blog Do you want to positively impact your community but don’t know how? Read the stories of several new Turner Syndrome Foundation (TSF) volunteers who are making an impact by dedicating their time and talent. In this post, you will see that TSF volunteers come from a variety of backgrounds, and there
TSF Volunteers Making an Impact Read More
Subscribe to our blog Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP) and what to do if the plan’s results are not satisfactory.
How To Advocate for Your Child in School: Navigating 504 Plans and IEPs Read More
Do you have a child or loved one who has Turner Syndrome (TS) and needs growth hormone therapy (GHT) but cannot afford it? Do you know another parent in this situation? Read below to learn about what financial resources for GHT that could help you or other parents. Financial Resources for Growth Hormone Therapy Connections
Financial Resources for Growth Hormone Therapy Read More
Subscribe to our blog Growth hormone and estrogen therapies are among the most common treatments for individuals who have Turner Syndrome (TS). Short stature affects at least 95% of all individuals with TS and is the most consistent and readily recognizable clinical feature of TS. Additionally, only 16% of those affected have spontaneous puberty, and many
What Are Growth Hormone and Estrogen Therapy? Read More
Do you want to advocate for yourself but do not know what self-advocacy actually means? Struggling to find examples of being a self-advocate? This article can help you! We recently talked with members from the Turner Syndrome (TS) community to get their perspectives on self-advocacy. These women also share their personal stories about how they
Perspectives on Self-advocacy Read More
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