Psychosocial Considerations for Turner Syndrome

FAQ: Psychosocial Considerations for Turner Syndrome

Girls and women with Turner Syndrome (TS) face unique cognitive, emotional, and educational challenges that are often underrecognized, yet highly addressable with the right support. In the Turner Syndrome Foundation webinar: Psychosocial & Educational Considerations for Turner Syndrome, Mackenzie Norman, PhD., walked families, educators, and providers through the latest research and real-world strategies for improving […]

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Calla Norton

My Story: Finding Strength Through Challenges with Turner Syndrome

Growing up, I faced a wide range of unexplained health issues, struggling to keep food down, low muscle tone, speech delays, frequent gastrointestinal issues, and hearing loss. This was difficult for my parents, and even more frustrating because doctors couldn’t figure out why it was happening. When I was thirteen, my pediatrician noticed I had

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Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome

Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome

When it comes to supporting girls with Turner Syndrome (TS), we often think of care in two separate worlds: the medical clinic and the classroom. However, when these spheres work in isolation, important needs often go unmet. Girls with Turner Syndrome often present quietly. They may not act out or fall behind academically, but internally,

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Social Skills Development in Turner Syndrome

Social Skills Development in Turner Syndrome

Turner Syndrome (TS) is often discussed in terms of medical needs and physical development, but there are invisible areas of difference that can be just as impactful, one of them being social development. For example, TS patient Sydney, “TS has been more of a mental, social battle mostly. From the different doctors appointments to the

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Navigating Healthcare with Turner Syndrome

Navigating Healthcare with Turner Syndrome

Navigating Healthcare with Turner Syndrome Navigating the healthcare system can be confusing and frustrating—even more so when living with a genetic condition like Turner syndrome (TS). As someone with TS, I’ve often walked into doctors appointments only to discover the provider has little to no knowledge of the condition. These moments can leave you feeling

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Together for Turner Syndrome: Strikeouts for Turner Syndrome 2025

Together for Turner Syndrome: Strikeouts for Turner Syndrome 2025

The 2025 Strikeouts for Turner Syndrome campaign was a powerful reminder of what community, advocacy, and compassion can achieve together. This initiative—born from the hearts of Pete and Lydia Fairbanks in loving memory of their daughter, Ellis—was a heartfelt call to action to raise awareness, spark conversations, and ensure that no family facing Turner syndrome

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school support plan

Understanding the Cognitive Profile of Girls with Turner Syndrome

How Educators and Families Can Support Strengths and Challenges in Learning Turner syndrome (TS) is a chromosomal condition affecting about 1 in 2,000 females, and while the physical characteristics may be obvious, it is lesser known that the condition also affects learning and cognition. Understanding the learning strengths and challenges associated with TS is essential

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Mosaic Turner Syndrome with Y Chromosome Material and Gonadoblastoma

Mosaic Turner Syndrome with Y Chromosome Material and Gonadoblastoma

Turner syndrome (TS) is characterized by abnormalities in the sex chromosomes of some or all of an individual’s cells. These genetic changes can significantly impact the individual’s risk of developing certain kinds of cancers or benign tumors, which are caused by genetic mutations that enable cells to divide uncontrollably. In this article, we will explore

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6 Books To Read About Turner Syndrome

6 Books about Turner Syndrome

Why Reading about Turner Syndrome is Important “As someone who was an avid reader throughout school and trying to get back into the groove of regular reading despite the increased demands of everyday life, I will never get tired of listing the improvements reading can have to someone,” says Brooke Caron, a woman with Turner

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