Turner Syndrome FoundationArchives
How To Open a Conversation About Turner Syndrome Diagnosis
One of the most challenging aspects of Turner Syndrome (TS) is knowing when and how to approach the TS diagnosis conversation. Whether you are a parent/caregiver or patient, read on to learn more about when and how to have this…
Read MoreNew Merchandise- the Story Behind the Designs
We are so excited for the launch of new merchandise to show Turner Syndrome Pride! The items feature unique designs with symbols commonly associated with TS. They are available on a variety of products from hats to blankets to sweatshirts…
Read MorePeer Chat: Self-Advocacy and Turner Syndrome
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog writer. Self-advocacy is important for any patient who has Turner Syndrome (TS) and their caregivers. The ability to speak up for your needs is crucial to ensure access…
Read MoreLori’s Scrapbooking for Awareness
Lori is board member for the Turner Syndrome Foundation. She has created a community of support for Turner Syndrome through her love for scrapbooking. Lori’ daughter, Julie, was diagnosed at six weeks old. When it came to caring for and…
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