Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome (TS). In this article, she reflects on finding her “something”–a cause that speaks to her and allows her to contribute to her community. The Well of Ancient Mysteries To look […]
Finding Your “Something” Read More
Do you have a child or loved one who has Turner Syndrome (TS) and needs growth hormone therapy (GHT) but cannot afford it? Do you know another parent in this situation? Read below to learn about what financial resources for GHT that could help you or other parents. Financial Resources for Growth Hormone Therapy Connections
Financial Resources for Growth Hormone Therapy Read More
Subscribe to our blog Growth hormone and estrogen therapies are among the most common treatments for individuals who have Turner Syndrome (TS). Short stature affects at least 95% of all individuals with TS and is the most consistent and readily recognizable clinical feature of TS. Additionally, only 16% of those affected have spontaneous puberty, and many
What Are Growth Hormone and Estrogen Therapy? Read More
This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re talking to a doctor or your boss about an unmet need or accommodation. Self-advocacy can
Self-Advocacy Tips for Healthcare, School, and Work Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses recognizing your beauty in a world that often focuses on the external. You’ve got to get up every morning with a smile on your face,
Recognizing Your Beauty Read More
Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome. This month I would like to shed some light on the open-heart surgery that I underwent last year, and how self-advocacy led to a life-saving intervention. I hope that
Self-Advocacy for Better Health Read More
Patient Handbook on Turner Syndrome
New! Turner Syndrome Patient Handbook Read More
February Awareness Month is almost here, and we have prepared so many ways for you to join us in making change. Raising awareness happens all year, but February is a special time for us to focus our efforts and work together! We have created a packet for you to download that explains many Awareness Month
Awareness Month Involvement Packet Read More
Subscribe to our blog Click to order a copy! The Turner Syndrome Patient Guide is available upon request. The “Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome- Brief Synopsis” is a guide that provides a summary of the main points from the 2017 report for medical professionals about indicators of
Turner Syndrome Patient Guide Available Upon Request Read More
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