Do you or a loved one have challenges due to having health conditions like TS? Have you ever struggled with overcoming your challenges or setting goals? This article will help you learn what goals are, a certain goal-based system that can help you set goals, how others can help you achieve your goals, how you […]
How to Set Goals to Overcome Challenges Read More
Subscribe to our blog This post is based on the recent webinar by Dr. Oktay on “Fertility Preservation in Girls with Turner Syndrome.” It briefly highlights the importance of early diagnoses and treatment as well as the types of fertility preservation treatments individuals with TS can pursue. Note: The information in this post is educational.
Everything You Need to Know About Fertility Preservation Treatments Read More
Subscribe to our blog Estrogen Replacement Therapy is a common treatment for patients with Turner Syndrome. In this post, find the answers to some frequently asked questions about ERT. Thank you to Lournaris Torres-Santiago, MD and Nelly Mauras, MD of Nemours Children’s Health System, Jacksonville, FL, for contributing your expertise to answer these questions! Note:
Estrogen Replacement Therapy FAQ Read More
Do you have a fear of conflict? Do you have a hard time not getting emotional during a conflict? In the Turner Syndrome Foundation’s (TSF) recent webinar with Janet Pfeiffer, President of Pfeiffer Power Seminars, LLC, we learned about strategies to resolve conflicts peacefully–every single time! Janet offered five simple and effective conflict-resolution tips that
Conflict-Resolution Strategies Read More
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, we present the story of Olivia was diagnosed in utero. She discusses how she has navigated life with TS and shares advice for patients and parents. Note: As always, everyone’s journey
My Story: Advice for Patients and Parents Read More
Subscribe to our blog In this post, we will share adult care guidelines for patients with Turner Syndrome (TS). We aim to provide a general overview of suggested physician visits, tests, and monitoring to ensure prevention of potential health concerns. Note: The information in this post is educational and should not replace medical advice from
Adult Care Guidelines for Individuals with Turner Syndrome Read More
“I have come to realize that there are other families out there that are struggling with similar issues. I recognized there was a need for a 24/7 Caregivers Group to help and support each other.” -Lori Kobular, mother of a woman with TS Each individual with Turner Syndrome (TS) is unique, and some have complex
Announcing 24/7 Caregivers Group Read More
Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with your specific health needs, called specialists, and how to refer others to specialists that have
How to Find a Turner Syndrome Specialist Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome (TS). In this article, she reflects on finding her “something”–a cause that speaks to her and allows her to contribute to her community. The Well of Ancient Mysteries To look
Finding Your “Something” Read More
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