Navigating Healthcare with Turner Syndrome Navigating the healthcare system can be confusing and frustrating—even more so when living with a genetic condition like Turner syndrome (TS). As someone with TS, I’ve often walked into doctors appointments only to discover the provider has little to no knowledge of the condition. These moments can leave you feeling […]
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How Educators and Families Can Support Strengths and Challenges in Learning Turner syndrome (TS) is a chromosomal condition affecting about 1 in 2,000 females, and while the physical characteristics may be obvious, it is lesser known that the condition also affects learning and cognition. Understanding the learning strengths and challenges associated with TS is essential
Understanding the Cognitive Profile of Girls with Turner Syndrome Read More
Subscribe to our blog We’ve all heard the idiom “practice makes perfect” at some point. However, recent scientific studies might have proven otherwise. Have you ever felt that you never seem to improve on a given skill, no matter how actively you pursue it? Is it possible that it might not be the quantity of
When Practice Doesn’t Always Make Perfect Read More
Subscribe to our blog Pregnancy and Infant Loss Remembrance Day October 15 is Pregnancy and Infant Loss Remembrance Day, a day to recognize and honor those affected by miscarriage, stillbirth, SIDS, ectopic pregnancy, pregnancy termination for medical reasons, and newborn death. Each of these challenges profoundly impacts those who experience them. This article focuses on
Coping with Loss: Miscarriage and Infertility Read More
Subscribe to our blog September 13: National Celiac Disease Awareness Day Each year, September 13 marks National Celiac Disease Awareness Day, a time dedicated to increasing understanding and awareness of the impact celiac disease can have on individuals. Following the recent national holiday, TSF is highlighting celiac disease, as it is more common in individuals
Understanding Celiac Disease and Turner Syndrome Read More
Subscribe to our blog Imagine the frustration of constantly asking people to repeat themselves because the world around you is becoming increasingly muffled. For many individuals with Turner syndrome (TS), this is a reality they face due to progressive hearing loss. Hearing loss can significantly impact quality of life including school performance, work productivity, and
Understanding Hearing Loss in Turner Syndrome Read More
Subscribe to our blog Did you know that women with Turner Syndrome (TS) consistently attain academic success and are more likely to professionalize? (Goud et al., 2013). Those with TS often choose fields that positively impact society, such as healthcare, legal, community, and social services. They tend to be happier with their incomes as well
Navigating Employment with Turner Syndrome Read More
Osteoporosis is 1.4 to 2.2 times higher in TS than in the general population of women. Heightened Incidence of Osteoporosis in TS Those affected by Turner syndrome often suffer from low bone density and a high risk of fracture. These conditions can be caused by several different factors associated with TS, including ovarian insufficiency, celiac disease,
Subscribe to our blog Click image to register Women with Turner Syndrome (TS), as well as their parents and loved ones, may be wondering how to navigate the challenges with learning to drive safely. The Turner Syndrome Foundation’s (TSF) We Learn Webinar series can help. “Driving to a lot of people means independence, freedom, the
Steering Towards Success: Join Us for a Webinar on Driving with TS Read More
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