Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome

Coordinating Care Between Schools and Healthcare Providers for Girls with Turner Syndrome

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When it comes to supporting girls with Turner Syndrome (TS), we often think of care in two separate worlds: the medical clinic and the classroom. However, when these spheres work in isolation, important needs often go unmet. Girls with Turner Syndrome often present quietly. They may not act out or fall behind academically, but internally, […]

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Social Skills Development in Turner Syndrome

Social Skills Development in Turner Syndrome

3 Comments | Advocacy, Education & Communicating TS | | , ,

Turner Syndrome (TS) is often discussed in terms of medical needs and physical development, but there are invisible areas of difference that can be just as impactful, one of them being social development. For example, TS patient Sydney, “TS has been more of a mental, social battle mostly. From the different doctors appointments to the

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Navigating Healthcare with Turner Syndrome

Navigating Healthcare with Turner Syndrome

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Navigating Healthcare with Turner Syndrome Navigating the healthcare system can be confusing and frustrating—even more so when living with a genetic condition like Turner syndrome (TS). As someone with TS, I’ve often walked into doctors appointments only to discover the provider has little to no knowledge of the condition. These moments can leave you feeling

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Understanding the Cognitive Profile of Girls with Turner Syndrome

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How Educators and Families Can Support Strengths and Challenges in Learning Turner syndrome (TS) is a chromosomal condition affecting about 1 in 2,000 females, and while the physical characteristics may be obvious, it is lesser known that the condition also affects learning and cognition. Understanding the learning strengths and challenges associated with TS is essential

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When Practice Doesn’t Always Make Perfect

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Subscribe to our blog We’ve all heard the idiom “practice makes perfect” at some point. However, recent scientific studies might have proven otherwise. Have you ever felt that you never seem to improve on a given skill, no matter how actively you pursue it? Is it possible that it might not be the quantity of

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Coping with Loss: Miscarriage and Infertility

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Subscribe to our blog Pregnancy and Infant Loss Remembrance Day October 15 is Pregnancy and Infant Loss Remembrance Day, a day to recognize and honor those affected by miscarriage, stillbirth, SIDS, ectopic pregnancy, pregnancy termination for medical reasons, and newborn death. Each of these challenges profoundly impacts those who experience them. This article focuses on

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Understanding Celiac Disease and Turner Syndrome

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Subscribe to our blog September 13: National Celiac Disease Awareness Day Each year, September 13 marks National Celiac Disease Awareness Day, a time dedicated to increasing understanding and awareness of the impact celiac disease can have on individuals. Following the recent national holiday, TSF is highlighting celiac disease, as it is more common in individuals

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Understanding Hearing Loss in Turner Syndrome

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Subscribe to our blog Imagine the frustration of constantly asking people to repeat themselves because the world around you is becoming increasingly muffled. For many individuals with Turner syndrome (TS), this is a reality they face due to progressive hearing loss. Hearing loss can significantly impact quality of life including school performance, work productivity, and

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Navigating Employment with Turner Syndrome

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Subscribe to our blog Did you know that women with Turner Syndrome (TS) consistently attain academic success and are more likely to professionalize? (Goud et al., 2013). Those with TS often choose fields that positively impact society, such as healthcare, legal, community, and social services. They tend to be happier with their incomes as well

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