This post summarizes an article by Dr. Thalia Thompson, et al. titled “A Mixed-Methods Study of Physical Activity and Quality of Life in Adolescents with Turner Syndrome.” It explores how Turner Syndrome (TS) affects young people’s ability to exercise, given their TS-related health challenges. About the Study Purpose The two purposes of this study were […]
Exercise and Young People with Turner Syndrome Read More
Do you or a loved one have challenges due to having health conditions like TS? Have you ever struggled with overcoming your challenges or setting goals? This article will help you learn what goals are, a certain goal-based system that can help you set goals, how others can help you achieve your goals, how you
How to Set Goals to Overcome Challenges Read More
Yesterday was Mother’s Day, so we want to feature some of the amazing moms within the Turner Syndrome community. Thank you to all of the amazing moms who support the TS community!
Subscribe to our blog This post is based on the recent webinar by Dr. Oktay on “Fertility Preservation in Girls with Turner Syndrome.” It briefly highlights the importance of early diagnoses and treatment as well as the types of fertility preservation treatments individuals with TS can pursue. Note: The information in this post is educational.
Everything You Need to Know About Fertility Preservation Treatments Read More
Subscribe to our blog Estrogen Replacement Therapy is a common treatment for patients with Turner Syndrome. In this post, find the answers to some frequently asked questions about ERT. Thank you to Lournaris Torres-Santiago, MD and Nelly Mauras, MD of Nemours Children’s Health System, Jacksonville, FL, for contributing your expertise to answer these questions! Note:
Estrogen Replacement Therapy FAQ Read More
Do you have a fear of conflict? Do you have a hard time not getting emotional during a conflict? In the Turner Syndrome Foundation’s (TSF) recent webinar with Janet Pfeiffer, President of Pfeiffer Power Seminars, LLC, we learned about strategies to resolve conflicts peacefully–every single time! Janet offered five simple and effective conflict-resolution tips that
Conflict-Resolution Strategies Read More
In the webinar about the Cognitive Impact of Turner Syndrome, Dr. O’Desky discusses different games and activities an individual may do to strengthen their cognitive abilities. Individuals of all ages can use these tools, but it is important to begin the intervention as early as possible. If you notice your child having challenges with attention,
Games to Develop Cognitive Skills Read More
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, we present the story of Olivia was diagnosed in utero. She discusses how she has navigated life with TS and shares advice for patients and parents. Note: As always, everyone’s journey
My Story: Advice for Patients and Parents Read More
“I have come to realize that there are other families out there that are struggling with similar issues. I recognized there was a need for a 24/7 Caregivers Group to help and support each other.” -Lori Kobular, mother of a woman with TS Each individual with Turner Syndrome (TS) is unique, and some have complex
Announcing 24/7 Caregivers Group Read More
Subscribe to our Newsletter
Subscribe to our Newsletter
