Subscribe to our blog Estrogen Replacement Therapy is a common treatment for patients with Turner Syndrome. In this post, find the answers to some frequently asked questions about ERT. Thank you to Lournaris Torres-Santiago, MD and Nelly Mauras, MD of Nemours Children’s Health System, Jacksonville, FL, for contributing your expertise to answer these questions! Note: […]
Estrogen Replacement Therapy FAQ Read More
Do you have a fear of conflict? Do you have a hard time not getting emotional during a conflict? In the Turner Syndrome Foundation’s (TSF) recent webinar with Janet Pfeiffer, President of Pfeiffer Power Seminars, LLC, we learned about strategies to resolve conflicts peacefully–every single time! Janet offered five simple and effective conflict-resolution tips that
Conflict-Resolution Strategies Read More
In the webinar about the Cognitive Impact of Turner Syndrome, Dr. O’Desky discusses different games and activities an individual may do to strengthen their cognitive abilities. Individuals of all ages can use these tools, but it is important to begin the intervention as early as possible. If you notice your child having challenges with attention,
Games to Develop Cognitive Skills Read More
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, we present the story of Olivia was diagnosed in utero. She discusses how she has navigated life with TS and shares advice for patients and parents. Note: As always, everyone’s journey
My Story: Advice for Patients and Parents Read More
“I have come to realize that there are other families out there that are struggling with similar issues. I recognized there was a need for a 24/7 Caregivers Group to help and support each other.” -Lori Kobular, mother of a woman with TS Each individual with Turner Syndrome (TS) is unique, and some have complex
Announcing 24/7 Caregivers Group Read More
Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with your specific health needs, called specialists, and how to refer others to specialists that have
How to Find a Turner Syndrome Specialist Read More
In a recent webinar, Dr. Mary Gwyn Roper discussed Growth Hormone Therapy (GHT) in patients who have Turner Syndrome. Read below to learn some things she shared that might help you decide whether Growth Hormone Therapy (GHT) is right for your child. Disclaimer: This post is not meant to replace individualized medical advice. Deciding whether
Is Growth Hormone Therapy Right for Your Child? Read More
Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a child with the condition. We asked them to
Sharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective Read More
Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with TS. This is only one parent’s experience with TS and does not reflect every person’s
My Daughter’s Turner Syndrome Journey: Q&A with a Mother Read More
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