In the webinar about the Cognitive Impact of Turner Syndrome, Dr. O’Desky discusses different games and activities an individual may do to strengthen their cognitive abilities. Individuals of all ages can use these tools, but it is important to begin the intervention as early as possible. If you notice your child having challenges with attention, […]
Games to Develop Cognitive Skills Read More
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, we present the story of Olivia was diagnosed in utero. She discusses how she has navigated life with TS and shares advice for patients and parents. Note: As always, everyone’s journey
My Story: Advice for Patients and Parents Read More
“I have come to realize that there are other families out there that are struggling with similar issues. I recognized there was a need for a 24/7 Caregivers Group to help and support each other.” -Lori Kobular, mother of a woman with TS Each individual with Turner Syndrome (TS) is unique, and some have complex
Announcing 24/7 Caregivers Group Read More
Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with your specific health needs, called specialists, and how to refer others to specialists that have
How to Find a Turner Syndrome Specialist Read More
In a recent webinar, Dr. Mary Gwyn Roper discussed Growth Hormone Therapy (GHT) in patients who have Turner Syndrome. Read below to learn some things she shared that might help you decide whether Growth Hormone Therapy (GHT) is right for your child. Disclaimer: This post is not meant to replace individualized medical advice. Deciding whether
Is Growth Hormone Therapy Right for Your Child? Read More
Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a child with the condition. We asked them to
Sharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective Read More
Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with TS. This is only one parent’s experience with TS and does not reflect every person’s
My Daughter’s Turner Syndrome Journey: Q&A with a Mother Read More
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses her experience with Hormone Replacement Therapy. Hormones are your body’s chemical messengers. They travel in your bloodstream to tissues or organs to help them do their
Loud and Clear: My Hormone Replacement Therapy Journey Read More
Subscribe to our blog The eXemplarY Kids Clinic of Cedars-Sinai in Los Angeles, CA is a multidisciplinary clinic for children with X & Y chromosome variations. We spoke with Dr. Schweiger, Director of Pediatric Endocrinology and Co-Director of the Clinic, to learn how this center cares for girls with Turner Syndrome. What kind of specialized
TS Care Center: eXemplarY Kids Clinic Read More
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