Celebrating TS Moms
Yesterday was Mother’s Day, so we want to feature some of the amazing moms within the Turner Syndrome community. Thank you to all of the amazing moms who support the TS community!
Everything You Need to Know About Fertility Preservation Treatments
Subscribe to our blog This post is based on the recent webinar by Dr. Oktay on “Fertility Preservation in Girls with Turner Syndrome.” It briefly highlights the importance of early diagnoses and treatment as well as the types of fertility preservation treatments individuals with TS can pursue. Note: The information in this post is educational.
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Estrogen Replacement Therapy FAQ
Subscribe to our blog Estrogen Replacement Therapy is a common treatment for patients with Turner Syndrome. In this post, find the answers to some frequently asked questions about ERT. Thank you to Lournaris Torres-Santiago, MD and Nelly Mauras, MD of Nemours Children’s Health System, Jacksonville, FL, for contributing your expertise to answer these questions! Note:
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Conflict-Resolution Strategies
Do you have a fear of conflict? Do you have a hard time not getting emotional during a conflict? In the Turner Syndrome Foundation’s (TSF) recent webinar with Janet Pfeiffer, President of Pfeiffer Power Seminars, LLC, we learned about strategies to resolve conflicts peacefully–every single time! Janet offered five simple and effective conflict-resolution tips that
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Games to Develop Cognitive Skills
In the webinar about the Cognitive Impact of Turner Syndrome, Dr. O’Desky discusses different games and activities an individual may do to strengthen their cognitive abilities. Individuals of all ages can use these tools, but it is important to begin the intervention as early as possible. If you notice your child having challenges with attention,
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My Story: Advice for Patients and Parents
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, we present the story of Olivia was diagnosed in utero. She discusses how she has navigated life with TS and shares advice for patients and parents. Note: As always, everyone’s journey
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Announcing 24/7 Caregivers Group
“I have come to realize that there are other families out there that are struggling with similar issues. I recognized there was a need for a 24/7 Caregivers Group to help and support each other.” -Lori Kobular, mother of a woman with TS Each individual with Turner Syndrome (TS) is unique, and some have complex
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How to Find a Turner Syndrome Specialist
Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with your specific health needs, called specialists, and how to refer others to specialists that have
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Is Growth Hormone Therapy Right for Your Child?
In a recent webinar, Dr. Mary Gwyn Roper discussed Growth Hormone Therapy (GHT) in patients who have Turner Syndrome. Read below to learn some things she shared that might help you decide whether Growth Hormone Therapy (GHT) is right for your child. Disclaimer: This post is not meant to replace individualized medical advice. Deciding whether
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