Living with Turner syndrome (TS) presents unique challenges and triumphs, not only for the girls and women diagnosed, but also for their families. Often, loved ones become key advocates, navigating the journey alongside them. In this post, we share the stories of three mothers, Lucia, Victoria, and Kimberly, who are dedicated to understanding TS and […]
From the Mother’s Viewpoint: Advocating for Turner Syndrome Girls Read More
Turner syndrome (TS) is a genetic disorder and individuals with TS may have an increased risk of certain health conditions, including some cancers. While TS itself does not cause cancer, associated hormonal and genetic factors may contribute to an increased risk. The impact of Turner syndrome on several types of cancer risk will be explored
An Overview of Turner Syndrome and Various Cancer Risks Read More
Subscribe to our blog Like many women with Turner syndrome (TS), I went my whole life with the reality that I most likely would never be able to have my own kids, a diagnosis confirmed with recent testing. Even though I had the understanding, it still hit harder than I could have ever imagined when
Infertility in Women with Turner Syndrome: Kayla’s Story Read More
Subscribe to our blog Hello! Hello there, my name is Angela. I am blessed with many things in life. I have wonderful family and friends, a love for reading and learning, the cutest dog ever, and I also have Turner syndrome. As a nurse, I am passionate about health education so I hope anyone reading
My Story: Being an Advocate for Myself and Others Read More
Subscribe to our blog Awareness During Crohn’s & Colitis Week Crohn’s & Colitis Awareness Week is from December 1st -7th. This is a great time to shine a light on inflammatory bowel disease (IBD), such as Crohn’s disease and ulcerative colitis, and its prevalence in Turner syndrome. Crohn’s disease and colitis can have a significant
Turner Syndrome and Inflammatory Bowel Disease Read More
Subscribe to our blog We’ve all heard the idiom “practice makes perfect” at some point. However, recent scientific studies might have proven otherwise. Have you ever felt that you never seem to improve on a given skill, no matter how actively you pursue it? Is it possible that it might not be the quantity of
When Practice Doesn’t Always Make Perfect Read More
Subscribe to our blog Pregnancy and Infant Loss Remembrance Day October 15 is Pregnancy and Infant Loss Remembrance Day, a day to recognize and honor those affected by miscarriage, stillbirth, SIDS, ectopic pregnancy, pregnancy termination for medical reasons, and newborn death. Each of these challenges profoundly impacts those who experience them. This article focuses on
Coping with Loss: Miscarriage and Infertility Read More
Subscribe to our blog September 13: National Celiac Disease Awareness Day Each year, September 13 marks National Celiac Disease Awareness Day, a time dedicated to increasing understanding and awareness of the impact celiac disease can have on individuals. Following the recent national holiday, TSF is highlighting celiac disease, as it is more common in individuals
Understanding Celiac Disease and Turner Syndrome Read More
Subscribe to our blog Imagine the frustration of constantly asking people to repeat themselves because the world around you is becoming increasingly muffled. For many individuals with Turner syndrome (TS), this is a reality they face due to progressive hearing loss. Hearing loss can significantly impact quality of life including school performance, work productivity, and
Understanding Hearing Loss in Turner Syndrome Read More
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